Archive for the ‘RA Education’ Category
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RA News, Vol. 8: Predicting TNF Response, Prednisone Increases Remission, New Mayo Clinic Heart Disease Risk Study
Brief rundown of 3 recent RA news articles that could make big impact 1. Simple urine test may predict who responds to TNF biologics! British researcher Dr. Sabrina Kapoor noted that the metabolites which are a result of the effects of tumor necrosis factor (TNF) on metabolism should be present in the urine or blood [...]
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Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib
After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief. Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the [...]
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Leaving It All on the Field: Not the Safest Choice But Maybe Best
Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My [...]
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Attending an FDA Hearing for Pfizer’s JAK: Tofacitinib CP-690550
Three years ago, one of the first friends I made through my blog was Angie. She got into a Pfizer clinical trial for tofacitinib (then called tasocitinib). She sent me some info about the trial, but my rheum doc wasn’t interested and I didn’t pursue it. The current excitement about Pfizer’s tofacitinib Tofacitinib is an [...]
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Significant Numbers of RA Patients Don’t Receive Recommended Care
Understanding the reality of the disease is only half the battle We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, [...]
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Secondary Sjogren’s Syndrome and Rheumatoid Arthritis: a Primary Problem
Sjogren’s syndrome: have you seen the eye doc yet? When I wrote my first RA Warrior post on Sjogren’s syndrome in 2009, I wasn’t sure whether I’d ever be diagnosed with it. But I thought it was important to cover on the blog. I had a fun idea for illustrating the pronunciation of the name [...]
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It All Comes Out in the Wash: Comparing Different Treatments & Approaches
Four weeks. Not a record for me, but close… When this is published in the morning, I’ll be spending the morning washing and blowing out my hair for the 1st time in about a month. The ends started to take dreadlock form the last few days, somewhat an improvement. But the front looks really bad [...]
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What about a Clinical Protocol for Rheumatoid Arthritis Disease?
This was written in October 2011 as the fourth in the Frying Pan Post series. As most of you know, I’ve been crazy-busy since then, leaving many things on hold. These posts examine crucial ideas that have surfaced over the last couple of years on the blog. The Frying Pan Posts challenge the status quo [...]
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