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You have a wonderful attitude, Eliazbeth. It is so hard to accept limitations, and enjoy what you can still do, but it’s so necessary in our cases, unless we plan to give up on the only lives we’ll ever have and be miserable old ladies that people don’t want to spend time with! I’m 78 and have had seronegative RA for 54 years. Even so, I had as good treatment as was available in the early years, and started on Enbrel 10 years ago or I would be far more disabled than I am. My profile is on page 11–Lyn. It really angers me to hear so many stories on here about doctors who didn’t have sense enough to diagnose with anything other than blood tests, thus delaying so many people’s treatments. And, by the way, I was diagnosed LONG before the 80’s with seronegative RA and treated as vigorously as possible for the times, by one of the leading rheumatologists in the country, so if other doctors had done their homework they could have known!
It takes so much effort just to move around–much less do some actual housework. The stiffness, pain, and fatigue are overwhelming. I’m going through alot of anger with this because I also am insulin-dependent for over 30 years. It seems unfair that I would get RA on top of that.
My friends just do not understand the effort it takes for me to do anything and have fallen by the wayside. I have God and my two grown sons. I’m grateful for that much. Rheumatology appointment next week. I think at the very least we need to up the MTX.
I completely relate with Tonya! OMG it was like reading my own story. I still get pissed and I still try to figure out ways to do what I want to do. Stay tough, girl.
Thank you, i have not been diagnosed yet but I know I am a RN. I was trying to will it away. Going to Massachusetts General in March. I feel so sad and alone. My mom , dad and sister recently passed away. I am grateful that I had the abilitu to support them. My oldest sister knows about my pain. My young adult children don’t know yet, but it will be hard to understand that their stong, single parent mom is now so weakened.