Comments on: Can I Delay Treatment for Rheumatoid Arthritis? part 1 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/ Bringing information & encouragement to fight RA Fri, 30 Jul 2010 14:45:38 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Kelly Young http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-18579 Kelly Young Sat, 12 Jun 2010 19:46:11 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-18579 You are welcome. And thank you for letting me get to hear your story too. My response was different. I wasn't aggressive - I was more lethargic. I had 4 little ones & I became listless. The children needed me & I was all they had. It really aggravated other family members who thought it was just a depression or giving up on my part. So they did not help me in any practical ways. They just kept telling me to suck it up & get more accomplished. I like to say, I couldn't get into 2nd gear. I had always been a 5th gear person... Isn't this interesting, Carol? I never thought my thyroid broke my immune system since my thyroid & RA symptoms both go back to about age 13-15. Also, my grandparents had Autoimmune issues, one of them w/ RA. So, I guess it was in my genes & studies show growing up w/lots of cigarette smoke was probably a trigger. It was the 60's. You are welcome. And thank you for letting me get to hear your story too. My response was different. I wasn’t aggressive – I was more lethargic. I had 4 little ones & I became listless. The children needed me & I was all they had. It really aggravated other family members who thought it was just a depression or giving up on my part. So they did not help me in any practical ways. They just kept telling me to suck it up & get more accomplished. I like to say, I couldn’t get into 2nd gear. I had always been a 5th gear person…
Isn’t this interesting, Carol? I never thought my thyroid broke my immune system since my thyroid & RA symptoms both go back to about age 13-15. Also, my grandparents had Autoimmune issues, one of them w/ RA. So, I guess it was in my genes & studies show growing up w/lots of cigarette smoke was probably a trigger. It was the 60′s.

]]> By: Carol Wood http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-18577 Carol Wood Sat, 12 Jun 2010 19:33:36 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-18577 Hi kelly, My poor husband had to put up with so much, I literally had gone mad through my thyroid, and having a baby and toddler, it was exceptionally hard for him, yet he he was brilliant. My parents were also fantastic, they would give my husband a break from me, because I was so aggressive and paranoid apparently. It was such a relief to find out it was treatable to them, that they said they could see the change as I started to recover, my eyes which apprently had looked almost sharklike and dead, suddenly started to regain their sparkle. I do admit to thinkign that my thyroid was the one that broke my immune system, and it seems now at least once a year they find something else wrong with me, but Im a fighter, and surrounded by wonderful family that help. Thankyou for such a wonderful blog to read. x Hi kelly,

My poor husband had to put up with so much, I literally had gone mad through my thyroid, and having a baby and toddler, it was exceptionally hard for him, yet he he was brilliant. My parents were also fantastic, they would give my husband a break from me, because I was so aggressive and paranoid apparently. It was such a relief to find out it was treatable to them, that they said they could see the change as I started to recover, my eyes which apprently had looked almost sharklike and dead, suddenly started to regain their sparkle. I do admit to thinkign that my thyroid was the one that broke my immune system, and it seems now at least once a year they find something else wrong with me, but Im a fighter, and surrounded by wonderful family that help. Thankyou for such a wonderful blog to read. x

]]> By: Kelly Young http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-18570 Kelly Young Sat, 12 Jun 2010 19:04:25 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-18570 I try now, Shannon. RA was a whole new deal. It became full blown about 8 yrs later. A whole new "mystery" to solve for me. :P I try now, Shannon. RA was a whole new deal. It became full blown about 8 yrs later. A whole new “mystery” to solve for me. Razz

]]> By: Shannon Trevizo http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-18569 Shannon Trevizo Sat, 12 Jun 2010 18:54:49 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-18569 Thanks to you for sharing.. we all seem to have a little ostrich time in out lives.. but as we all find its all still there.. im glad you survived this ordeal. four children depending on you you really need to take care of YOURSELF Thanks to you for sharing.. we all seem to have a little ostrich time in out lives.. but as we all find its all still there.. im glad you survived this ordeal. four children depending on you you really need to take care of YOURSELF

]]> By: Kelly Young http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-18546 Kelly Young Sat, 12 Jun 2010 15:32:27 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-18546 Hi Carol, Thanks for your good message. I'm so glad you were ok! I haven't met anyone who was as sick as I was before w/thyroid. How did family members react? Was everyone surprised that was the cause of your illness? Since I've been had thryoid disease 30 years, I've had to be a little creative w/ treatment. Glad I later found 1 really smart doc who did keep up w/ the newest approaches. So many are treated by the old theories, whether its tsh levels or t3 levels... Maybe this taught me to learn for myself like I now have to w/ RA? Hi Carol, Thanks for your good message. I’m so glad you were ok! I haven’t met anyone who was as sick as I was before w/thyroid. How did family members react? Was everyone surprised that was the cause of your illness? Since I’ve been had thryoid disease 30 years, I’ve had to be a little creative w/ treatment. Glad I later found 1 really smart doc who did keep up w/ the newest approaches. So many are treated by the old theories, whether its tsh levels or t3 levels… Maybe this taught me to learn for myself like I now have to w/ RA?

]]> By: Carol Wood http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-18540 Carol Wood Sat, 12 Jun 2010 14:41:22 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-18540 Hi, I read this and so much of it reminded me of me, even my husband said how similar. My under active thyroid kicked in to the point of being noticed just after mmy daughter was born, I was put on Prozac to calm me down, has they thought it was post natal, it wasnt until after I got aggressive, (something which I had become apparently) that the doctor did a blood test, I was sent to the hospital the following morning to see a specialist, or said he has never seen a case so bad, I was also like you on the verge of a coma, and that I had got Myxodemia, no surprise I argued with him. However as soon as treatment was started I started to feel better, it took two years for them to find the right dose, which at the time was 300mg, unfortuanetly, I have no memory of that time, and missed my son and daughter until my son was nearly 5 and my daughter nearly 3. Im interested to read the rest of your blog, has I also have rheumotod athritis, and find it hard to get info from my doctors who just give pills and say they will help. i wish you all the very best, and a superb blog. x Hi,

I read this and so much of it reminded me of me, even my husband said how similar. My under active thyroid kicked in to the point of being noticed just after mmy daughter was born, I was put on Prozac to calm me down, has they thought it was post natal, it wasnt until after I got aggressive, (something which I had become apparently) that the doctor did a blood test, I was sent to the hospital the following morning to see a specialist, or said he has never seen a case so bad, I was also like you on the verge of a coma, and that I had got Myxodemia, no surprise I argued with him. However as soon as treatment was started I started to feel better, it took two years for them to find the right dose, which at the time was 300mg, unfortuanetly, I have no memory of that time, and missed my son and daughter until my son was nearly 5 and my daughter nearly 3.

Im interested to read the rest of your blog, has I also have rheumotod athritis, and find it hard to get info from my doctors who just give pills and say they will help. i wish you all the very best, and a superb blog. x

]]> By: Kelly http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-283 Kelly Sat, 25 Jul 2009 00:33:00 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-283 Thank you Caysea. Thank you Caysea.

]]> By: Caysea http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-282 Caysea Fri, 24 Jul 2009 23:51:05 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-282 "I know I had looked at the medicine the wrong way. I am not sad that I will need it for the rest of my life. I am glad that I have it so that I CAN HAVE THE REST OF MY LIFE."<br /><br />Thanks, Kelly. This is a good reality check/attitude adjustment for me!! Now if I can only remember this every day... ;-)<br /><br />Caysea "I know I had looked at the medicine the wrong way. I am not sad that I will need it for the rest of my life. I am glad that I have it so that I CAN HAVE THE REST OF MY LIFE."

Thanks, Kelly. This is a good reality check/attitude adjustment for me!! Now if I can only remember this every day… Wink

Caysea

]]> By: Polkaroo http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-281 Polkaroo Fri, 24 Jul 2009 06:29:22 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-281 I too learned the hard way that delaying treatment. I stopped treatment for my RA for 15 years as I was mistakenly told I was in remission--for good. By not staying on treatment, or following up on new research (as this was back when DMARDS weren't made yet) into the disease has cost me permanent lung problems as well as permanent voice loss. I don't recommend paying ostrich to anyone. :-) I too learned the hard way that delaying treatment. I stopped treatment for my RA for 15 years as I was mistakenly told I was in remission–for good. By not staying on treatment, or following up on new research (as this was back when DMARDS weren't made yet) into the disease has cost me permanent lung problems as well as permanent voice loss. I don't recommend paying ostrich to anyone. Smile

]]> By: synovial sensation http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/comment-page-1/#comment-280 synovial sensation Fri, 24 Jul 2009 05:37:39 +0000 http://rawarrior.com/can-i-delay-treatment-for-rheumatoid-arthritis-part-1/#comment-280 OH, me too! After birth of 1st child. Much better on meds. x OH, me too! After birth of 1st child. Much better on meds. x

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