Archive for the ‘If you don’t have RA, please read’ Category
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20 Replies to Things Not to Say to a Rheumatoid Patient
Every day, I talk with several Rheumatoid patients, and hear from many more. Today’s post is in response to a request from one dear reader about one of the most popular posts on the blog, 20 Things Not to Say to a Rheumatoid Arthritis Patient with 2,640 likes as of tonight. “I love this post. [...]
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The Confusion of a Smile
If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right? I [...]
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Hey Superman! Does Accepting Limitations Make Us Weaker?
Katie Beth and I got in Monday night from a weekend with other warriors in Houston where I was able to speak about being an empowered patient. That immediately followed an e-Patient Boot Camp talk in Orlando with e-Patient Dave. Preparations and traveling drain so much time and energy that I haven’t been able to [...]
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What’s the Big Deal about Rheumatoid Disease?
Just how big of a deal is this disease? I suppose the fact that I’ve written several hundred pages about it is a clue to my opinion. Yet, most of those articles were written with intentional restraint, avoiding hyperbole, at times even understating my own symptoms in an attempt to be more judicious. Many view [...]
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We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid Autoimmune Disease (RAD)
Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the disease will continue. When asked, I said that we could not wait around for that to happen; let’s work for [...]
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Pass the Pickles – and the Croutons
Did 2011 seem about four months long? If it were an all-you-can-eat salad bar, I’d want a refund. It went by so fast I think I only got to the pickles. This month I’ve been more sleepy and fatigued than usual. It might be recovery from traveling the last few months. Or it could be [...]
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4 Funny Things about Pain Scale Charts
Pain is one of the most important symptoms of Rheumatoid Arthritis and many other conditions. Pain is the most obviously significant signal that something is wrong. However, pain is also the most difficult symptom to measure. Need for a pain scale Since pain is such an important indicator that something is “wrong,” we ought to [...]
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Mayo Clinic Video Interview: Patients at ACR Scientific Meeting
Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting [...]





