Archive for the ‘Reality Check’ Category
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A Paradigm Shift in Rheumatoid Arthritis Disease Activity? Part 1
What is Rheumatoid Arthritis disease activity? People living with RA know it can affect them in unexpected ways that don’t involve joints. Just reading recent comments here, you can see people talking about these effects of RA: Drastic weight loss Frequent low-grade fevers Ruined teeth from dry mouth or autoimmune activity Heart or lung damage [...]
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Living with (RA) Rheum Disease Is Already Multitasking
Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing [...]
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Rheumatoid Arthritis Rheumors: 2 Mysteries Solved
I thought it was brilliant the other day when a commenter called RA “the ghost disease.” It’s true that many RA myths persist and that researchers don’t yet know exactly how Rheumatoid Arthritis works. Which joints can be affected? Is there a nutritional cure that we are overlooking? Confusion about RA is perpetuated in [...]
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Rheumatoid Arthritis Pain Relief: What Do You Know?
The topic of pain relief came up last week in the Twitter #rheum chat. A couple of people Tweeted that their rheumatologists don’t give them pain relief meds. I hear that from people sometimes, and I wondered… Whose responsibility is it to provide Rheumatoid Arthritis pain relief? The huge pain study by Strand showed 72% [...]
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Inflammation and Thomas the Tank Engine
Today, my Roo is six years old. Saturday, I went shopping with Mary Khris to buy supplies to create a little Thomas the Tank Engine party. Since I can’t draw characters with icing any more, we look for ways things can be used creatively. I found some lightweight rubber train engines (actually bath toys!) that we [...]
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A Rheum Full of Contradictions
1) There’s “remission” when there’s no remission. A newly published study says more pain is seen with an older conception of Rheumatoid Arthritis remission than with newer more stringent remission criteria. “Disease remission has become a feasible goal for most Rheumatoid Arthritis (RA) patients; however, patient-reported symptoms, such as pain, may persist despite remission.” Remission [...]
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Rheumatoid Arthritis Swelling, Take Two
In honor of the blog’s 2nd birthday, let’s consider some issues that have been significant over the last two years. Today we’ll consider Rheumatoid Arthritis swelling. This may be blunt. More like a frying pan than a sword. Talking turkey on Rheumatoid Arthritis swelling A couple of years ago my kind-but-clueless-what-to-do-next (her word) rheumatologist told [...]
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The Appointment with Doctor Perv
I wish this RA really were a lie. What kind of mother would fake not being able to put on her child’s socks? What kind of mother would make her children cook dinner, wash the dishes and clean the house so she could live out her dream of feigning illness? Certainly not the same mother [...]
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