Email a copy of 'Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!' to a friend
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E-Mail 'Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!' To A Friend
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Is there a non Facebook link to the survey?
Hi Lisa,
This particular survey is a Facebook “Question” only, but don’t worry! You won’t miss out. We have some important surveys coming that you can participate in here or on the http://rheum4us.org site. I don’t usually use FB for our surveys, but this was a quick poll to see what folks would say & it helps us to learn about how to do the next survey too.
The link to submit a photo does not work! I tried searching the site with no luck as well.
haven’t had any trouble with it. checking on it right away. thanks.
here is the right link! http://rheum4us.org/donate-a-picture/
I WOULD LOVE TO ENTER THIS CONTEST!
I HAVE PSORIATIC ARTHRITIS & dangerously severe Palmo / Planter Psoriasis and ANKYLOSING SPONDYLITIS (and a pituitary tumor & 9 thyroid cysts and perhaps Crohn’s Disease).
I DO NOT BELIEVE THAT I HAVE RA. DO I STILL QUALIFY?
I was on Humira, but it lowered my immune system so severely (URI’s, fungal infections & then BELL’S PALSY) that my dermatologist discontinued it. My dermatologist then wanted me to start Methotrexate, but I decided against it (we’re in the wine business).
My rheumatologist doesn’t think I have RA, or PA, she only looks at blood tests – NOT ME! I was bawling the last time I left her office and she could care less. I’m trying all natural / holistic medicine now, but I would appreciate some real medical help also.
Dear Susan,
The Mayo Contest is for ANY patients or caregiver! You don’t have to have RA or any other specific dx!! I hope that lots of patients who work hard to learn about their conditions will enter the contest. Good luck!
Thanks for your encouragement, Kelly!
Here’s a follow-up on my new, recent diagnosis:
I saw a new Rheumatologist last week; his name is Dr. Roy Fleischmann. He is the head of Rheumatology and Inflammatory Diseases at UT Southwestern Medical School here in Dallas, TX. He doesn’t take many new patients, but my Endocrinologist was able to get me in to see Dr. Fleischmann.
After taking my history and before even ordering one blood test or x-ray, Dr. Fleischmann said, “Of course you have Psoriatic Arthritis; you’ve had it since you were a child! What was Dr. (so&so) thinking?” Before I could utter a word, he answered himself, “Obviously, she wasn’t thinking at all!”
Dr. Fleischmann then said he was starting me on Enbrel that day and ordering blood work, including DNA testing (my previous dr never tested me for FLA-B27 or any other DNA) and lots of x-rays to see what damage has already occurred.”
I will go back to see Dr. Fleischmann in 2 weeks. I’m praying Enbrel will be the answer for me without all the infections that I had while on Humira.
Thank you so much for your blog and your facebook page. You are a great encourager for me and obviously for many other people too!
God bless you & yours!
My brother suggested I might like this blog.
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