Email a copy of 'Never Mind! 3 Lessons for Evidence-based Medicine and RA' to a friend
Loading ...
E-Mail 'Never Mind! 3 Lessons for Evidence-based Medicine and RA' To A Friend
Loading ... Loading ...7 thoughts on “Never Mind! 3 Lessons for Evidence-based Medicine and RA”
Comments are closed.
Kel,
Why do you consider asthma a “milder problem”? Isn’t that the same thing as other people regarding all arthritis, including RA, as the same thing as their grandmother’s arthritis? People routinely DIE of asthma, by slow suffocation, as with cystic fibrosis. And for others, routinely not being able to get enough oxygen, and being wedded all of life to inhalers and medications, is hardly a panacea.
Bob
whoops, I was clearer in the earlier post. Sorry, Bob! I think the original articles last year were saying “mild asthma” and restless leg syndrome and a handful of things that were just simpler and cheaper to treat than cancer. Sorry I was unclear – hazards associated w/ writing at 2 am. If I don’t do that tho, I’d hardly post.
Lessens from seeing evidence overturned
There are a number of responders and nearby residents who have already had, or will need lung transplants due to progressive restrictive and/or obstructive lung diseases due to exposure to the toxic dust.
Evidence based medicence can be very black and white and as we all know all too well our bodies and their reactions to this disease (and frequently many others) is not always so black and white. My blood work, except for slightly elevated CRP counts, has always been incredibly normal. Fortunately, I have a rheumatologist more willing to rely on my reported pain and disability and his clinical exam than on the blood work. At my last exam before deciding to put me on a biologic he said to me, well, your labs show no sign of inflammation, let’s see what your joints say, up on the table, please.
I am sitting here after two months on Humira with the pain in my joints reduced to just 5 joints (I can’t believe I can actually count them that easily now!) and that is incredibly slight. I have only one joint that has reduced range of motion. Where would I be if he only looked at the labs? I shudder to think! I don’t know how long this will last last but I will take every minute of it!
Today I saw a post on Facebook showing a hand severely deformed by rheumatoid arthritis that is completely fixed by taking collagen . I was so angry that this person was trying to sell a product giving what has to be false hope. Is this common? Allowed?
Yes, very very common. one of the reasons I started this site.
It’s so sad it makes our loved ones and associates think we choose to stay sick.