Archive for the ‘RA Education’ Category

  • The Cricoarytenoid Joint and Rheumatoid Disease

    Speechless… the cricoarytenoid joint is commonly affected in Rheumatoid Disease Recently a small study from Brazil raised the topic of cricoarytenoid arthritis (CA), a little-recognized aspect of Rheumatoid Disease. In 2009, RAW first discussed CA with patients who expressed amazement that their vocal cord / larynx problems were related to their Rheumatoid Disease. There are […]

  • Genetics & Rheumatoid Disease: More Complicated Than Cancer?

    No one wants complicated answers, of course. But some answers are complicated, with multiple layers or causes. Like Rheumatoid Disease and childhood hearing loss. Instead of differing experiences of patients being  suspect, they should be valuable clues to answers we all seek. Answers and more questions The past few months have been a slow process […]

  • Vicks Vaporub Cure for a Disease That’s In Your Head Anyway

    I got something free with my Chinese food the other night when I went to pick up my egg rolls: advice. It was the end of a long, hard, day. I’d pushed myself hard to be moving at all with harsh stiffness and sharp pain in over a dozen joints. We’d been out that day […]

  • Rheumatoid Symptoms Persist Despite Treatment: a Study in Juveniles (JRA / JIA)

    In spite of treatment advances including biologics, children affected by Rheumatoid Disease still experience pain, stiffness, and fatigue that impacts their ability to function. The disease may not be as “controlled” as many doctors presume. This may not be news to you as a patient or caregiver, but as these researchers point out, it needs […]

  • Could Divorce Be One More Pain from Rheumatoid Disease?

    I’ve received several emails and messages from people living with Rheumatoid Disease (PRD) who have been divorced by a spouse, sometimes in part due to ways Rheumatoid Arthritis / Disease affects them. It’s sad to hear from a woman who can’t figure out how she’ll provide for her kids, or a mother whose kids were […]

  • Does Rheumatoid Pain Ever Wake You Up at Night?

    Rest & Rheumatoid Arthritis / Disease have an illogical relationship Rest is one of the most crucial weapons in fighting Rheumatoid Disease (RD). Adequate rest is an important factor for most people with Rheumatoid Disease (PRD) as they push themselves to continue doing as much as possible. We’ve talked about significant sleep issues with Rheumatoid […]

  • What Would Rheumatoid Awareness Mean to You?

    What difference do you think it would make if it Rheumatoid Disease were recognized for what it is by everyone – the general public, media and marketers, pharmaceutical companies, U.S. National Institutes of Health, the Centers for Disease Control and Prevention, the American College of Rheumatology, all healthcare professionals, your neighbors and your family…?   […]

  • Juggling Life and a Chronic Disease Like Rheumatoid

    Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much […]

  • 20 Essential Medication Safety Tips

    Chronic disease patients are at greater risk for adverse drug events For those living with a chronic disease, safe medication storage and use is more than following directions on an occasional antibiotic or treatment for an acute illness. Both the types of medications and the number of different medications present safety challenges and put people […]

  • Five Keys to a Thankful Heart

    There are always obstacles to thankfulness, and living with a painful chronic disease is certainly an obvious one. This week confronted once again things I’m no longer able to do for a holiday, I reflected on the subject of thankfulness and things much more important than color-coordinated napkins and a lovely front door wreath. Tomorrow […]

  • Remaining Pain with Rheumatoid Arthritis Treatment

    Since 2009, RAW has discussed how people manage the common occurrence of “leftover” symptoms such pain, fatigue, and stiffness while being treated for Rheumatoid Arthritis. Leftover or remaining pain is the subject of an interesting abstract reported at the recent American College of Rheumatology scientific meeting.[1] New look at old problem: “Remaining Pain Is Common […]

  • Medscape Symposium Reveals Attitudes #Rheum Patients Encounter

    Recently, we looked at a new report showing machines used to perform musculoskeletal ultrasound (MSUS) vary considerably in ability to detect inflammation, and warning about the use of MSUS in treatment decisions when the machines are not yet accuracy rated. We know that Patient reported outcome measures (PROMs) predict prognosis in Rheumatoid Disease (RD), but […]