Comments on: Does Rheumatoid Arthritis Pain Really Hurt That Much? http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/ Bringing information & encouragement to fight RA Wed, 23 May 2012 12:58:11 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Carolyn http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-205038 Carolyn Fri, 20 Apr 2012 13:44:32 +0000 http://rawarrior.com/?p=3420#comment-205038 My rheum actually commented that I had "unusual tolerance for pain". Just sayin'. How can anyone look at all the swelling that comes with RA and say there's not pain? This seems to be an extremely subjective area and everyone's tolerances seem to be different, but I find comments like "Does RA Pain really hurt that much" to be extremely ignorant and ridiculously unsympathetic to the millions who have this disease. My rheum actually commented that I had “unusual tolerance for pain”. Just sayin’. How can anyone look at all the swelling that comes with RA and say there’s not pain? This seems to be an extremely subjective area and everyone’s tolerances seem to be different, but I find comments like “Does RA Pain really hurt that much” to be extremely ignorant and ridiculously unsympathetic to the millions who have this disease.

]]> By: Goat http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-205017 Goat Fri, 20 Apr 2012 12:41:16 +0000 http://rawarrior.com/?p=3420#comment-205017 Well there you have it!, I thought I was just not tough enough to hack it. Now I see that I just "feel" pain more easily. So what are we supposed to do? I ruined my back in the Marine Recons in the '70's and they said it was because I was a non-hacker. Then how did I get in the RECON's to begin with? Or the Marines for that matter. I put up with my back until 2003 when I had 3 lambinectomies, and four disk fixes, but kept working full time. In 2007 my RA triggered and it kicked "my" ass. I defy them to call me more sensitive than the general public. -Goat Well there you have it!,
I thought I was just not tough enough to hack it. Now I see that I just “feel” pain more easily. So what are we supposed to do? I ruined my back in the Marine Recons in the ’70′s and they said it was because I was a non-hacker. Then how did I get in the RECON’s to begin with? Or the Marines for that matter. I put up with my back until 2003 when I had 3 lambinectomies, and four disk fixes, but kept working full time. In 2007 my RA triggered and it kicked “my” ass. I defy them to call me more sensitive than the general public.
-Goat

]]> By: Kelly Young http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-204709 Kelly Young Thu, 19 Apr 2012 19:11:55 +0000 http://rawarrior.com/?p=3420#comment-204709 I wish I had a dollar for every patient who has told me that. :) I wish I had a dollar for every patient who has told me that. :)

]]> By: Peggy Stafford http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-204669 Peggy Stafford Thu, 19 Apr 2012 16:58:29 +0000 http://rawarrior.com/?p=3420#comment-204669 o and on top of things I have shingles!!!! so I cant take my methotrexate or humira shots,,,,been waiting 3 days for dr. to call me with some answers..... o and on top of things I have shingles!!!! so I cant take my methotrexate or humira shots,,,,been waiting 3 days for dr. to call me with some answers…..

]]> By: Peggy Stafford http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-204667 Peggy Stafford Thu, 19 Apr 2012 16:52:53 +0000 http://rawarrior.com/?p=3420#comment-204667 I want to find a dr. that has RA,thats the only way they will ever know,what it feels like.... I want to find a dr. that has RA,thats the only way they will ever know,what it feels like….

]]> By: Cindy http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-182393 Cindy Fri, 24 Feb 2012 00:56:53 +0000 http://rawarrior.com/?p=3420#comment-182393 I use methotrexate for my RA. I just quit using plaquenil that I have used for 15 years. They are concerned about my total intake of that. I have lived through severe endometriosis, ovarian cysts, migraines, and chronic sinus infections. My RA pain would wake me from sleep. The pain was so intense that at times I thought I would vomit. The heat of my inflamed joints could be felt inches away from the joint. Pain medication for me just never touched the pain of my RA. I am 47 years old and have had lupus and fibromyalgia since I was 19. The RA was diagnosed at 33. RA pain is different than any other pain I have ever known. I have dealt with a lot of other issues, the RA pain difference is NOT in my head. Just ask the people who have been around me my whole life. I use methotrexate for my RA. I just quit using plaquenil that I have used for 15 years. They are concerned about my total intake of that. I have lived through severe endometriosis, ovarian cysts, migraines, and chronic sinus infections. My RA pain would wake me from sleep. The pain was so intense that at times I thought I would vomit. The heat of my inflamed joints could be felt inches away from the joint. Pain medication for me just never touched the pain of my RA. I am 47 years old and have had lupus and fibromyalgia since I was 19. The RA was diagnosed at 33. RA pain is different than any other pain I have ever known. I have dealt with a lot of other issues, the RA pain difference is NOT in my head. Just ask the people who have been around me my whole life.

]]> By: Kelly Young http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-172498 Kelly Young Wed, 01 Feb 2012 00:26:57 +0000 http://rawarrior.com/?p=3420#comment-172498 (Thanks, Raini. I did read your comment when it posted - but I've been too busy to type any replies the last few days.) Thanks for what you posted on FB! We can all so our part to provide a clearer picture of what is really going on & explain how this mess of misunderstanding came about. You're so right: it's such an extreme disease that we somehow get a reputation of being extreme patients instead.You did a great job explaining. (Thanks, Raini. I did read your comment when it posted – but I’ve been too busy to type any replies the last few days.)
Thanks for what you posted on FB! We can all so our part to provide a clearer picture of what is really going on & explain how this mess of misunderstanding came about. You’re so right: it’s such an extreme disease that we somehow get a reputation of being extreme patients instead.You did a great job explaining.

]]> By: Raini http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-170729 Raini Sat, 28 Jan 2012 07:51:00 +0000 http://rawarrior.com/?p=3420#comment-170729 Wow. Ok, so I read this entire piece of www.rawarrior.com 's blog on this subject. My first emotion was, of course, rage. How dare they tell ME what MY body feels like. Then I slipped into sadness, for if this is truly the belief of the medical "experts" or establishment, how will we ever find a cure? The sadness extended to how the public, friends, some family members and even I, sometimes see us (myself). Yes, there are times when I wonder if I have a realistic view of my disease. The sadness was followed by an almost despair. Feelings of disrespect, being seen as a hypochondriac or malingerer by the general public and by some "close" to us. I am not talking about anyone currently in my life, as I have pretty much shed those who didn't/couldn't hide their disgust/disbelief as I have no need of them in my life. It's hard enough without feeling the need to CONVINCE someone that I AM sick and that I AM in pain. The despair was pretty quickly followed by anger again, along with a touch of obstinacy and more than a healthy dose of "kiss my ass-ed-ness". I have been through a lot of pain in my life. Not the least of which was childbirth, done naturally (NO pain aids), for 17 hours, with no Lamaze tools, for the most part without support, and with contractions exclusively in my back (I say exclusive because I cannot remember what the uterine ones felt like as they were blotted out by the back). The back labor felt like someone was trying to bend me the wrong way and snap my spine in half. That was a very long time ago, and yes, I still remember the pain. My pain now, when someone gently squeezes a knee (doc's gotta palpate yanno), outdoes that childbirth. It may not last as long, but it is just as intense. I had one doc (not my rheumie doc) thought she was gently squeezing my knee, when I burst into tears and moaned (I don't make noise when I'm hurt). She said "I barely put any pressure on your knee, is it really that painful?". I replied "yes". She ended the exam and told me to see my rheumie instead (I went to her because I couldn't get in to see my rheumie for several months). My point is, how would you feel if the very people who are supposed to help you and research a cure for your deadly disease, didn't believe you even had it? Kind of an extreme comparison, but then RAD IS extreme. I do NOT want your pity, or your "there, there's". I simply want you to believe me. The sad part is that the people who NEED to understand and believe, won't be the ones reading this. *SIGH* Kelly, this is the comment I followed your blog with on my FB page. Again, I thank you for the information. We NEED to hear it though it is painful, discouraging and upsetting. We can't fight it if we aren't aware of it :). Wow. Ok, so I read this entire piece of http://www.rawarrior.com ‘s blog on this subject. My first emotion was, of course, rage. How dare they tell ME what MY body feels like. Then I slipped into sadness, for if this is truly the belief of the medical “experts” or establishment, how will we ever find a cure? The sadness extended to how the public, friends, some family members and even I, sometimes see us (myself). Yes, there are times when I wonder if I have a realistic view of my disease. The sadness was followed by an almost despair. Feelings of disrespect, being seen as a hypochondriac or malingerer by the general public and by some “close” to us. I am not talking about anyone currently in my life, as I have pretty much shed those who didn’t/couldn’t hide their disgust/disbelief as I have no need of them in my life. It’s hard enough without feeling the need to CONVINCE someone that I AM sick and that I AM in pain. The despair was pretty quickly followed by anger again, along with a touch of obstinacy and more than a healthy dose of “kiss my ass-ed-ness”. I have been through a lot of pain in my life. Not the least of which was childbirth, done naturally (NO pain aids), for 17 hours, with no Lamaze tools, for the most part without support, and with contractions exclusively in my back (I say exclusive because I cannot remember what the uterine ones felt like as they were blotted out by the back). The back labor felt like someone was trying to bend me the wrong way and snap my spine in half. That was a very long time ago, and yes, I still remember the pain. My pain now, when someone gently squeezes a knee (doc’s gotta palpate yanno), outdoes that childbirth. It may not last as long, but it is just as intense. I had one doc (not my rheumie doc) thought she was gently squeezing my knee, when I burst into tears and moaned (I don’t make noise when I’m hurt). She said “I barely put any pressure on your knee, is it really that painful?”. I replied “yes”. She ended the exam and told me to see my rheumie instead (I went to her because I couldn’t get in to see my rheumie for several months). My point is, how would you feel if the very people who are supposed to help you and research a cure for your deadly disease, didn’t believe you even had it? Kind of an extreme comparison, but then RAD IS extreme. I do NOT want your pity, or your “there, there’s”. I simply want you to believe me. The sad part is that the people who NEED to understand and believe, won’t be the ones reading this. *SIGH*

Kelly, this is the comment I followed your blog with on my FB page. Again, I thank you for the information. We NEED to hear it though it is painful, discouraging and upsetting. We can’t fight it if we aren’t aware of it :) .

]]> By: Kelly Young http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-159988 Kelly Young Tue, 10 Jan 2012 00:00:26 +0000 http://rawarrior.com/?p=3420#comment-159988 yes Lisa! and we need them to understand because these are the ones we are counting on to find answers & relief of our suffering! yes Lisa! and we need them to understand because these are the ones we are counting on to find answers & relief of our suffering!

]]> By: Lisa Calhoun http://rawarrior.com/does-rheumatoid-arthritis-pain-really-hurt-that-much/comment-page-2/?show=comments-159959 Lisa Calhoun Mon, 09 Jan 2012 23:10:31 +0000 http://rawarrior.com/?p=3420#comment-159959 How offensive to read these "scholars" of which none probably have ever had RAD. I like that word much better!! Low pain threshold, ARE YOU KIDDING ME? Living with RAD, many, many surgeries later, an anular tear in my disc in my back, yet everyday I get up and I get things done - I wish just for one day one of those individuals who wrote some of those articles could feel just half of OUR pain I bet they would recant their articles! I am so glad I found this site, THANK YOU! How offensive to read these “scholars” of which none probably have ever had RAD. I like that word much better!! Low pain threshold, ARE YOU KIDDING ME? Living with RAD, many, many surgeries later, an anular tear in my disc in my back, yet everyday I get up and I get things done – I wish just for one day one of those individuals who wrote some of those articles could feel just half of OUR pain I bet they would recant their articles! I am so glad I found this site, THANK YOU!

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