Comments on: “25 Years in Arthritis” – an Article on Rheumatoid Arthritis by ABC News

By: MichaelPatterson

MichaelPatterson — Fri, 06 Aug 2010 02:14:43 +0000

I didn’t read any facts in what you quoted…well said

By: MichaelPatterson

MichaelPatterson — Thu, 01 Jul 2010 04:52:14 +0000

Apparently they don’t have anything better to distort, although it’s not just them is it

By: MichaelPatterson

MichaelPatterson — Thu, 01 Jul 2010 04:49:14 +0000

Kelly, I’m prob. a little late in reading some of these posts, but I’m as mad now as you were when you posted.

“…once the patient has declared himself as in this third.’”
this was my fav. part of this post. If all I have to do is declare myself, then consider it done. I am in the mythical third category if that makes any difference. But it really doesn’t matter, b/c I’m not expecting any new treatment to work anymore…I’m done with that after taking several self inject-ables, and then being given Orencia and Rituxan (which I’m pretty sure is chemotherapy). They helped some…but if the result is the world expecting sunshine and roses as a result of these medications, they can keep these biologics, b/c the result was far from that. Not to discourage anyone who might read this, b/c those meds might work for you…

By: MichaelPatterson

MichaelPatterson — Thu, 01 Jul 2010 04:42:10 +0000

I’m coming to share in this frustration…when I was dx in 2007, my perception was that of the TV commercials, and my dr. telling me I’ll be able to do things like I once did, in the near future. It’s total crap, which is fine – just tell me that. Just be honest and realistic about it!

By: MichaelPatterson

MichaelPatterson — Thu, 01 Jul 2010 04:39:24 +0000

What can we do to separate “arthritis” from RA, other than call it RA as I like to…?

By: ~Z~

~Z~ — Wed, 03 Feb 2010 03:40:53 +0000

Karla is, in fact, my cousin. She’s been a major source of support for me since my diagnosis. ~;o)

By: Kelly Young

Kelly Young — Tue, 02 Feb 2010 22:19:38 +0000

Yikes! I think I just figured out Karla is your cousin. So cool. Two super-smart chickies! :chic:

By: ~Z~

~Z~ — Tue, 02 Feb 2010 21:46:09 +0000

Kelly,

Thanks for posting this article and telling us about your experiences. I can’t believe they deleted your comments. That’s just disrespectful.

I meant to just post a link to the article and a link to your response on my own blog, but I got all riled up and ended up writing a rant of my own: http://fromthispoint-forward.blogspot.com/2010/02/please-try-again-abc.html

Please let us know if they offer you an explanation. I’d be curious to see what they have to say.

~Mariah~

By: URandomnessK

URandomnessK — Tue, 02 Feb 2010 07:49:24 +0000

Kelly, you know me well enough to know I could get on my high horse about this and I really do have a live physical horse that I could get on too lol!! haha. But in all seriousness I had a friend say to me maybe it’s not as serious as I thought. Another told me come to their state and see this amazing acupuncturist who CURED her friend of MS. And yet another loving ignorant friend strongly urged me to cut ALL DAIRY from my diet. These friends learn from ABC and other news which is full of bullplop. I wish that ABC and Oprah, NBC, FOX, CNN and ALL of the news and influential tv people in the world would take a moment and see what REAL RA or AS or Lupus or Fibro or ANY chronic “invisible illness” really was like. I would HAPPILY hand over my shoes and let them walk a day in them, I bet it would take them about five maybe ten minutes before they are begging to give those shoes back or end up in the ER for pain higher than 10 on that 1-10 pain scale. Alright, time to get off of my high horse and the gist is, I COMPLETELY and TOTALLY agree with you and thank you for continuing to fight for us, to show the world what REAL RA looks like! Oh and someone recently tweeted that becoming a vegan may cure RA I nearly pee-ed my pants I laughed so hard…

Kelly, you are awesome, keep fighting the good fight and remember about that karma and that dogma Sending love and good joints/obedient robots your way!

By: Chelsea

Chelsea — Tue, 02 Feb 2010 04:23:27 +0000

Maybe they’d make a killing, maybe they wouldn’t. Depends on the very specifics involved. I don’t know about one test being able to predict which of the many would would work best, but if it ruled out a class of drugs, say TNF inhibitors, the pharm would potentially have a large number of potential patients cut out of their future potential revenue streams. Say if the TNF inhibitors were to only work really well (say ACR 50 or ACR70) for only a certain subset of newly diagnosed and of recent-onset patients. In the meantime there are other classes of drugs being developed that may help the larger subset of long-time RA’ers whose cytokine profiles are very different. If that relatively cheap test comes to market they might wind up driving a large subset of patients to a competitor. And obviously, there are a multitude of other, many non-scientific variables that would/could come into play. So it would just depend on the specifics of the situation.