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Archive for the ‘Don’t miss this!’ Category

  • HAPPY RHEUMATOID AWARENESS DAY 2014

    Rheumatoid Awareness Day (RAD) was yesterday February 2, but since the day fell on Sunday this year, the events continue this week. Today at 11 a.m. EST, I’ll co-host a Twitter chat in honor of Rheumatoid Awareness Day with EveryDay Health. Click here to read more or see how to participate. The hashtag is #HealthTalk. […]

  • 3 Rules of Fair Play for People Living with Rheumatoid Disease

    Rheumatoid Awareness Day is only ONE day away. Join us this morning February 1 at 10 a.m. ET for a special Twitter #rheum chat. RPF is inviting clinicians, patients, and caregivers to Tweet at least once to help spread awareness. Join in by just adding “#rheum” to a Tweet – or click here to read […]

  • We Must Celebrate! Your Voice Was Heard, Despite My Limitations

    Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear […]

  • Sleepless in San Diego

    Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session […]

  • Invisible Illness and the Public: She Hit Me with Her Cane

    Tomorrow I’m traveling to San Diego for the ACR annual meeting. I’ll be taking a proverbial chill pill (and some real meds) and hoping all goes smoothly. For weeks we’ve done all we can to be ready! This story occurred a couple of months ago… Did anyone ever give you a dirty look for using […]

  • An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

    RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. […]

  • Musculoskeletal Ultrasound in Rheumatoid Arthritis: Training Is Essential

    In the several articles on RAW about using musculoskeletal ultrasound in Rheumatoid Arthritis I’ve stipulated “with training” for good reason. Let’s look closer at the need for training in ultrasound use for rheumatology patients. Please see the recent post Rheumatoid Arthritis Ultrasound News describing the significant role musculoskeletal ultrasound can play for people with Rheumatoid […]

  • Ashton Kutcher on Opportunity, Being Sexy, & Steve Jobs’ Advice on Life

    NOTE: If you’ve been in a clinical trial in the past year, you can do a short phone interview and earn a $100 donation for the Rheumatoid Patient Foundation. More information below. Surprise speech on life at Teen Choice awards This week at the Teen Choice Awards, popular actor and tech investor Ashton Kutcher (Christopher […]

  • Inventory of Rheumatoid Disease: One Patient’s Experience

    Ok, this brief awkward moment of my life is called “Inventory” Many with Rheumatoid Disease are more severely affected than I am; others are milder. I am one woman. This is my experience. You may remember this article on happiness inspired this list, but I put it aside for a few busy months. Now, I’ve […]

  • Happy Birthday RAW! The Day I Could No Longer Stay Silent

    This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day. Today begins year five of RAW Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a […]

  • Words of Help From a Friend We’ve Never Met – Until We Do

    Isn’t life full of special coincidences? Some even call them “God-incidences.” Circumstances show know that life is not all random, but the right words are often there at the right time – no matter when they were written. A couple of special coincidences occurred in February when I was in Washington. As my friend Leslie […]