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I came down with Acute RA on a Christmas trip to Hawaii…that was awful! I went horseback riding and almost died the next day.
I saw a Rheumy the week after I got back, and was put on DMARDs immediately. I took only two weeks off from work while I was having all kinds of tests, and still can’t believe that I only took two weeks off.
My Rheumy didn’t tell me until the following year that 90% of his patients were bedridden for six months after diagnosis! So that’s why my GP wanted me to take a medical leave of absence.
Fortunately I could work from home and lie down and rest between conference calls. I didn’t travel for over six months.
I now realize that my RA is a milder, seronegative form that can be controlled by Methotrexate and Planquil only. I am very lucky that I don’t have to go on biologics. I can ride my mountain bike and swim.
BUT, this morning I woke up with fluey symptoms after sleeping for 14 hours and felt like crap for several hours. I know I shouldn’t complain, but it is still difficult to do things when I’m frequently feeling lousy.
Mt heart goes out to those who have been disabled by aggressive RA..that could have been me.
These stories are so funny because, it is exactly what I have been, and I am still going through.
This ailment or sickness we all have is a bummer.
My favorite saying, from people is “well i have that and i dont complain”.
WELL KNOW ARENT WE SPECIAL!!!!!!!
It’s like when I played football, “I DONT SEE NO BLOOD, YOUR NOT HURT”.
It’s like a freind of mine says “son if They aint been through it, they’ll never understand”.
I love this site, and all of you, who are challenged by this. In the words of the band Rush, FIGHT THE GOOD FIGHT EVERYBODY!!!!!!!!!!!!!!!
Thanks All
Ron
Funny, Ron. Thanks for commenting. 🙂
I am so happy I found this blog. I will be reading everyone story. thanks for this.
I am yet to see a rheumatologist but am adamant I do not want to take all the toxic meds I am likely to be bombarded with. I am using Apple Cider Vinegar which I am promised is a natural thing to cleanse my body and make it more alakaline. I don’t know if this will work but I am swallowing it anyway as it supposedly takes some time to start its magic. I had a stiff thumb (no big deal I thought). A week or so later I had an inlamed big toe and the underside of all my toes was quite painful. I trekked up and down the corridor (I am a medical secretary) asking GPs if it was a bunion. I was informed it was my style of shoes! A week or so later my shoulder and upper arm flared up and I just assumed it was a frozen shoulder and put up with it. This had started to ease when the right shoulder and upper arm began to be excruciatlingly painful and the left side tuned in again just for good measure. My wrists have flared rendering it impossible to move them because of the excruciating pain and stiffness and my ankle which swelled like a balloon and made it impossible to weightbear. Last night (after having a fairly decent day at work both hands swelled and became very stiff and the pain in my upper arms all the time is too painful to even talk about. I feel like my life has been turned upside down in just a matter of weeks and alongside childbirth I have never known pain quite like it. Slight sore throat this morning to go with the stiff painful hands but I eventually got to work though feel absolutely drained and constantly anxious regarding the next tiny pain that may flare up into a crescendo in no time at all. I type referrals all the time to consultant rheumatologists for patients but never until now have I ever actually emphasised with these people the way I am now. Quite horrific!