Email a copy of 'Invisible Illness Awareness Video' to a friend
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Kelly Great interview. Hit all the points. Wouldnt it be great to air this on tv? I know its long for a commercial.lol. But we can dream of awareness. Thanks again! Judi
Awesome!!! Kelly, you are so good at explaining what I am feeling. I agree with Judi, I so wish the whole world could hear this and have a better understanding of RA and what we deal with.
Love, Kristi
Lisa and Kelly,
Thanks so much for putting this video together!
I am new to the diagnosis within the last year and a half. I forwarded a link to my family members and some friends. Sometimes I think it’s easier to hear a third party.
Again….Thanks so much!
good interview.
my response to “hey how are you? you look really great so you must be feeling better, blah blah blah”:
“thanks, my meds seem to be working today (this week, etc. this usually evokes a question that allows me to qualify that yes, my disease symptoms vary day to day, (hour to hour, week to week)depending on whether my meds are kicking in……”
this seems to help clarify and make the point to newcomers to the disease.
I definitely got much sicker when I was Bullied out of my 15yr. position at a physicians office. I was one who almost never called in sick(no matter how sick I was with ALL my autoimmune disorders)to having to turn in FMLA paperwork, thinking that would secure my position. At this time she said,”you cost us money”. I only took one day off a week to rest and have more tests done. In between tests I was FIRED… both tests uncovered two more health challenges that are BOTH precancerous in my esophagus. I have since learned a lot about “bullying” and “mobbing”. The practice administrator planed to turn my co-workers against me. She did this(one of the many things she did) by giving them some of the moneys I had earned by a previous 15yr. policy. She told them, not me, so needless to say when I found out I was rather up set and said something, to then, be screamed and yelled at. She had told me one day I looked nice, these were VERY comfortable clothes so I though I would get more. I had them hemmed and also had to get new flats because I could no longer wear my heels. Then she comes up to me and says” your not keeping up with the competition,you need to step it up”. Pointing at my attire… it would have been nice to hear,something like, sorry you can’t wear your heels anymore,that you so dearly love ! She did things like this numerous times and for many more unjust reasons ! I’m sure there are many other people on here who have also been treated in a similar fashion,to all of a sudden, find themselves …Terminated on trumped up charges as an excuse to get rid of chronically ill employees !?! BTW..I’m much better off not working for/with these unscrupulous people and am employed (VERY) part time with very kind caring people !
Thank you for this wonderful site. I really needed the lowdown on meth(wink wink)since I just started taking it. I do not have RA but DO have lupus, sjogren ‘s, raynauds, fibro and neuropathy. So I deal with similar circumstances. Excellent info and inspiration here. I’ve been fighting the good fight with my challenges for 30 years and I’m still alive and kicking:)!