Comments on: Mistaken beliefs about a Rheumatoid Arthritis blog?

By: Andrea Carman

Andrea Carman — Sun, 26 Jun 2011 19:02:22 +0000

I think you should start a blog, for a variety of reasons. One of them being that with a blog, you create an open forum for new ideas, thoughts, input, and possible hearing of treatments that currently remain unknown. Secondly, it may be helpful emotionally to co-miserate with others, Hearing from people who can identify with your pain and particular symptoms may act as a cathartic. A “fellowship’ of sorts. if you are a person who seeks God, then the likelihood of encouraging others as they encourage you is possible too. Whatever you decide, I pray right now that the Lord’s mercy is upon you. I have two people at church that I love very much, one, a mother of 5 young kids, has RA, Crohn’s and fibromyalgia. The other has not been officially diagnosed, but is showing symptoms. it’s close to my heart.:)

By: Kelly Young

Kelly Young — Sun, 20 Mar 2011 12:28:39 +0000

That reminds me of the post I wrote about “can’t” because I actually couldn’t open something no matter what I did. It wasn’t just pain – it just wasn’t happening. That is a depressing & humiliating moment as you say. & Like you say, we adapt…

By: jen

jen — Sun, 20 Mar 2011 04:32:46 +0000

oh kelly just got to reading this blog entry and so relating to your inner monologue as you sit there on those dang hard cold benches. I frequently wonder how I will make it through everyday occasions…..
for me, it has this humiliation factor……. I CANNOT lift the milk from the bottom of the cart!! and I CANNOT believe it myself!! it’s amazing how many things I’ve changed to adapt and avoid different activities/movements …..it’s most certainly depressing and changes I didn’t want to make.

By: Kelly Young

Kelly Young — Fri, 04 Mar 2011 16:12:31 +0000

oh I hate to hear that, Linda. But most of us seem to get to that point pretty quickly – where we have to keep it all inside. Another good reason we need each other to have “permission” to speak about it freely. No one even asks me “How are you?” except for other patients. I’ve gotten so I cherish those words & hearing them is like an expression of love.

By: Linda

Linda — Fri, 04 Mar 2011 15:05:38 +0000

Thank you so much for your blog! I am a brand new reader but not to RA. I can’t tell you how many times I have gotten that question, “How are your feet?” I just want to scream, “It’s not just my feet!” I have pretty much stopped talking about RA and mostly suffer in silence with occasional complaints to my husband.

By: Kelly Young

Kelly Young — Sat, 11 Sep 2010 16:30:02 +0000

I won’t stop Pattie!But I do like to talk about the funny ideas we get when we talk to the world in this “new” way. The link to your blog did not work, so I’d love to hear back from you.

By: Pattie

Pattie — Sat, 11 Sep 2010 15:06:47 +0000

I kinda know how you feel. I do not have RA but my daughter has Psoriatric Arthritis. She was just diagnosed a month ago. I was always putting things on my fb page about how she was doing. At first I would have lots of sincere comments from friends feeling bad but then not so much. I started a blog for her so that family/friends who wanted to hear about it could choose to go there and read up. I believe that our blogs.. yours, mine, other sufferers are for us. The ones who are first hand affected by the illness. For us we can truly understand eachothers pain, frustration and misery. So don’t stop blogging! It may not cure your RA but it truly does help us feel like we are not alone!

By: Michelle

Michelle — Tue, 26 Jan 2010 00:43:44 +0000

Ok, I put in my url for my blog sight.

I started getting it setup and have only a short description of what I will be writing about but I used to blog on myspace for friends and realized that it was too confining. I have a tendency to get on my soapbox when I see injustices and love to bring out issues that will cause people to really think about their lives and hopefully help them to see the ability they have to make changes and be happier. So, here go I on my grand adventure of blogging. I hope that I can educate and also give everyone a good chuckle now and then. I have to warn you that I can be unconventional and am not afraid to ask the questions that others may be afraid to ask. We will see what happens,cause I love a good adventure!

By: Kelly Young

Kelly Young — Mon, 25 Jan 2010 15:53:10 +0000

Wow, Michelle.

“… some day there will be doctors that use these blogs to learn more about how not to dismiss a patient, and learn a more productive bedside manner. This is a form of educating and is, I believe, important to the future of our changing medical community” That is my fondest hope!

The other point is also good of course.
Also Michelle, you can make your name on here a link to your own blog if you put in the url. Then we can have a quick way to look up what you are up to…

By: Michelle

Michelle — Mon, 25 Jan 2010 15:41:28 +0000

Kelly,

Even if no one read your wonderful blogs, it would be okay because you write them to get out the emotional pain that would be buried and making you more sick. Blogs are not only informative and good for sharing information, but they are a healthy way to express issues that would otherwise eat your soul and cause more stress. I blog too, and I do it for my health. I don’t care who reads it, as long as I have a place to get rid of negative baggage that would otherwise do me harm. That it may help others understand and know they are not alone is a benefit! Keep blogging, because some day there will be doctors that use these blogs to learn more about how not to dismiss a patient, and learn a more productive bedside manner. This is a form of educating and is, I believe, important to the future of our changing medical community.