Archive for the ‘If you don’t have RA, please read’ Category
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Evidenced-based Medicine or Easy-bake Oven: Tension Between Evidence and Reality
This post was inspired by the article Patient Advocates: Flies in the Ointment of Evidenced Based Care by Jessie Gruman at Health Affairs Blog. Patient advocacy and evidenced-based medicine are both intimately entwined with several matters in rheumatological care, but first a word about flies. Patient advocates probably are flies in the ointment, and there [...]
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Good News for Us and a Reader’s Take on the Newspaper
We’re so fortunate to have readers who make such amazing contributions. That’s what makes us more of a community than just a website. Isn’t it great the amount of information and encouragement readers provide each other – and me – even by commenting?! This week we reached an extraordinary milestone on our Facebook page. Our [...]
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RA Reality Versus “The Lie”
When everything looks normal but it’s all wrong Countless times I’ve said that I would gladly be wrong about RA. I’d gladly be delusional instead of this sick. I often say “If only I actually were crazy. Then, I could take medication and at least believe I felt better.” Of course it’s a facetious remark, [...]
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The Now-I-Understand Abbott Suit for Rheumatoid Arthritis
What’s the one thing I’ve said more than anything else over the last five years? “No one understands.” I sigh it quietly. I mutter it under my breath. I exclaim it loudly in frustration. I struggle to say it through tears. But I don’t think I’ve ever blogged it. Who doesn’t understand? The professional people [...]
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3 Reasons Why the Public Image of RA Is So Rosy
As a commenter pointed out on yesterday’s blog, some studies claim that 50% of RA patients go into remission if they are treated correctly. But we don’t see 50% remission when dealing with thousands of patients over the last couple of years. Lots of things we see don’t harmonize with facts we’re told about RA. [...]
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Encouragement: with a Little Help from My Friends
Don’t you want me to help you with that? No. I want to be able to do it myself. I can do that for you. I know you can, I wish I could. Is there anything I can do? No, I want to feel like I can do something. Do you have any problem asking [...]
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The Isolation of RA Pain: Short Poem Video
Most people with RA talk about how difficult it is to explain RA pain to others. It’s frustrating to be repeatedly told that it isn’t or shouldn’t be so bad. Just today, a woman I met couldn’t wait to tell me about her friend with RA who’s able to do so much more than I [...]
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Patient Stories May Provide Real Help via Social Media
70 Patient stories on RA Warrior Today we add eight new stories to the RA onset story pages! Patients tell their own stories of how their Rheumatoid Arthritis developed and how they found a diagnosis. There are currently 70 Rheumatoid Arthritis patient stories on this site. There are 3 reasons I created these pages: I [...]
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