Archive for the ‘If you don’t have RA, please read’ Category

  • Glenn Frey’s Cause of Death

    Glenn Frey’s cause of death, rheumatoid arthritis complications, ulcerative coliits, pneumonia, complications from RA medications. Significance to patients.

  • Reaching Beyond Limitations: Nike versus Yoda

    “Not running sucks” & “Don’t just RUN your mouth” I stopped short when I saw this Nike t-shirt display in a mall recently. I had to get a picture of these t-shirts and ask the salesman, “Do you sell a lot of these? Do people like them?” He said they do. I just smiled and […]

  • Rheumatoid Awareness: Judgmental Eye Rolls Versus Help & Compassion

    Treated like you’re fine when you’re not A comment this week by Lisa sums up one of the most important reasons we need awareness for Rheumatoid Disease, and one of the hardest to explain to others. “RD awareness would mean that I wouldn’t be treated like I am fine when I am not. It would […]

  • Vicks Vaporub Cure for a Disease That’s In Your Head Anyway

    I got something free with my Chinese food the other night when I went to pick up my egg rolls: advice. It was the end of a long, hard, day. I’d pushed myself hard to be moving at all with harsh stiffness and sharp pain in over a dozen joints. We’d been out that day […]

  • What a Wonderful World, and Nobody Knows the Trouble I’ve Seen

    Do these two song titles seem to conflict? The former was one of the first songs I ever put (and kept) on my phone. The latter I learned in second grade because my teacher thought every American must know Spirituals. (Hear Louis Armstrong sing below, and Nobody Knows the Trouble I’ve Seen on YouTube.) Guys, cover […]

  • PCORI, Is It Worth It to Include Patients?

    The patients who read this blog are like dear brothers and sisters to me. I’ve met many in person and it’s like a family reunion. The RAW website and blog obviously speak to others as well – lay and professional caregivers, rheumatology industry, and sometimes the larger patient engagement movement. We’re working hard for change […]

  • 10 Misconceptions About Chronic Disease Many People Believe

    You can’t understand illness by just looking at a person Very soon after being diagnosed with RA, I learned that most people have beliefs about chronic illness that are hard to overcome. When one neighbor, friend, and family member after another dismissed me, I did the same thing most people with Rheumatoid Disease (PRD) do: […]

  • Inside Story of a Young Person Living with Juvenile Rheumatoid

    Today’s blog is my response to an email from a reader about an appointment with her daughter’s rheumatologist. This family travels for hours to see an expert pediatric doctor in one of the best hospitals in the country. Hi Kelly! I guess when they say all good things must come to an end, IT’S TRUE […]

  • Invisible Illness and the Public: She Hit Me with Her Cane

    Tomorrow I’m traveling to San Diego for the ACR annual meeting. I’ll be taking a proverbial chill pill (and some real meds) and hoping all goes smoothly. For weeks we’ve done all we can to be ready! This story occurred a couple of months ago… Did anyone ever give you a dirty look for using […]

  • Why I Hate “Are You Ready for Christmas?”

    Well, I don’t really hate it, but “Why I’m uncomfortable with the question ‘Are you ready for Christmas?’” is too long for a blog title. The Twelve Days of Christmas begin on Christmas. Sometimes people say Jewish families are lucky to celebrate Hanukkah over eight days. Isn’t that better than a month of rushing around […]