Archive for the ‘Don’t miss this!’ Category
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The Immune Fingerprint and Rheumatoid Disease
I’ve made up another term because I haven’t heard of anything suitable: “immune fingerprint.” It occurred to me that while we talk about how the disease Rheumatoid Arthritis (or Rheumatoid Autoimmune Disease) affects us, one key to understanding disease activity may be considering how we affect the disease. If a disease disrupts the immune system, causing [...]
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You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]
Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been [...]
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Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy
My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to welcome my questions or opinions. I was in the familiar context of my pediatrician’s office – 6 years [...]
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We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid Autoimmune Disease (RAD)
Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the disease will continue. When asked, I said that we could not wait around for that to happen; let’s work for [...]
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Accomplishing Thankfulness via Thorough Commitment
The pieces to the puzzle of me are scattered across this blog. Elephants. Humor. Space exploration. Don Quixote. Determination. Eagles. Pollyanna. Pollyanna gets a bad rap It’s stunning to me how some things are construed as opposite of what they are. Somehow Pollyanna has become synonymous with sounding dismissive and detached. We all know people [...]
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Kelly Young Wins WebMD Health Hero Award
WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health [...]
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Update from Chicago!
It’s our last day in Chicago! Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to write more. The last couple of months have been spent in almost constant preparation for [...]
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Mayo Clinic Video Interview: Patients at ACR Scientific Meeting
Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting [...]
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