Comments on: Managing Rheumatoid Arthritis: Transparency and the Wall http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/ Bringing information & encouragement to fight RA Wed, 23 May 2012 22:43:45 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: KEVIN TALBOT http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-99272 KEVIN TALBOT Mon, 10 Oct 2011 12:47:53 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-99272 Hello, Thank you for the article, as i have struggled with this first hand, I am on disability and my RA doctor told me i have the worse kind RA as it never really lets up i basically hurt everyday as a lot of us do, but i have a sister who is a RN AND EVERYONE IN THE FAMILY LISTENS TO HER, she tells everyone i should not be on disability that RA is just a little worse than other arthritis, What that means i have no idea, but it shows the ignorance about RA, IM GLAD YOU SPEAK FOR LOT'S OF PEOPLE WITH RA , HATE TO USE THE WORD VICTIMS BUT THAT HOW I FEEL AT TIMES, Kevin Hello, Thank you for the article, as i have struggled with this first hand, I am on disability and my RA doctor told me i have the worse kind RA as it never really lets up i basically hurt everyday as a lot of us do, but i have a sister who is a RN AND EVERYONE IN THE FAMILY LISTENS TO HER, she tells everyone i should not be on disability that RA is just a little worse than other arthritis, What that means i have no idea, but it shows the ignorance about RA, IM GLAD YOU SPEAK FOR LOT’S OF PEOPLE WITH RA , HATE TO USE THE WORD VICTIMS BUT THAT HOW I FEEL AT TIMES,
Kevin

]]> By: Kelly Young http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-30701 Kelly Young Wed, 01 Sep 2010 11:57:32 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-30701 Hi, Anna. Most people get a lot of improvement from the Biologics - good luck with the Humira people. You are definitely not alone. Hi, Anna. Most people get a lot of improvement from the Biologics – good luck with the Humira people. You are definitely not alone.

]]> By: Anna Wilchacky http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-30669 Anna Wilchacky Wed, 01 Sep 2010 02:51:20 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-30669 Thank you for your blog...I have had RA for about 15 years and it has gotten progressively worse. I just got approved for disability because I can't do my job anymore, I'm a Realtor. One of the hardest things is that no one understands. They all knew me when I was an active, successful Realtor, and now I think everyone just thinks I'm being lazy and don't want to work anymore because I'm 59..It really does take a toll on me, and I don't have any health insurance, and am trying to get Humaira from the company to try. I'm nervous about trying the biologics, but am willing to try anything to feel somewhat normal again. It's nice to know I'm not alone and some people do understand what I'm going through. Thank you for your blog…I have had RA for about 15 years and it has gotten progressively worse. I just got approved for disability because I can’t do my job anymore, I’m a Realtor. One of the hardest things is that no one understands. They all knew me when I was an active, successful Realtor, and now I think everyone just thinks I’m being lazy and don’t want to work anymore because I’m 59..It really does take a toll on me, and I don’t have any health insurance, and am trying to get Humaira from the company to try. I’m nervous about trying the biologics, but am willing to try anything to feel somewhat normal again. It’s nice to know I’m not alone and some people do understand what I’m going through.

]]> By: Kelly Young http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-14337 Kelly Young Sat, 15 May 2010 01:02:38 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-14337 Sally! :-)) My friend who wrote me the letter reallly is named Dorothy. I love your extension of the analogy! Thanks. Sally! :-) ) My friend who wrote me the letter reallly is named Dorothy. I love your extension of the analogy! Thanks.

]]> By: Kelly Young http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-14336 Kelly Young Sat, 15 May 2010 01:00:47 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-14336 Mary, I love your way of putting that: "a tone that didn't particularly invite questions, and deal." Wanna collaborate on the books? ;-D Mary, I love your way of putting that: “a tone that didn’t particularly invite questions, and deal.” Wanna collaborate on the books? ;-D

]]> By: Sally O\'Meara http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-14268 Sally O\'Meara Fri, 14 May 2010 17:10:40 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-14268 Kelly, There's the old saying- "If you're not part of the solution, you will be part of the problem" With your blog, you are now part of the solution- helping us deal with RA and helping others to learn about it. Dorothy faced all sorts of challenges on the yellow brick road. Your blog helps us face our own RA challenges. Sally Kelly,

There’s the old saying- “If you’re not part of the solution, you will be part of the problem” With your blog, you are now part of the solution- helping us deal with RA and helping others to learn about it. Dorothy faced all sorts of challenges on the yellow brick road. Your blog helps us face our own RA challenges.

Sally

]]> By: Mary http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-14258 Mary Fri, 14 May 2010 15:27:47 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-14258 Hi Kelly, I learned the same lesson, having been diagnosed at 22 and having severe enough RA to warrant getting both knees replaced at 26. I learned quickly to just be vague, say I had joint problems in a tone that didn't particularly invite questions, and deal. Otherwise a question or two becomes an entire conversation explaining RA vs OA, different treatment options including the latest quackery, and the inevitable "but you're so young!" as if that actually made a difference to RA. Like you, I could write a book or two about these encounters. Hi Kelly,

I learned the same lesson, having been diagnosed at 22 and having severe enough RA to warrant getting both knees replaced at 26. I learned quickly to just be vague, say I had joint problems in a tone that didn’t particularly invite questions, and deal. Otherwise a question or two becomes an entire conversation explaining RA vs OA, different treatment options including the latest quackery, and the inevitable “but you’re so young!” as if that actually made a difference to RA. Like you, I could write a book or two about these encounters.

]]> By: Kelly http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-10 Kelly Tue, 26 May 2009 13:34:13 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-10 Thanks Gloria,<br />Seems like we have a lot in common.<br />Love your snow pictures - that we don't have in common. I am in Florida!<br />But I love snow as much as I do the beach! Thanks Gloria,
Seems like we have a lot in common.
Love your snow pictures – that we don’t have in common. I am in Florida!
But I love snow as much as I do the beach!

]]> By: Gloria http://rawarrior.com/managing-rheumatoid-arthritis-transparency-and-wall/comment-page-1/?show=comments-4 Gloria Thu, 21 May 2009 12:52:18 +0000 http://rawarrior.com/transparency-and-the-wall/#comment-4 Hi Kelly,<br />I'm the mom of Julia of Julia's Journal. Your daughter found my daughter's blog and left a nice comment. They have a lot in common.<br />I, too, have RA for 12 years now. I am so sorry to hear that you are not doing well. We homeschool and used to live in the same state as you do. <br />So nice to "meet" you!<br />Blessings,<br />Gloria Hi Kelly,
I’m the mom of Julia of Julia’s Journal. Your daughter found my daughter’s blog and left a nice comment. They have a lot in common.
I, too, have RA for 12 years now. I am so sorry to hear that you are not doing well. We homeschool and used to live in the same state as you do.
So nice to “meet” you!
Blessings,
Gloria

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