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rawarrior Two RA bloggers, posting within minutes of each other. What are the odds? 😉 Happy Thanksgiving!
Kelly, right back atcha! You are the face of resilience, courage, and hope for all of us! Thank you for being here!
Kelly, I just can’t thank you enough. I now go into my rheumatologist armed with information and so much more confidence. I no longer feel like the helpless lab rat I once was. Plus, thanks to all of you, I don’t feel so alone with this disease. Thank-you for ever!!
Proof of how much we need information you provide is in yet another article, from Women’s Day, that popped up on MSN today, “16 ways to beat arthritis.” After briefly differentiating OA and RA, it says, “But there are ways to lessen joint pain, including losing weight, exercising, eating a halthy diet and more! Browse our strategies here to be on your way to a heappy, healthy and pain-free you.” Disease-modifying drugs are mentioned with the assertion that they “actually change the usually significant disability caused by the disease.” While I’m currently one of the lucky ones who is finding significant improvement with a biologic, and I’m so thankful, even I am well aware that this statement leaves out those who do not see significant improvement, making it sound as if all do.
Sorry for the wrongly spelled words in that previous post. Although I’m glad to be among the ones who benefits greatly from biologics, this is evidence that even those who see significant improvement still see the effects of RA in their everyday life and are not cured. It’s not my spelling that’s the issue: my typing skills have obviously deteriorated, a real problem in my work. Those awkward hands also keep me from my once-realized dream, playing violin in my community’s orchestra.
I am newly diagnosed with RD (love the name) I have been struggling with a gamut of emotions. I have several other issues including PCOS that has left me with insulin resistance and thyroid disease so this was a kick in the ass I didn’t need. Your site has been a blessing. I have shared with friends and family trying to help them understand what I am going through. When initially diagnosed everyone was relived. I heard it could be worse. How? No one really understood what I had been going through or what I could be facing. I feel somebody understands when I read the articles on your site and others comments. I also have been blessed to have a really good rheumatologist. Things could be a lot worse. Thank you for your site Kelly.
Kelly,
I truly am thankful for the work you, and those who help you, have done towards the goals of realizing awareness by professionals about the disease, where there was very little. The discouragement one feels when told that the manifestation of their disease are not so, or not explicable, simply because it has not been accounted for in the professional literature is one discouragement I could many times have done without. Who knows best about the way a disease presents than the patient herself/himself! I often find descriptions of manifestations I have experienced and been told they are not part of my disease on your posts or posts of others who respond. Thanks for bringing this very important, but often silent, because we learn to live with it, RAD community together. Your work has been a blessing. I would love to join you at one of these events someday.
Thank you for the work you do in making RA awareness front and center!! Mat God continue to bless and strengthen you in your mission! Hugs & prayers!!