I’m glad I found this site. I was diagnosed a year ago with RA but I’ve had fibromyalgia for many years and I now have PTTD, post tibial tendon dysfunction. It is difficult to be in pain daily and at only 42 nit be able to do most anything I always have
Hi! I e been following you for a few years now … read your new book. Love it! Question… any info you can help me with I’m taking humira and apparently the copay assistance card will no longer cover your deductible. How will people afford this? Most pp have a high deductible . Going without ???? Help.
Hi Kelly,
As you know there is much talk about a drug called Plaquenil to fight COVID 19.Clinical trials are ongoing or planned, but large scale studies for the efficacy of this drug against Coronavirus are not yet available.
Nevertheless, many people use routinely Plaquenil to treat Rheumatoid arthritis.
I am a scientist at University of Ferrara and think that we can learn a lot about the efficacy of this drug towards coronavirus by assessing the spread of the virus among these patients.Can you please help and sponsor the survey on your association’s newsletter?I include below the text of the survey (only 3 questions, plus age)
Hopefully we can quickly collect enough data to answer this important question.
Best,
Stefano
I wanted to thank you for all you are doing for the young adults with arthritis community, I am a frequent reader and am inspired by your story. I too, am a fighter.
My name is Connor Dacquay and I first experienced joint pain when I was 14 years old. Between the ages of 15 to 17 my symptoms progressively became worse to the point that I could barely walk and the pain in my knees was unbearable. At this point I went to a various number of doctors to try and diagnose the issue and perform CT and MRI scans but after being referred to four different doctors I was initially diagnosed with psoriatic arthritis at the age of 17.
At this point I was told to take Aleve rest the joints and apply ice and heat periodically to reduce the inflammation but the pain was persistent and I was devastated mentally and physically after feeling lost and experiencing a period of depression I found motivation to perform my own research for a possible solution for the pain. After months and months of research I came up empty handed as I couldn’t find any relatable resources for young adults recently diagnosed with arthritis this made me frustrated and increased my depression as I was couch ridden without hope.
I continued to search for rheumatologists for a proper diagnosis and treatment and finally found one when I was 21 years old. I was diagnosed with ankylosing spondylitis combined with psoriatic arthritis as I had a fused vertebrae and chronic knee and hip pain.
Motivated with a new Doctor and treatment I decided to experiment with my diet perform light exercises such as 10 minutes stationary bikes in 30 minute walks. Overtime I slowly cleaned up my diet further and increase my exercise over a five year period. I experimented with different exercises build up the muscle in my legs and started to perform short runs. Amazed with the reduction in overall pain and stiffness I increased the duration of my runs until I was able to run long distances and now, marathons.
Like you, I’m also a member of the Arthritis Society and I’ve been profiled by the arthritis society for my story in order to inspire young adults recently diagnosed with arthritis. I am impressed with your following and I believe we have similar views in the power of healthy lifestyle habits for people with arthritis.
I have been developing a 12-week program that uses a guided journal and audio tapes to help young adults with arthritis take their first steps after diagnosis. It is a new program and I am looking for people to review it to hear their thoughts. Would you be interested?
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I’m glad I found this site. I was diagnosed a year ago with RA but I’ve had fibromyalgia for many years and I now have PTTD, post tibial tendon dysfunction. It is difficult to be in pain daily and at only 42 nit be able to do most anything I always have
Hi! I e been following you for a few years now … read your new book. Love it! Question… any info you can help me with I’m taking humira and apparently the copay assistance card will no longer cover your deductible. How will people afford this? Most pp have a high deductible . Going without ???? Help.
Hi Kelly,
As you know there is much talk about a drug called Plaquenil to fight COVID 19.Clinical trials are ongoing or planned, but large scale studies for the efficacy of this drug against Coronavirus are not yet available.
Nevertheless, many people use routinely Plaquenil to treat Rheumatoid arthritis.
I am a scientist at University of Ferrara and think that we can learn a lot about the efficacy of this drug towards coronavirus by assessing the spread of the virus among these patients.Can you please help and sponsor the survey on your association’s newsletter?I include below the text of the survey (only 3 questions, plus age)
Hopefully we can quickly collect enough data to answer this important question.
Best,
Stefano
This is the SurveyMonkeys link:
https://www.surveymonkey.com/r/RHLVY6W
Hi Kelly,
I wanted to thank you for all you are doing for the young adults with arthritis community, I am a frequent reader and am inspired by your story. I too, am a fighter.
My name is Connor Dacquay and I first experienced joint pain when I was 14 years old. Between the ages of 15 to 17 my symptoms progressively became worse to the point that I could barely walk and the pain in my knees was unbearable. At this point I went to a various number of doctors to try and diagnose the issue and perform CT and MRI scans but after being referred to four different doctors I was initially diagnosed with psoriatic arthritis at the age of 17.
At this point I was told to take Aleve rest the joints and apply ice and heat periodically to reduce the inflammation but the pain was persistent and I was devastated mentally and physically after feeling lost and experiencing a period of depression I found motivation to perform my own research for a possible solution for the pain. After months and months of research I came up empty handed as I couldn’t find any relatable resources for young adults recently diagnosed with arthritis this made me frustrated and increased my depression as I was couch ridden without hope.
I continued to search for rheumatologists for a proper diagnosis and treatment and finally found one when I was 21 years old. I was diagnosed with ankylosing spondylitis combined with psoriatic arthritis as I had a fused vertebrae and chronic knee and hip pain.
Motivated with a new Doctor and treatment I decided to experiment with my diet perform light exercises such as 10 minutes stationary bikes in 30 minute walks. Overtime I slowly cleaned up my diet further and increase my exercise over a five year period. I experimented with different exercises build up the muscle in my legs and started to perform short runs. Amazed with the reduction in overall pain and stiffness I increased the duration of my runs until I was able to run long distances and now, marathons.
Like you, I’m also a member of the Arthritis Society and I’ve been profiled by the arthritis society for my story in order to inspire young adults recently diagnosed with arthritis. I am impressed with your following and I believe we have similar views in the power of healthy lifestyle habits for people with arthritis.
I have been developing a 12-week program that uses a guided journal and audio tapes to help young adults with arthritis take their first steps after diagnosis. It is a new program and I am looking for people to review it to hear their thoughts. Would you be interested?
I hope to speak with you soon. Sincerely,
Connor
Please email me. kelly @ rawarrior .com