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The Cricoarytenoid Joint and Rheumatoid Disease

larynx in public domain

Speechless… the cricoarytenoid joint is commonly affected in Rheumatoid Disease Recently a small study from Brazil raised the topic of cricoarytenoid arthritis (CA), a little-recognized aspect of Rheumatoid Disease. In 2009, RAW first discussed CA with patients who expressed amazement that their vocal cord / larynx problems were related to their Rheumatoid Disease. There are […]

Rheumatoid Awareness: Judgmental Eye Rolls Versus Help & Compassion

store electric riding cart

Treated like you’re fine when you’re not A comment this week by Lisa sums up one of the most important reasons we need awareness for Rheumatoid Disease, and one of the hardest to explain to others. “RD awareness would mean that I wouldn’t be treated like I am fine when I am not. It would […]

Genetics & Rheumatoid Disease: More Complicated Than Cancer?

DJ & Kelly shadow

No one wants complicated answers, of course. But some answers are complicated, with multiple layers or causes. Like Rheumatoid Disease and childhood hearing loss. Instead of differing experiences of patients being  suspect, they should be valuable clues to answers we all seek. Answers and more questions The past few months have been a slow process […]

Vicks Vaporub Cure for a Disease That’s In Your Head Anyway

Vicks-vaporub

I got something free with my Chinese food the other night when I went to pick up my egg rolls: advice. It was the end of a long, hard, day. I’d pushed myself hard to be moving at all with harsh stiffness and sharp pain in over a dozen joints. We’d been out that day […]

Rheumatoid Symptoms Persist Despite Treatment: a Study in Juveniles (JRA / JIA)

funny-saying-jars

In spite of treatment advances including biologics, children affected by Rheumatoid Disease still experience pain, stiffness, and fatigue that impacts their ability to function. The disease may not be as “controlled” as many doctors presume. This may not be news to you as a patient or caregiver, but as these researchers point out, it needs […]

Could Divorce Be One More Pain from Rheumatoid Disease?

clown-fish

I’ve received several emails and messages from people living with Rheumatoid Disease (PRD) who have been divorced by a spouse, sometimes in part due to ways Rheumatoid Arthritis / Disease affects them. It’s sad to hear from a woman who can’t figure out how she’ll provide for her kids, or a mother whose kids were […]

Does Rheumatoid Pain Ever Wake You Up at Night?

sleeping-Kelly

Rest & Rheumatoid Arthritis / Disease have an illogical relationship Rest is one of the most crucial weapons in fighting Rheumatoid Disease (RD). Adequate rest is an important factor for most people with Rheumatoid Disease (PRD) as they push themselves to continue doing as much as possible. We’ve talked about significant sleep issues with Rheumatoid […]

What Would Rheumatoid Awareness Mean to You?

Rheumatoid Awareness Day - Groundhog Day

What difference do you think it would make if it Rheumatoid Disease were recognized for what it is by everyone – the general public, media and marketers, pharmaceutical companies, U.S. National Institutes of Health, the Centers for Disease Control and Prevention, the American College of Rheumatology, all healthcare professionals, your neighbors and your family…?   […]

Juggling Life and a Chronic Disease Like Rheumatoid

juggler-wikipedia

Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much […]

Hints of an Immunity Fingerprint: Bee Stings, Peanuts, and Colds

Knightro-UCF-pharmacy

What if each immune system is unique, so none respond exactly the same? Almost two years ago I told you about a phrase I’d coined, the immune fingerprint, to describe the unique way each person’s immune system responds to a similar or identical stimulus. I hope you’ll read that original post explaining it’s only logical […]

20 Essential Medication Safety Tips

medicine combination lockbox

Chronic disease patients are at greater risk for adverse drug events For those living with a chronic disease, safe medication storage and use is more than following directions on an occasional antibiotic or treatment for an acute illness. Both the types of medications and the number of different medications present safety challenges and put people […]

Together, We’re Neither Alone Nor Powerless

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Friendship is born at that moment when one person says to another: “What? You too? I thought I was the only one.” ~CS Lewis    Most of the time, it seems we’re pretty powerless to change things. As long as we’re alone, it might stay that way. But when we find others like us, the […]

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