Archive for the ‘Don’t miss this!’ Category
-
Video: Rheumatoid Patient Foundation Gives RA Patients a Voice
This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming [...]
-
When Rheumatology Is Sexy
If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The sexiness and cool of rheumatology.” Mostly, rheumatologists examine things that healthy people look away from: disability, deformity, and pain. The father of [...]
-
Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis
What do you say to someone diagnosed with Rheumatoid Arthritis? If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to Expect the best from treatments; Read all of their medical records; Keep up on research. I’d also wish for them that they find doctors who listen well! What else is [...]
-
Behind the Scenes Video: Patient at a Social Media Conference
Telling it like it is. On camera. It’s uncomfortable. It’s very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3 aspects of RA that are difficult to discuss It’s hard to talk about pain, so most of us [...]
-
Rheumatoid Patient Foundation Needs Your Help
I was glad when it started raining today – it’s proper to rain when you cry. The Digital Patients’ Bill of Rights Things are happening fast. The E-Patient Connections conference was fantastic. The day before, I participated in the Digital Patients’ Bill of Rights meeting. I haven’t written about it yet, but you can [...]
-
The Path of Mercy in Medicine: A Tale of Two Doctors
Physicians enjoy a unique position in our society with unique opportunities to make a difference in others’ lives. With that powerful role, they can choose between a path of mercy and a path of nonchalance. They can be a tool in the hands of God or they can just be a tool. There was the [...]
-
News Flare! 1st Rituxan Infusion! WebMD Award! and More!
First Rituxan infusion Monday, I spent 8 hours with an IV for my first Rituxan infusion. It took a longer time for various reasons, but it seems I did fine. So far my only noticeable side effect has been a fierce headache. Still. It’s difficult to describe how grateful I am for those who sat [...]
-
Response to An Identity Crisis for RA by Dr. R. Franklin Adams
Recently, I read an article in The Rheumatologist (preceding a new PR campaign by the American College of Rheumatology), “An Identity Crisis for RA: A few suggestions to bring rheumatic disease the recognition and respect it deserves.” I strongly recommend that you read the article since I cannot quote it entirely here. It was written [...]






