Warning: this post is about the author.
Decision about a new Rheumatoid Arthritis drug
The blog is going up a little late today. I couldn’t write last night no matter how hard I tried to stay awake. A long day on the road and a talk with my doctor about starting a new Rheumatoid Arthritis drug ended with me collapsing into a long deep sleep. What’s the saying? Like a horse, rode hard and put away wet.
I never want to write about my own Rheumatoid Arthritis. Personally, I only mention it around my kids – or other people with Rheumatoid Arthritis. I know some of you understand why I’m so private about RA since you tell me the same things sometimes.
The doctor and I decided that my next Orencia treatment will be my last. That will take me to the six month mark which will show that we gave the drug every opportunity to disrupt this four year old flare. The doctor also told me that the coughing she’s been monitoring during the last five and a half months is a rare side effect of Orencia. I had begun to consider that was the case.
I feel like I’ve been a good soldier about fighting RA. Whether it’s giving myself methotrexate shots and never complaining about side effects or taking cough suppressant every day for months or fighting insurance battles when necessary or trying whatever new Rheumatoid Arthritis drug that’s prescribed, I feel like I’ve done everything I’m supposed to do. I’m polite and quiet around those who don’t want to hear about RA (most everyone). In most areas of life, conducting oneself properly is worth something. Once again, Rheumatoid Arthritis breaks the rules.
The new Rheumatoid Arthritis drug will be…
My new Rheumatoid Arthritis drug will be Actemra. Too bad they don’t have to pay for this ad space. 😉 I’ve only done a little research on Actemra for a post when it was approved in January. So, the doctor gave me some homework.
Personal note: Believe it or not, the worst thing for me is that Actemra is administered intravenously. Last time I went to the cancer center where I have to get the IV, I promised myself I’d never go back there. The nurses have been physically rough with me every time. I never complained when they’ve carelessly spurted blood on my clothes and handbag or behaved rudely to me or my daughter. I almost complained the last time I was there, because the nurses were harsh and the IV hurt and my arm bled and created a four inch bruise that lasted a couple of weeks. I came home upset with no one to tell (since talking about RA is “unacceptable”) so I posted it on my personal Facebook page. Many of my FB friends have RA so I thought that was a safe environment. One of them was irritated that I sounded negative. I guess that’s true; this isn’t positive news, just honest.
My dilemma is that the doctor insists the new Rheumatoid Arthritis drug Actemra must be administered in that same center. No alternatives. It was a big relief to find this RA doctor last year. Now where did I put that eject button?
- Stages of Rheumatoid Arthritis Heartache
- The Life of a Professional Patient, Blog #3
- Rheumatoid Arthritis Disease May Be the Scarlet RA
- Rheumatoid Arthritis News: Actemra Approved
- First time I wrote about my own RA: The Rheumatoid Arthritis Warrior’s RA