Happy Birthday #Rheum for World Arthritis Day
Last October 12, I was in New Jersey in on a WEGO Health panel of health activists. But before I got on the plane, I wrote a blog post to share my concept of a #Rheum community online for people interested in Rheumatoid disease and rheumatology topics, beginning with a Twitter hashtag and chat.
Over the past year, hundreds of patients, care-givers, medical professionals, and representatives of companies have used the #rheum hashtag on Twitter. We have conducted 33 Sunday afternoon chats in the last year! We’ve seen as many as 60 people in a chat.
Why did I make #rheum?
- A year ago, I noticed several people joining Twitter each week from the blog. I’d had personal contact with hundreds of patients, and I wanted to create a way to have them know each other. I’d purposely introduced people to each other (and I still do), but that was not enough. I wanted those people to be able to contribute to conversations – I wanted to create a community there.
- I hoped that the doctors or companies that I was Tweeting with would see what the patients were saying and vice versa. They do now!
- I wanted to begin to teach Google (& all search engines) that “Rheum” and “Rheumatoid” identify Rheumatoid Disease more closely than “arthritis” does. It’s exciting that #Rheum is already being suggested in searches!
Last year is hard to top! What am I doing today?
LOTS! Here’s a big one! The Rheumatoid Patient Foundation video project is now underway. We have only a few days to collect video clips and submit them to begin the edit process, so if you’d like to participate, please request the instructions immediately by emailing email@example.com.
If you’ve already received the instructions, please send your clips in as quickly as possible.
If you can’t send in a video, you can still help!
- Add our first RPF badge to your blog or website – here’s how – click here.
- Donate to the RPF – here’s how – click here.
- Join RPF when membership is opened soon – check back at rheum4us.org often for updates.
- Columbus Day and World Arthritis Day: Is There a Connection?
- Traveling to a WEGO Health Panel for Health Activists
- Twitter & a #rheum for the Rheumatoid Online Community
NOTE: Your comments are an important resource for future readers of this post in the months to come. Please find the comment link below each post.Kelly Young. All rights reserved.