Bringing information & encouragement to fight RA
When I met my first rheumatologist, I left with a handful of prescriptions. One for folic acid. Really? Did I need a prescription for a vitamin? Doc said “to make sure it’s enough, yes, it’s a lot more than a daily allowance.” I already knew why over the counter supplements (OTC) are not considered as reliably [...]
Really important stuff that I read last week, while researching pain scales, will not be on the blog today. I’ve been thinking a lot about how differently a disease affects us and whether we can honestly communicate about that. When Dana asked for resolutions at the weekly #HCSM (healthcare communications in social media) chat, I said I [...]
If you either live with or study a rheumatological disease, then you know that pain is a ubiquitous symptom and an essential factor in evaluating disease activity. “Pain is a most important indicator of clinical status in rheumatoid arthritis (RA),” Arthritis and Rheumatism. While pain is the most obvious sign that something is not right, [...]
Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the disease will continue. When asked, I said that we could not wait around for that to happen; let’s work for [...]
Or give in to using a cane? Or pain medication? Or a handicapped tag? There was an interesting discussion about wheelchairs and canes on my Facebook post yesterday. At the same time, there were a few other discussions going on about pain medicines. There is such a wide range of needs. But there are some [...]
Did 2011 seem about four months long? If it were an all-you-can-eat salad bar, I’d want a refund. It went by so fast I think I only got to the pickles. This month I’ve been more sleepy and fatigued than usual. It might be recovery from traveling the last few months. Or it could be [...]
Two things I’ve been hoping for with all my heart, so I’m doing all I can If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some lucky people just have. When you’re actively hoping, you’re probably doing as much [...]
Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share. We have two endearing names for rheumatologists which I’ve coined over the years: rheum doc and The Wizard. Rheumatologists are the doctors who decide not to sneak out Osler’s infamous back door. I always [...]
Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Arthritis. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.
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