Comments on: Baloney About Rheumatoid Arthritis

By: Melissa

Melissa — Sat, 14 Apr 2012 12:41:40 +0000

My husband has RA and those ads bother me. I see them in almost every magazine and on TV a lot. I usually change the channel because they irritate me so much. He has tried several of these ‘miracle’ drugs and there is no miracle. I find the ads insulting.

By: Louise B

Louise B — Fri, 17 Feb 2012 12:28:42 +0000

I did the happy touchdown dance -in my mind of course – when I read this. My family sees these ads and asks if I’ve taken the wonder drug that has people up and dancing. It’s hard enough for my friends & family to “get” my RA but baloney in advertising makes it more difficult.Thank you for letting me know I am not alone in wanting to respond violently to those misleading commercials.

By: Eve

Eve — Mon, 20 Jun 2011 15:11:31 +0000

So pleased to live in a country where medicine os NOT a free market. Advertising drugs on TV is alien to me, and it should be. Biologics are very powerful and the decision to take them should be reached with a rheumatologist, not a flashy advertisement.

By: Dawn

Dawn — Fri, 15 Apr 2011 14:47:34 +0000

Cindy, I haven’t ever found a combo of meds that work for me either and I get so frustrated trying all these different things that can do who knows what to me long term all to no avail. I, too have run out of the hope that something will work.

By: Becky

Becky — Thu, 14 Apr 2011 13:15:58 +0000

Thank you for this. For sometime now I have been telling my husband that the ads for the RA meds just make me mad! It makes me not trust the medication they are advertising because they are not telling the truth about what is going on and what will go on. True the meds might just work but are you going to go back to the very active life you once had, doubtful.

By: Kelly Young

Kelly Young — Sun, 03 Apr 2011 13:15:45 +0000

That’s called Actemra in the US. You can look under the Tags List to findsome posts discussing it here- click here. Be sure to check the comments pages. Yes, I have taken it & I know several others who have. What is worrying you about it most?

By: Lesley

Lesley — Sun, 03 Apr 2011 07:40:20 +0000

My docotor wants me to start a trial of Tocilizumab. I don’t like the sound of it and am presently taking methotrexate which I don’t like either. Has anyone got experience with this?

By: Kelly Young

Kelly Young — Sun, 06 Feb 2011 22:48:08 +0000

I’m right there w/ ya Nicole. My 5 yr old has a different life than the others did.

And the story with my jaw – it might be in my onset story – My joints were falling like dominoes. And I read about the RA in the jaw and I cried w/ my daughter (now 21). I said, “You mean I wont’ even eat?” Well, a few months later, there it was. And yes, there are days sometimes that eating is hard. But not every day. Honestly, I have tears now for both of us. I’d really like a way out of this whole thing about now. Do you have a way to treat your pain? We do need a way out, even if it’s only temporary. We can’t live with constant suffering. You won’t lose Nicole – as long as you are here and trying. Hang on. ♥

By: NicolePoyer

NicolePoyer — Sun, 06 Feb 2011 22:10:27 +0000

Hi Kelly
I havn’t been here in a while and i’m glad to see that you are still truckin’ on. I have had a really rough week. I honestly don’t now if my RA is mild or severe. I dosn’t fel mild to me, though I’m aware that so far compared to others I’ve been fortunate. I hate complaining. But sometimes I really just want to talk to someone who gets it. I m in pain all the time. I used to say that if my head had a joint it would hurt too, then I went to the Dr. and he asked if my jaw hurt. I said no and though’OMG my head does have a joint and it doesn’t hurt1 That’s great there’s something that doesn’t hurt!’ On the heels of that thought came another. ‘OMG I have another joint that could hurt! This could get worse.’

This past week, my jaw started to hurt.

Don’t get me wrong, there is plenty I can still do, but those things are becoming more and more difficult. I may have to give up my youth ministry soon. I work full time, I have to. So I hope that I will always be able to. I’m a divorced mother of three. My son is grown. When he was young I had the energy I needed to be an active mother. His sisters have a different experience however. I have to admit that while I usually try to be positive and upbeat, today I am depressed. I have tried fighting this disease, but it is beating me. I do not want to give in to its demands and I hate having my choices taken away fom me. I try to embrace it as it leads me to a deeper spirituality, but today I find it difficult to see beyond my pain.

By: Kelly Young

Kelly Young — Thu, 09 Dec 2010 13:44:24 +0000

Tammie, the video made me cry too. I hope you are doing a little better today.