Comments on: Celebrities and Rheumatoid Arthritis, Part 3: Being our own celebrities http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/ Bringing information & encouragement to fight RA Wed, 23 May 2012 12:58:11 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Kelly Young http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-37912 Kelly Young Sun, 31 Oct 2010 00:24:51 +0000 http://rawarrior.com/?p=1018#comment-37912 Thanks, Maria. I'll try to check that out. Thanks, Maria. I’ll try to check that out.

]]> By: Maria Rice http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-37902 Maria Rice Sat, 30 Oct 2010 23:33:38 +0000 http://rawarrior.com/?p=1018#comment-37902 The only reason I would suggest having a celeb is they have the access to things we common folk do not. How about Aida Turturro from "The Sopranos"? She has RA. I have read some of her stuff and it doesn't sound like she is wacky. The only reason I would suggest having a celeb is they have the access to things we common folk do not. How about Aida Turturro from “The Sopranos”? She has RA. I have read some of her stuff and it doesn’t sound like she is wacky.

]]> By: Kelly Young http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-26448 Kelly Young Fri, 06 Aug 2010 01:38:48 +0000 http://rawarrior.com/?p=1018#comment-26448 Nice to meet you Jennifer. :hugright: I've met a few other people with MCTD, but I had no idea that dx was so rare. Yes, the internet has been a great blessing to those of us who became sick & needed information & a connection. Together, our "raised voices" may be something very difficult to ignore. :yes: Nice to meet you Jennifer. :hugright: I’ve met a few other people with MCTD, but I had no idea that dx was so rare. Yes, the internet has been a great blessing to those of us who became sick & needed information & a connection. Together, our “raised voices” may be something very difficult to ignore. :yes:

]]> By: Jennifer http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-26436 Jennifer Fri, 06 Aug 2010 00:56:40 +0000 http://rawarrior.com/?p=1018#comment-26436 Thank you. First & Foremost. You help make me feel like I'mnot alone. I've seen many sites that say they are "support" for those with RA or other Rheumatic Diseases but many boards are empty or the people not that supportive. I found you on FB first, and the first day I almost cried tears of joy. Someone understood. Truely, understood. I have had MCTD since I was 9 and was 1 of 12 kids in canada and one of 50 in north america with it. I've tried ever since not only to fight it, but to raise awareness. With the start of the world wide web, I've been able to raise my voice louder, and am thankful to have found more people who truely understand. I have my own site as well where I'm trying to help raise awareness and I try to often on my FB as well. I too would like to see more research done, less myths surrounding it, and more understanding. I would love nothing more than to one day have a celebrity spokesperson or see a gala event hosted to raise funds like aids, cancer or diabetes does. If you ever need aid of any kind, please dont hesitate to ask. And thank you so much again, for starting this site as well as your FB site. Warm Gentle Hugs! Thank you. First & Foremost. You help make me feel like I’mnot alone. I’ve seen many sites that say they are “support” for those with RA or other Rheumatic Diseases but many boards are empty or the people not that supportive. I found you on FB first, and the first day I almost cried tears of joy. Someone understood. Truely, understood. I have had MCTD since I was 9 and was 1 of 12 kids in canada and one of 50 in north america with it. I’ve tried ever since not only to fight it, but to raise awareness. With the start of the world wide web, I’ve been able to raise my voice louder, and am thankful to have found more people who truely understand. I have my own site as well where I’m trying to help raise awareness and I try to often on my FB as well. I too would like to see more research done, less myths surrounding it, and more understanding. I would love nothing more than to one day have a celebrity spokesperson or see a gala event hosted to raise funds like aids, cancer or diabetes does. If you ever need aid of any kind, please dont hesitate to ask. And thank you so much again, for starting this site as well as your FB site. Warm Gentle Hugs!

]]> By: Kelly Young http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-19653 Kelly Young Mon, 21 Jun 2010 19:29:37 +0000 http://rawarrior.com/?p=1018#comment-19653 That is a bright idea. I'd be a little concerned that we'd come off as weirdos since that is already the template that some have, but it could work. That is a bright idea. I’d be a little concerned that we’d come off as weirdos since that is already the template that some have, but it could work.

]]> By: Lisa http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-19651 Lisa Mon, 21 Jun 2010 18:41:29 +0000 http://rawarrior.com/?p=1018#comment-19651 What we need is a reality show. If they can do one on little people and hoarders they can do one on us....maybe follow the lives of 3 RAers, a full blown severe case, a juvenile case, along with an early diagnoses that's not responding to treatment. There should be enough pain & misery to bring in the ratings. Who do we talk to? Any ideas? What we need is a reality show. If they can do one on little people and hoarders they can do one on us….maybe follow the lives of 3 RAers, a full blown severe case, a juvenile case, along with an early diagnoses that’s not responding to treatment.

There should be enough pain & misery to bring in the ratings. Who do we talk to? Any ideas?

]]> By: Kelly Young http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-17441 Kelly Young Sat, 05 Jun 2010 19:47:21 +0000 http://rawarrior.com/?p=1018#comment-17441 Good point, Frances. Good point, Frances.

]]> By: frances ponder http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-17427 frances ponder Sat, 05 Jun 2010 18:54:03 +0000 http://rawarrior.com/?p=1018#comment-17427 I think because it 1s called "arthritis" it`s not perceived to be serious.Needs a more descriptive name. I think because it 1s called “arthritis” it`s not perceived to be serious.Needs a more descriptive name.

]]> By: Kelly Young http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-2372 Kelly Young Wed, 09 Dec 2009 13:16:42 +0000 http://rawarrior.com/?p=1018#comment-2372 Marcella, You are so right. I hear this all the time: "chopped liver" is a great way to put it. We are going to change that, I hope. :chic: Marcella,
You are so right. I hear this all the time: “chopped liver” is a great way to put it. We are going to change that, I hope. :chic:

]]> By: Marcella http://rawarrior.com/celebrities-and-rheumatoid-arthritis-part-3-being-our-own-celebrities/comment-page-1/?show=comments-2370 Marcella Wed, 09 Dec 2009 12:55:45 +0000 http://rawarrior.com/?p=1018#comment-2370 Thanks for this article. Just the other day i was wondering how come you dont see any celebrities being an advocate for RA. You see all of these celebrities on tv talking about breast CA or ulcerative colitis and I feel like dang does everyone feel that this disease is chop liver. Thanks for this article. Just the other day i was wondering how come you dont see any celebrities being an advocate for RA. You see all of these celebrities on tv talking about breast CA or ulcerative colitis and I feel like dang does everyone feel that this disease is chop liver.

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