I know this is not the place for my question, but I am not sure where else to post this. Thanks for understanding!
What search terms do people use to find the most relevant RA outlets using social media (Blogs, Facebook, Twitter, etc.)? When I search “Rheumatoid Arthritis,” I often have to review several search pages before finding some great outlets. Is it because the pages don’t start with the word “Rheumatoid?”
The search engines like Google don’t always get it right – putting what’s more “valuable” on top although they say they try to do that. The best thing we can do is avoid clicking on spammy sites or ones that are just commericals and give the good ones more traffic so that Google will “learn” what pages have value.
My advice when searching is to be as specific as possible in your search requests – there are thousands of pages about “Rheumatoid,” so use specific words about what you want to read about.
I’m 32 years old and have had R.A since the birth of my son when I was 28. I had a very bad flare last year that has severely affected both my wrists. I’ve had a partial wrist fusion on my left wrist because I ended up dislocating it. I still wear a brace on my right hand to avoid injuring it and making it worse. Your blog makes it easier for me to accept my diagnosis and move on with my life. I was in denial for a long time. I hoped it was anything but R.A. I still have days where I wish I would wake up and it would all be a dream. 🙂 Keep up the good work. Thank you!
I know this is not the place for my question, but I am not sure where else to post this. Thanks for understanding!
What search terms do people use to find the most relevant RA outlets using social media (Blogs, Facebook, Twitter, etc.)? When I search “Rheumatoid Arthritis,” I often have to review several search pages before finding some great outlets. Is it because the pages don’t start with the word “Rheumatoid?”
Thanks!
The search engines like Google don’t always get it right – putting what’s more “valuable” on top although they say they try to do that. The best thing we can do is avoid clicking on spammy sites or ones that are just commericals and give the good ones more traffic so that Google will “learn” what pages have value.
My advice when searching is to be as specific as possible in your search requests – there are thousands of pages about “Rheumatoid,” so use specific words about what you want to read about.
Hi Kelly,
I’m 32 years old and have had R.A since the birth of my son when I was 28. I had a very bad flare last year that has severely affected both my wrists. I’ve had a partial wrist fusion on my left wrist because I ended up dislocating it. I still wear a brace on my right hand to avoid injuring it and making it worse. Your blog makes it easier for me to accept my diagnosis and move on with my life. I was in denial for a long time. I hoped it was anything but R.A. I still have days where I wish I would wake up and it would all be a dream. 🙂 Keep up the good work. Thank you!
I sometimes wake up thinking like that too Karen. I’m sorry about your wrists. Thanks for commenting. 🙂
Kelly – do you still hold the support meetings I’m central Florida?
Dear Catherine, not in a long while but I’d love to if we could get help.
I live in South Florida and would love to pm you. How do I do that?
I travel to Orlando frequently – would love to be part of a support group.