Newsflare: Better Than a News Flash

3 things I can’t wait to tell you!

More RA stories

Four new RA onset stories – click here. We now have at least 75 stories! And several more on the way! These are our stories in our own words. If you don’t have RA, they’ll provide you with a more accurate picture of what it is and what it is like. If you do have RA, they’ll help you know that you’re not alone. The thing people say to me the most when they write me a letter is “Now I know I’m not crazy.” Having RA can make you doubt yourself until you meet others who have similar experiences.

Central Florida RA meet-up

RA meet-up

This past Saturday, six brave girls got together for the first local support meeting in Central Florida! Several others said they’d attend next time, including a couple of guys. Watch for announcement about when and where.

And if you have a meet-up planned in your area, let me know so I can help get the word out. If you need help to get started, please also feel free to contact Arthritis Introspective. They are the experts and glad to help.

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Discount: Free Super Saver, Canadian or International Airmail on orders with a subtotal of $30+

Disclaimer: Please enter coupon code ShipmeforFREE before completing checkout. Discount applies only to Super Saver, Canadian or International Airmail shipments with a subtotal of $30+. May not be combined or substituted with any other promotion. Discount does not include products, taxes, or additional charges. Orders under this promotion may be delayed. Coupons valid through 5/3/2011 11:59 pm Mountain Time.

Recommended reading

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also http://www.rawarrior.com/kelly-young-press/

8 thoughts on “Newsflare: Better Than a News Flash

  • May 2, 2011 at 10:50 am
    Permalink

    I know this is not the place for my question, but I am not sure where else to post this. Thanks for understanding!

    What search terms do people use to find the most relevant RA outlets using social media (Blogs, Facebook, Twitter, etc.)? When I search “Rheumatoid Arthritis,” I often have to review several search pages before finding some great outlets. Is it because the pages don’t start with the word “Rheumatoid?”

    Thanks!

    Reply
    • May 2, 2011 at 9:36 pm
      Permalink

      The search engines like Google don’t always get it right – putting what’s more “valuable” on top although they say they try to do that. The best thing we can do is avoid clicking on spammy sites or ones that are just commericals and give the good ones more traffic so that Google will “learn” what pages have value.
      My advice when searching is to be as specific as possible in your search requests – there are thousands of pages about “Rheumatoid,” so use specific words about what you want to read about.

      Reply
  • May 2, 2011 at 10:53 am
    Permalink

    Hi Kelly,

    I’m 32 years old and have had R.A since the birth of my son when I was 28. I had a very bad flare last year that has severely affected both my wrists. I’ve had a partial wrist fusion on my left wrist because I ended up dislocating it. I still wear a brace on my right hand to avoid injuring it and making it worse. Your blog makes it easier for me to accept my diagnosis and move on with my life. I was in denial for a long time. I hoped it was anything but R.A. I still have days where I wish I would wake up and it would all be a dream. 🙂 Keep up the good work. Thank you!

    Reply
    • May 2, 2011 at 9:31 pm
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      I sometimes wake up thinking like that too Karen. I’m sorry about your wrists. Thanks for commenting. 🙂

      Reply
  • March 5, 2017 at 1:42 pm
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    Kelly – do you still hold the support meetings I’m central Florida?

    Reply
    • March 6, 2017 at 1:07 pm
      Permalink

      Dear Catherine, not in a long while but I’d love to if we could get help.

      Reply
  • March 6, 2017 at 1:31 pm
    Permalink

    I live in South Florida and would love to pm you. How do I do that?

    Reply
  • March 6, 2017 at 7:30 pm
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    I travel to Orlando frequently – would love to be part of a support group.

    Reply

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    Welcome to RA Warrior!

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    Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

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