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Loved reading these stories and feeling less alone in my struggle…thank you.
I am 44 and been diagnosed with RA and Lupus in 2015. Been on plaquinel. For the last 2 years my back has been hurting so bad like a bad period. I have seen 10 different doctors looking for help and they just send me to a different specialist. Had a hysterectomy, later a ovary removed, had bladder instills and on elmiron for they thought IC, then 2 colonoscopies, neurologist for back, a back surgeon, blocks done.. nothing has helped me. After 2 MRI on my back all they seen was early degenerated disc but said nothing to be causing the amount of pain I’m always in no matter if I’m laying down or on my feet. I have been taking lortab 10 mg now for 2 years 4 a day now and sometimes that isn’t even enough. I wanted fixed not on pain medication for rest of my life at 44!:( Now I found out my daughter who is 15 tested positive for RA. I need help for both her and I but no good RA DOCTORS in or near Gadsden, AL. 🙁 I too love my horses, kayaking and spending time with my family but now they say I always have a frown at cook outs and events. I can’t help it I say. But I am worried about my daughter now that I should be doing something for her. She’s on nothing and no one seems to care..