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Scary how so many things can be misconstrued. I feel bad for all the pain and fear people have to go through. I was tested over the course of nearly two years witha suspected diagnosis of MS–cleared, told I had B6 toxicity. Never really believed it, but moved on with my life because what else can you do. I had one doc do a blood test for RA and another sure it was Lyme’s–all negative. Never found out what it was–still get weird symptoms and got tired of being told it was in my head. My extended family tells me
it’s just anxiety, which is something that does make my symptoms worse. Still don’t know what the troubles are, but when I found out I was pregnant, I focused on that instead. Now baby is 18 months and I’m wondering if I should start the hell all over again or just let it rest. I’m letting it rest for now. If there is an obvious neon sign somewhere on my body, I’ll at least know to do something. Otherwise, I just deal with the little things as they come and keep trusting the Lord. Really, how far can a person take it when everyone says things are in your head,and you start to wonder if you’re nuts! If I ever get pain to the level you ladies describe, however, I’m not listening to ANY of them and am going to my grandmother’s RA doctor 2000 miles away!
Christy,
Autoimmune diseases can be suppressed by pregnancy. Maybe you knew that, but just in case.
True, there may be some real “nuts” but the percent of people with RA who’ve had a doc give that diagnosis is really too high to call civilized. Did you see the Hysterical diagnosis posts? If nothing else, you may get a laugh or two. Oh, and if you have pain you can’t explain, dear friend, find a doc who will listen. It can be grueling to do, but you must. All those babies are counting on us.
50 yrs old, diagnosed in 2006, also have back problems, and hepatitis-c, i’ve been recieving remicade, 6 doses each 6 wks, with 6 sulfasalazine tabs per day,also prednisone from time to time,
i do pretty well with these meds,,so far, was taking celebrex for 2 yrs, but blood pressure issues arised and i was taken off celebrex ( thank god ) i’m having terrible morning stiffness and pain, mostly in my hands and feet, also cold hands, white fingers, wearing gloves now , pretty much 24/7
buttons are out of the question, as i can’t button them,
my rhumey is fantastic, her name is dr kerry stone, she’s in norristown pa, anyone in that area in need of a good dr,,
she’s the one !!! she has been working hard for me, and making progress, it’s a complicated disease, and getting the right combination of meds is not an easy thing to do, with her help, my own strength, and the support of people like RA WARRIOR, i expect to eventually get hold of this thing,,and kick it’s ass !!!!
HI all!
I am a 34 year old female with agonising pain in thumbs, wrists, elbows are going out of shape so that i cannot straighten them any more. Previous bloods have come back clear so I am baffled? The docs aren’t doing anything about it either? I feel really tired on flare ups that last days, I cant lift myself off the floor, or open a jar of sauce when its bad, nor can I lift my arms above my head to brush my hair. I cant drive first thing i the morning and also have had to leave a property valuing job due to stiffness in mornings to which I was driving all day. I feel hot flushed, weak, and could sleep all day on flare ups, to which I am having the worst one to date now!!! My left elbow looks weird, it is all bent and wont go straight any more and now the pin has gone to my spine and neck-its so painful. I do not know what to do next?
Get your blood work done during your worst flare up. Do not wait. Mine only showed up positive for rheumatoid when my ankles and hands were swollen to practically twice their normal size.
good advice.