Archive for the ‘If you don’t have RA, please read’ Category
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Encouragement: with a Little Help from My Friends
Don’t you want me to help you with that? No. I want to be able to do it myself. I can do that for you. I know you can, I wish I could. Is there anything I can do? No, I want to feel like I can do something. Do you have any problem asking [...]
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The Isolation of RA Pain: Short Poem Video
Most people with RA talk about how difficult it is to explain RA pain to others. It’s frustrating to be repeatedly told that it isn’t or shouldn’t be so bad. Just today, a woman I met couldn’t wait to tell me about her friend with RA who’s able to do so much more than I [...]
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Patient Stories May Provide Real Help via Social Media
70 Patient stories on RA Warrior Today we add eight new stories to the RA onset story pages! Patients tell their own stories of how their Rheumatoid Arthritis developed and how they found a diagnosis. There are currently 70 Rheumatoid Arthritis patient stories on this site. There are 3 reasons I created these pages: I [...]
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What Can We Do About the Rheumatoid Arthritis Awareness Problem?
Why do I believe we need Rheumatoid Arthritis Awareness? When I got full blown Rheumatoid Arthritis, I had no idea I’d gotten stuck with an unpopular disease. It was a surprise when one person after another brushed aside my explanation with things like, “You are too young to have that” or “Oh yeah, I have [...]
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Tony Snow: Illness Doesn’t Change the Person You Are
Over the last few years, some people have faded out of my life after RA made it impossible to do most things I used to do. Some people didn’t want to hear about illness, or pain or medicine. They didn’t understand what I meant when I said “can’t.” I never ask for sympathy for being [...]
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The “Can’t” Question with Rheumatoid Arthritis
If someone has a broken leg or a sprained ankle, there is no question about whether he can walk the dog or run in a race. Rheumatoid Arthritis pain and weakness is invisible to the naked eye, but it’s similar to an injury in some ways. Sometimes, the injured person can’t do the same things [...]
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Problems with Preventive Care and Rheumatoid Arthritis Mortality
If you read yesterday’s blog, “The Mortality Dragon: Do Rheumatoid Arthritis Patients Have to Die Early?” then you know I was glad to find a researcher discussing preventive care for Rheumatoid Arthritis patients, especially in the context of cardiovascular disease. If you read the article “Why do people with rheumatoid arthritis still die prematurely?” you [...]
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Patient Centered Medical Home: Will Redesign in Healthcare Hurt Rheumatology Patients?
The posts on this blog are written with patients in mind. This one is an exception. I’d like to address this post to those who work in medicine or healthcare design. The call to make health care more patient centered Back in January, I brought my readers a treat, a video of a talk by [...]
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