Cricoarytenoid Arthritis in Rheumatoid Arthritis, Part 2
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I have a friend who I think has this. Her sister has RA, but my friend was told that she has OA. I’ve looked at her go from cane to wheelchair, the braces on her ankles/legs, the bilateral shoulder bursitis, and thought, “You need to get a second opinion if your PCP thinks that all your symmetric issues on top of a family history don’t merit looking closer at RA as a possibility.” She also has a problem with her voice. Despite all this wonderful woman’s stiffness and mobility problems, what has been hardest for her is her loss of voice. She was a singer – a mighty good one – who can no longer sing. In all the years I have known her (?ten?) she has never been able to speak much above a hoarse whisper.
I’m looking forward to learning more about this topic. Thank you, again.
Would you be willing to write about RA complications in tendons/ligaments/muscles, such as: tendonitis (eg dupuytren’s contracture and achilles tendonitis), tenosynovitis (eg trigger finger or stenosing tenosynovitis), plantar fasciitis? These contribute to the dislocation of joints because they become weakened and imbalance the joint stability. RA contributes a general tendon contracture which contribute to the deformities: swan-neck, button-hole, claw-toe, ulnar and volgus drift, fallen arches. These things sometimes lead to pinching/pressuring of nerves, such as carpal tunnel syndrome. Another RA complication is bursitis, that can occur any and everywhere, it seems. For me, it feels as though these soft tissue inflammations are worse than the joint problems themselves. I’m willing to send you online info, if you want. Thanks for doing such lovely, honest, and thorough work, dear lady!!
I would also love to learn more about tendon/ligament issues with RA. My new rheumy (I just moved) has thrown out my previous RA diagnosis(two years) because he feels that issues such as tendonitis(which I suffer from head to toe) don’t fit the RA profile. Unfortunately, he left me with the “you are a mystery” speech and no proper diagnosis and took me off all my meds. I’m trying to educate myself. The article about the hoarseness was most informative and I appreciate you taking the time to blog about it.
Laura,
I will do my best.
That must have been hard. Can you keep a log of how you do with and without certain meds? I’d make a file of all of your questions / research also…
It’s none of my business, but I would get a second, third, fourth opinion… Whatever it takes until you have an answer. I’m sorry it’s so hard.
Kelly; I’m so grateful to you for answering my unasked question of why I keep losing my voice, get hoarse, can’t breathe etc.
! Living alone it can be pretty scary when you take a sip of water and begin to choke uncontrollably and then you are unable to speak for hours,sometimes days afterward! My old Rheumy dismissed it as he did most things and for some reason I never think to bring it to my GP’s attention, I will now, I will most definitely bring it up with my new Rheumy when I see him. Thanks again you are a blessing to us all! GOD BLESS! 
Thanks Alice. That is encouraging. Sorry if we share this BAD RA symptom, though.