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I admit I have followed the blog but haven't commented before, but this one inspired me- oddly enough…I got that book from the Arthritis Foundation after I was first diagnosed; it was about a year ago now. It took me a while to realize that whoever wrote it must live on a completely different planet, probably the same one the author's of the Woman's Day article live on 😉
I recently threw it out when I actually got myself inspired to clean (usually when I have energy I go do something I enjoy more ha ha)since I could think of no use for it. It gives some interesting tips, none of which have I ever put into practice. My experience seems to be that the Artiritis Foundation has different goals for me than I do. I don't want to hear inspiring stories of people with JRA who have gone on to do well or stories of an older woman who has RA and is happy to garden and walk her dog now…those stories are inspiring, and helpful, and educational, but they don't reach someone like me who is 24 and relatively recently diagnosed (though my doc thinks I have had it since my teens…the diagnosis process for me was lllloooooonnnnnggggg). I want better than that for myself even though I know I have to fight through a lot to get that. All that to say Kelly, that I agree with you, there is a woeful lack of understanding of RA, even from those organizations and Doctors that should understand it best. I appreciate your efforts to help and can't tell you how helpful I have found your blog.
Good review. I think reviews should be honest like yours. Of course, the reason people write books are to sell them to a broad range of readers.
I hate it when someone tells me to exercise or "the use it or lose it thing." I use my hands and fingers all day long on the computer,yet my fingers curled, very deformed and all but lost the use of my right hand.
Speechless. ;D
Not a sin in any way that I can see. I was snared into the upbeat stuff of the Arthritis Foundation early on in my journey. As my journey continues down the the path of RA life I find that I have become disillusioned with several notions of the AF.Don't get me wrong they have done more for RA than any other organization that I know of. However, yep… Read More you knew the but was coming, AF usually fails to reveal the everyday life in the real world of RA. They forget to include in their writings the everyday struggle to hold a cup of coffee, to tie your own shoes, to get that plate on the high shelf. Another thing that really bothers me is their magazine Arthritis Today. I have yet to see anyone in that magazine in a wheelchair!!!!!! Almost all of the personal stories are from people that work full time, go golfing, do marathons, etc. This is a good portrayal of maybe 10% of the RA population. What about the rest of us????
😉 I hate the commercial for RA can u do this I say NO I CAN’T DO THIS!! orenica commercial..hate them for advil,well you know the rest..
Continuing on……. I know they try to stay upbeat for RAers, but (there it is again) what about the real world???? I guess I am trying to say that I get tired of sunshine being blown up my backside!!!!! I would think that a foundation who's sole purpose is to get out info. about Arthritis and related diseases would give everyone the straight truth sometimes. Wow, didn't know I had all of that in me. Kelly, very sorry to take over your blog. I will be quiet now.
Note to Jamie: Thanks for expressing that about the Arthritis Foundation site and magazine. I feel similar. Sometimes I think I must be doing something wrong or even worst thinking, "I must deserve this suffering". I don't honestly feel that way, of course.
OK, everyone..how can we get our message to the powers that be at the Arthritis Foundation site?
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😉 Omg I have had so many tips on RA & living w/ RA that I am sick to death of hearing use it or lost.ur goin to lose it even if you do use it..so whats the point .I just tend to agree with all of the post in reference to the books.hogwash…lol have agood one
Thanks, Roxie. Yeah, “Use it or lose it” just sounds good to them I guess. They don’t know. They don’t have it.
I do recommend exercise, with a HUGE caveat. Exercise is very personal. Some flares are so excruciating that turning a door knob causes pain as though your wrists are broken. Then, lifting weights is impossible. Swimming is great, but changing into a swimsuit requires dexterity that is impossible for some. Walking on the cement to get to the pool can be insurmountable. Blow drying your hair afterwards? With a brush? Are you kidding? You see what I mean? It is very subjective and entails a cost-benefit analysis with each person, each time. I have many different forms of exercise, depending upon my mood and the pain. Some days, it is enough to do stretches in bed. On a few lucky days, I can go to the gym. Most days, it is a compromise.