Archive for the ‘Don’t miss this!’ Category
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It’s Just Pain, Right? No, Dr. No, It’s Not
No, it’s not just pain A letter from a fellow warrior reminded me of something I’ve been wanting to blog about since last summer. Today was technically my last day in the clinical trial. They were supposed to call me to check once more for adverse events because it’s day 210. Everything happens on a [...]
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Preclinical Rheumatoid Disease: There Are No Joints in the Lungs
My mom used to read to me John Godfrey Saxe’s 19th century version of a famous Indian legend, The Blind Men and the Elephant. I’m certain it contributed to my zealous love of evidence. Over the last couple of years, interacting with thousands of people with Rheumatoid disease, I came to the conclusion that only [...]
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I’m Not All Better, Just Too Polite to Whine; Yet Victory Is Still Sweet
Please don’t miss the news at the end of the post! I had to put A LOT on one page since it’s been a few days! My endocrinologist was so excited about my attending the ACR in November and winning the WebMD award in December and it’s really fun to share after being a patient [...]
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What’s the Big Deal about Rheumatoid Disease?
Just how big of a deal is this disease? I suppose the fact that I’ve written several hundred pages about it is a clue to my opinion. Yet, most of those articles were written with intentional restraint, avoiding hyperbole, at times even understating my own symptoms in an attempt to be more judicious. Many view [...]
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The Immune Fingerprint and Rheumatoid Disease
I’ve made up another term because I haven’t heard of anything suitable: “immune fingerprint.” It occurred to me that while we talk about how the disease Rheumatoid Arthritis (or Rheumatoid Autoimmune Disease) affects us, one key to understanding disease activity may be considering how we affect the disease. If a disease disrupts the immune system, causing [...]
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You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]
Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been [...]
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Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy
My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to welcome my questions or opinions. I was in the familiar context of my pediatrician’s office – 6 years [...]
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We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid Autoimmune Disease (RAD)
Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the disease will continue. When asked, I said that we could not wait around for that to happen; let’s work for [...]
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