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Archive for the ‘RA Education’ Category

  • Doctor: Posterior Tibial Tendonitis Is “Extremely Common with Rheumatoid”

    We interrupt our regularly scheduled program for a brief discussion of posterior tibial tendonitis in “Rheumatoid Arthritis” (RA) / Rheumatoid Disease (RD). There is a long list of topics I want to cover, but sometimes the RD itself pushes other things farther down the page. This week, I continued to have problems putting weight on […]

  • Medication Fears and Rheumatoid Arthritis

    Fear of medicine Have you ever been afraid of taking medicine? I have. Who knew that there’s actually a name for a fear of medication: pharmacophobia. Appearing irrational to Dr. Laptop As if I were once again the 19 year-old girl who quit taking thyroid medication, the day I learned I was diagnosed with Rheumatoid […]

  • Can Bones Hurt? Bone Pain and Rheumatoid Disease

    (Have you discontinued Cimzia? See note below blog.)  The main misconception about bones then, is that they are made up of dead tissue. This is not true, they have cells, nerves, blood vessels and pain receptors.1 Ever hear that bones can’t hurt? Did you ever have the flu or a fever and your bones just […]

  • Should We Just Call It Pink Puffy Paw?

    (Have you discontinued Cimzia? See note below blog.) One of the biggest problems with getting care for rheumatoid disease is that symptoms do not look exactly the same every day. Of course along with that is the fact that many symptoms aren’t clearly visible anyway, hence the term “invisible illness.” Anyway, it seems like it […]

  • The Cricoarytenoid Joint and Rheumatoid Disease

    Speechless… the cricoarytenoid joint is commonly affected in Rheumatoid Disease Recently a small study from Brazil raised the topic of cricoarytenoid arthritis (CA), a little-recognized aspect of Rheumatoid Disease. In 2009, RAW first discussed CA with patients who expressed amazement that their vocal cord / larynx problems were related to their Rheumatoid Disease. There are […]

  • Genetics & Rheumatoid Disease: More Complicated Than Cancer?

    No one wants complicated answers, of course. But some answers are complicated, with multiple layers or causes. Like Rheumatoid Disease and childhood hearing loss. Instead of differing experiences of patients being  suspect, they should be valuable clues to answers we all seek. Answers and more questions The past few months have been a slow process […]

  • Vicks Vaporub Cure for a Disease That’s In Your Head Anyway

    I got something free with my Chinese food the other night when I went to pick up my egg rolls: advice. It was the end of a long, hard, day. I’d pushed myself hard to be moving at all with harsh stiffness and sharp pain in over a dozen joints. We’d been out that day […]

  • Rheumatoid Symptoms Persist Despite Treatment: a Study in Juveniles (JRA / JIA)

    In spite of treatment advances including biologics, children affected by Rheumatoid Disease still experience pain, stiffness, and fatigue that impacts their ability to function. The disease may not be as “controlled” as many doctors presume. This may not be news to you as a patient or caregiver, but as these researchers point out, it needs […]

  • Could Divorce Be One More Pain from Rheumatoid Disease?

    I’ve received several emails and messages from people living with Rheumatoid Disease (PRD) who have been divorced by a spouse, sometimes in part due to ways Rheumatoid Arthritis / Disease affects them. It’s sad to hear from a woman who can’t figure out how she’ll provide for her kids, or a mother whose kids were […]

  • Does Rheumatoid Pain Ever Wake You Up at Night?

    Rest & Rheumatoid Arthritis / Disease have an illogical relationship Rest is one of the most crucial weapons in fighting Rheumatoid Disease (RD). Adequate rest is an important factor for most people with Rheumatoid Disease (PRD) as they push themselves to continue doing as much as possible. We’ve talked about significant sleep issues with Rheumatoid […]

  • What Would Rheumatoid Awareness Mean to You?

    What difference do you think it would make if it Rheumatoid Disease were recognized for what it is by everyone – the general public, media and marketers, pharmaceutical companies, U.S. National Institutes of Health, the Centers for Disease Control and Prevention, the American College of Rheumatology, all healthcare professionals, your neighbors and your family…?   […]

  • Juggling Life and a Chronic Disease Like Rheumatoid

    Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much […]