Comments on: My Quest for Answers to Questions About Rheumatoid Arthritis http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/ Bringing information & encouragement to fight RA Wed, 23 May 2012 22:43:45 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: debora http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-207975 debora Sat, 28 Apr 2012 00:36:02 +0000 http://rawarrior.com/?p=1041#comment-207975 I feel awful like i have the flu in all my joints. My head feels funny I have ra and other conditions. Lately I have chest pains on the left side and numbness in my left elbow.it seems to come and go. it is not all the time. But lately I feel awful and just want the pain to stop. Is there a dr avaibile how can help me for free. I need to know what is wrong with me.now. I feel awful like i have the flu in all my joints. My head feels funny I have ra and other conditions. Lately I have chest pains on the left side and numbness in my left elbow.it seems to come and go. it is not all the time. But lately I feel awful and just want the pain to stop. Is there a dr avaibile how can help me for free. I need to know what is wrong with me.now.

]]> By: Lynn smith http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-102856 Lynn smith Wed, 19 Oct 2011 22:30:22 +0000 http://rawarrior.com/?p=1041#comment-102856 A good doctor is worth their weight in gold. It seems like there are a lot of rheumatologists who had bad training, because it sounds like we've all met them. I had one tell me that the arthritis in my feet was caused by flat feet and the swelling in my hands by my thyroid condition so there was nothing she could do for me. She made me feel like a hypochondrial idiot. So what that the onset and combined symptoms were typical of RA. Thus I wasted a year of getting treated and suffering! And thus lies the frustration... A good doctor is worth their weight in gold. It seems like there are a lot of rheumatologists who had bad training, because it sounds like we’ve all met them. I had one tell me that the arthritis in my feet was caused by flat feet and the swelling in my hands by my thyroid condition so there was nothing she could do for me. She made me feel like a hypochondrial idiot. So what that the onset and combined symptoms were typical of RA. Thus I wasted a year of getting treated and suffering! And thus lies the frustration…

]]> By: kiah http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-86279 kiah Tue, 23 Aug 2011 22:41:14 +0000 http://rawarrior.com/?p=1041#comment-86279 hi what you have said is how i feel. im 20yrs old.. i first got told i have ra at 18. i am on methotrexate. it is so horrible this ra crap... i wish it would go away it have made my life so bad. i have a beautiful 2yr old daughter i have to have pain killers every day just to get trhough the whole day.... so i can go to the park and the beach, push her on the swing. it really disables you RA. im just worried beacuse i have read that it can kill you or permanitly disable you.. im just worried. i really dont know what it does. im too young to have this its to unfair no matter the age no one should get this crap. some days i cant even walk properly. or use my hands to turn a tap on. hi what you have said is how i feel. im 20yrs old.. i first got told i have ra at 18. i am on methotrexate. it is so horrible this ra crap… i wish it would go away it have made my life so bad. i have a beautiful 2yr old daughter i have to have pain killers every day just to get trhough the whole day…. so i can go to the park and the beach, push her on the swing. it really disables you RA. im just worried beacuse i have read that it can kill you or permanitly disable you.. im just worried. i really dont know what it does. im too young to have this its to unfair no matter the age no one should get this crap. some days i cant even walk properly. or use my hands to turn a tap on.

]]> By: kiah http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-86277 kiah Tue, 23 Aug 2011 22:31:29 +0000 http://rawarrior.com/?p=1041#comment-86277 Hi, im 20 yrs of age i have RA. im on the medication methotrexate.it is horrible to live with RA. it hate wrecked my life. i dont get to do what a normal 20yr old can do. i have a daughter she is 2, my RA flared after pregnancy. i had my daughter when i was 17, then found out i had RA a week be for my 18th birthday... my question is can RA ever go away? or will it disable me? Hi, im 20 yrs of age i have RA. im on the medication methotrexate.it is horrible to live with RA. it hate wrecked my life. i dont get to do what a normal 20yr old can do. i have a daughter she is 2, my RA flared after pregnancy. i had my daughter when i was 17, then found out i had RA a week be for my 18th birthday… my question is can RA ever go away? or will it disable me?

]]> By: Jane Hinrichs http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-79200 Jane Hinrichs Wed, 27 Jul 2011 20:07:51 +0000 http://rawarrior.com/?p=1041#comment-79200 Kelly, You and your daughter have made my day! Thank you!!! Kelly, You and your daughter have made my day! Thank you!!!

]]> By: Kelly Young http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-79194 Kelly Young Wed, 27 Jul 2011 19:59:09 +0000 http://rawarrior.com/?p=1041#comment-79194 Jane, I'm sorry RA found you. But it was nice that you found us. My daughter enjoyed looking at your paintings with me. She's an artist too. Jane, I’m sorry RA found you. But it was nice that you found us. My daughter enjoyed looking at your paintings with me. She’s an artist too.

]]> By: Jane Hinrichs http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-79183 Jane Hinrichs Wed, 27 Jul 2011 19:24:32 +0000 http://rawarrior.com/?p=1041#comment-79183 I'm so glad I "found" you. I've just begun this journey. I’m so glad I “found” you. I’ve just begun this journey.

]]> By: sheree http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-75407 sheree Fri, 08 Jul 2011 20:04:00 +0000 http://rawarrior.com/?p=1041#comment-75407 I'm always amazed,dumbfounded and left internally cussing to myself at times, when talking with R.A.Doctors. How little they seem to know about the symptoms of R.A. I've heard most of what was written from my own (former) R.A. Drs. A person tends to get a little offended by their behavior, at least pretend to be interested,stop making assine comments about what they think isn't hurting you and at least try to show some interest after all they are getting well paid for blowing you off. You really have to shop around for Doctors who have some desire to listen and help I’m always amazed,dumbfounded and left internally cussing to
myself at times, when talking with R.A.Doctors. How little
they seem to know about the symptoms of R.A. I’ve heard most
of what was written from my own (former) R.A. Drs. A person
tends to get a little offended by their behavior, at least pretend to be interested,stop making assine comments about what they think isn’t hurting you and at least try to show some interest after all they are getting well paid for blowing you off. You really have to shop around for Doctors who have some desire to listen and help

]]> By: Anita Manuel http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-73744 Anita Manuel Wed, 29 Jun 2011 23:24:57 +0000 http://rawarrior.com/?p=1041#comment-73744 I do not have RA myself but my sister does and I have been following her experiences for quite a few years. I remember the time when she was going to the rheumatologist who gave her methotrexate and others drugs and said it would be forever. Then someone showed up in her orchestra (she is a violinist) who had gone from being in a wheelchair and being fed to full health and is now the mother of three young children. She had discovered a doc who accepted that her disease was caused by a mycoplasma and could be treated with a particular low-dose antibiotic, I believe a tetracycline. So my sister Helen fired her rheumatologist (who wouldn't have anything to do with it) and talked her GP into trying it. Helen has been making steady improvement ever since and is overjoyed at the improvement. I don't see any information on this site about this treatment but I would be happy to get someone in touch with my sister if you would like to know more. I do not have RA myself but my sister does and I have been following her experiences for quite a few years. I remember the time when she was going to the rheumatologist who gave her methotrexate and others drugs and said it would be forever. Then someone showed up in her orchestra (she is a violinist) who had gone from being in a wheelchair and being fed to full health and is now the mother of three young children. She had discovered a doc who accepted that her disease was caused by a mycoplasma and could be treated with a particular low-dose antibiotic, I believe a tetracycline. So my sister Helen fired her rheumatologist (who wouldn’t have anything to do with it) and talked her GP into trying it. Helen has been making steady improvement ever since and is overjoyed at the improvement.

I don’t see any information on this site about this treatment but I would be happy to get someone in touch with my sister if you would like to know more.

]]> By: Kelly Young http://rawarrior.com/my-quest-for-answers-to-questions-about-rheumatoid-arthritis/comment-page-1/?show=comments-23852 Kelly Young Wed, 28 Jul 2010 20:10:51 +0000 http://rawarrior.com/?p=1041#comment-23852 I don't know if you've seen them all yet, but there is a "Tag" for "Spine" in the dropdown thing at the top of the page. Click the little gray arrow & click on the word Spine. Some of the posts there have more links on them to more scholarly articles on RA in the spine. Just like the DIP joint or sternum or larynx... a good doc knows about it. It's not rare. But I hear your frustration. & I think that's not rare either. I don’t know if you’ve seen them all yet, but there is a “Tag” for “Spine” in the dropdown thing at the top of the page. Click the little gray arrow & click on the word Spine. Some of the posts there have more links on them to more scholarly articles on RA in the spine. Just like the DIP joint or sternum or larynx… a good doc knows about it. It’s not rare. But I hear your frustration. & I think that’s not rare either.

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