Comments on: I’m Not All Better, Just Too Polite to Whine; Yet Victory Is Still Sweet

By: Kelly Young

Kelly Young — Wed, 25 Apr 2012 13:07:41 +0000

I agree Linda. It shows us that we may have no idea what someone is dealing with.

By: Linda Gail

Linda Gail — Wed, 25 Apr 2012 12:19:40 +0000

I am newly diagnosed with RAD. Your post reminds me of myself, with my flair for makeup and clothing. I can make myself look good regardless of how I feel, and I have noticed that response about how I look like I’m doing ok . . .
It isn’t that I want everyone to know just how bad I feel, but that I wish their understanding was not based so much upon appearances. This disease has already taught me so much; I no longer think a person’s outside is necessarily indicative of their insides.

By: Kelly Young

Kelly Young — Tue, 28 Feb 2012 17:16:08 +0000

Hi Maria. Welcome to the site. I realize it’s very large and many pages to navigate. You can use several tools to find things like the 2 menus at the top of the page. Is there something specific I can help you find?
Here are some more suggestions from the About Page:
Here are some great ways to find what you are looking for:

Search box at top of the page.
All posts are carefully tagged – so scroll through the Tags list for your topic.
Further down, the Archives list every post on the blog. Just click on the black arrows to see all the titles.

By: Maria

Maria — Tue, 28 Feb 2012 16:16:59 +0000

Hi I was just diagnosed with RA 3 weeks ago… Ironically I found this site while browsing thru a magazine at the EYE Doctors office! I really haven’t figured out how to find my way around the site so any help would be appreciated. I see certain headline and then when I go back into the site I can not find them…

By: Chelsea

Chelsea — Wed, 22 Feb 2012 21:12:17 +0000

Wasn’t saying anything about it being brought on by self vs medication, nor did I think that was implied either. Just best to avoid baths (even if joints want a hot bath) and soap under those conditions.

By: Kelly Young

Kelly Young — Wed, 22 Feb 2012 14:38:05 +0000

I have not described my personal habits and anything I can think of responding is tmi. I do suspect this 6-month-long infection in someone who has never been prone to them is likely connected with the Rituxan infusion which immediately preceded it. I do not believe I have done anything to bring this on myself, but I guess when one mentions one’s own health on a blog, others may feel it is open to their speculation.

By: Chelsea

Chelsea — Wed, 22 Feb 2012 10:19:39 +0000

Kelly, agreed. Belinda, yours sounds somewhat similar to mine.

Kel, baths (and soap on lady’s privates parts) are no-no’s for anyone suffering with bladder infections.

By: Leslie

Leslie — Tue, 21 Feb 2012 21:10:01 +0000

Why do all the pharmacuetical have to run so many commercials about how much pain we’re in the deformities that occurring. I watch TV as an escape until the multiple commercial come on. I realize we are trying to get more exposure but why does it have to keep reminding me about something I’d just rather forget about?

By: Kelly Young

Kelly Young — Tue, 21 Feb 2012 18:21:00 +0000

I’ve blogged about it some. It makes me feel bad I can’t camp or hike but the boys understand mostly except for someone who says they can even w/ RA that is apparently in remission – i suppose.

By: Danielle Tipton

Danielle Tipton — Tue, 21 Feb 2012 17:56:29 +0000

I just may take you up on updating Em’s story at some point. She is a classic case of how it starts as just one disease but can become many. I don’t think that people realize that can happen, like how having the “AI trigger” is really like opening the floodgates.

When my son first started scouting as a Tiger, I was told that I would have to be a den leader to get him in. So I became one. I made Kevin help after a couple of months because he is an Eagle scout. He was suffering from his errant thyroid at the time and just needed something. I stepped down this year. I just can’t keep juggling work, doctor’s, IV’s, therapy, school stuff for the kids, and make den meeting plans. Kevin is currently our Bear DL & Committee Chair. He loves it!!! I love working with the kids, but the parents were stressful for me. Now I use that night to go to my women’s Bible study group. It gives the boy’s time together without us girls. Congratulations on having 2 working on Eagle! They say that not many keep going after age 13 or 14 nowadays. By 16 most are done.