Comments on: 20 Tips for Managing Your Rheumatoid Arthritis Treatment http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/ Bringing information & encouragement to fight RA Sat, 11 Feb 2012 13:28:43 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Kelly Young http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-118445 Kelly Young Fri, 18 Nov 2011 15:45:29 +0000 http://rawarrior.com/?p=2166#comment-118445 Much has been written here on the blog by me and other patients about this issue of the "privacy" of pain with RA since this post was made. It is related to the stoicism that surfaces in many patients not long after diagnosis. There is a good new comment related to this below by Jennifer. Readers should see below: http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/?show=comments#comment-118417 Much has been written here on the blog by me and other patients about this issue of the “privacy” of pain with RA since this post was made. It is related to the stoicism that surfaces in many patients not long after diagnosis. There is a good new comment related to this below by Jennifer. Readers should see below: http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/?show=comments#comment-118417

]]> By: Kelly Young http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-118442 Kelly Young Fri, 18 Nov 2011 15:41:10 +0000 http://rawarrior.com/?p=2166#comment-118442 This is right on target Jennifer. I was saying something similar to someone on the phone yesterday. Great points to bring up here. This is right on target Jennifer. I was saying something similar to someone on the phone yesterday. Great points to bring up here.

]]> By: Jennifer Wheat http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-118417 Jennifer Wheat Fri, 18 Nov 2011 15:12:15 +0000 http://rawarrior.com/?p=2166#comment-118417 Love this, especially the "tell the Doctor what hurts." I'm from Maine. We're kind of a stoic kind of folk. We don't talk about what hurts. We take pride in being able to do for ourselves. Just recently, I was talking to my boyfriend and telling him that I am not 100% honest with my doc. He looked me in the eye and said, and how do you expect her to do her job? Oh yeah. That. I made a list. I made it in red ink. She came in and said, uh oh, you have a list. I told her about my stoicism problem. She listened, and then really listened to what I have to say. I talked about what I cannot do anymore. What I can do sometimes. It seems like a simple thing, to say, tell your Doctor what is going on. It's not always an easy thing to do. You know what though? RA doesn't fight fair; it has the help of a whole host of crap (fatigue, swelling, pain in myriad forms) and if it's going to bring an army against me, well alright then. I'll get a bigger one. Love this, especially the “tell the Doctor what hurts.” I’m from Maine. We’re kind of a stoic kind of folk. We don’t talk about what hurts. We take pride in being able to do for ourselves. Just recently, I was talking to my boyfriend and telling him that I am not 100% honest with my doc. He looked me in the eye and said, and how do you expect her to do her job?

Oh yeah. That.

I made a list. I made it in red ink. She came in and said, uh oh, you have a list. I told her about my stoicism problem. She listened, and then really listened to what I have to say. I talked about what I cannot do anymore. What I can do sometimes.

It seems like a simple thing, to say, tell your Doctor what is going on. It’s not always an easy thing to do. You know what though? RA doesn’t fight fair; it has the help of a whole host of crap (fatigue, swelling, pain in myriad forms) and if it’s going to bring an army against me, well alright then. I’ll get a bigger one.

]]> By: DianeHooper http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-90797 DianeHooper Fri, 09 Sep 2011 20:33:19 +0000 http://rawarrior.com/?p=2166#comment-90797 I wish docs would give you instructions like this when you are diagnosed! What about a little fact sheet of items that make life easier? This is probably silly since I bet everyone here knows this but, if you haven't yet gotten yourself a memory foam topper for your bed just do it! They are wonderful. I know the full mattresses that are memory foam are very, very expensive but, you can buy just a topper even online Go for the thickest one. Mine is four inches thick. I could not sleep through the night without it. Docs need to include in any info when you are diagnosed a little list of helpful items. I carry a memory foam pillow when I have to travel. Getting stuck in an airport doesn't mean I have to sit for hours on a hard seat anymore. These days I ask for the wheel chair when I have to travel too. Getting stuck walking five miles between gates or up and down stairs...it gets down right dangerous at times. RA docs, could have a little sheet of items their other patients have found useful. Tips like these are invaluable. Love the alligator! It's useful and means something to others when you describe your RA. I wish docs would give you instructions like this when you are diagnosed! What about a little fact sheet of items that make life easier?

This is probably silly since I bet everyone here knows this but, if you haven’t yet gotten yourself a memory foam topper for your bed just do it! They are wonderful. I know the full mattresses that are memory foam are very, very expensive but, you can buy just a topper even online Go for the thickest one. Mine is four inches thick. I could not sleep through the night without it. Docs need to include in any info when you are diagnosed a little list of helpful items. I carry a memory foam pillow when I have to travel. Getting stuck in an airport doesn’t mean I have to sit for hours on a hard seat anymore.

These days I ask for the wheel chair when I have to travel too. Getting stuck walking five miles between gates or up and down stairs…it gets down right dangerous at times.

RA docs, could have a little sheet of items their other patients have found useful. Tips like these are invaluable. Love the alligator! It’s useful and means something to others when you describe your RA.

]]> By: Kelly Young http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-48850 Kelly Young Thu, 06 Jan 2011 16:47:13 +0000 http://rawarrior.com/?p=2166#comment-48850 Thanks Darlene. I hope it helps you. :) Thanks Darlene. I hope it helps you. :)

]]> By: Darlene http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-48831 Darlene Thu, 06 Jan 2011 15:37:37 +0000 http://rawarrior.com/?p=2166#comment-48831 Awesome. The 20 tips are just great as a newbee to this website. I am so glad I found it and learning so much about RA, how to document and handle at this time. Thank you for putting your time and energy into this website. Awesome. The 20 tips are just great as a newbee to this website. I am so glad I found it and learning so much about RA, how to document and handle at this time. Thank you for putting your time and energy into this website.

]]> By: Kelly Young http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-16623 Kelly Young Tue, 01 Jun 2010 13:39:39 +0000 http://rawarrior.com/?p=2166#comment-16623 Paul, there are several theories about possible triggers for RA. You are right, this is not one being given much attention - possibly because they do not see merit. I don't know. Also, a single case that is strange can sometimes be due to a misdiagnosis. And spontaneous remissions of RA are possible too, although rare. Paul, there are several theories about possible triggers for RA. You are right, this is not one being given much attention – possibly because they do not see merit. I don’t know. Also, a single case that is strange can sometimes be due to a misdiagnosis. And spontaneous remissions of RA are possible too, although rare.

]]> By: paul http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-16605 paul Tue, 01 Jun 2010 10:32:20 +0000 http://rawarrior.com/?p=2166#comment-16605 I cant find proper research on it so I am a bit sceptical ie there arent any double-blind randomised trials whose results have been published in leading reviewed academic journals...(!) However my RA started right after having a very nasty root canal so I am interested in trying to establish whether this theory might have any validity. 16-year remission of rheumatoid arthritis after unusually vigorous treatment of closed dental foci:<a rel="nofollow" href="http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=12175115&dopt=Abstract"> link</a> Paul I cant find proper research on it so I am a bit sceptical ie there arent any double-blind randomised trials whose results have been published in leading reviewed academic journals…(!) However my RA started right after having a very nasty root canal so I am interested in trying to establish whether this theory might have any validity.

16-year remission of rheumatoid arthritis after unusually vigorous treatment of closed dental foci: link

Paul

]]> By: Kelly Young http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-16566 Kelly Young Tue, 01 Jun 2010 01:17:01 +0000 http://rawarrior.com/?p=2166#comment-16566 Honestly, that is a new one to me. I'll look at it. Is this something that you support? Honestly, that is a new one to me. I’ll look at it. Is this something that you support?

]]> By: Paul http://rawarrior.com/20-tips-for-managing-your-rheumatoid-arthritis-treatment/comment-page-1/#comment-16547 Paul Tue, 01 Jun 2010 00:18:12 +0000 http://rawarrior.com/?p=2166#comment-16547 Hi Kelly, Do you have any thoughts on Focal inFection Theory? Thanks Paul Hi Kelly,

Do you have any thoughts on Focal inFection Theory?

Thanks

Paul

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