Comments on: Parvovirus B-19 and Rheumatoid Arthritis: Who is the real fraud? http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/ Bringing information & encouragement to fight RA Thu, 24 May 2012 02:33:24 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Fred http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-215970 Fred Thu, 17 May 2012 16:23:49 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-215970 Journal after journal are publishing what has been known to some of us for a long time. This cured my Bechets Syndrome (aka. every other autoimmune diagnosis given to me). The gut, our stomach and intestines are a factory. The factory needs supplies and help. Probiotics and yogurt all the time without excuses will delay if not eliminate a huge amount of most peoples problems. Throw in joint health supplements Health food store and reputable probiotics with good fresh yogurt. Time and this regime has cured me. Mine started with the same diagnosis as everyone else, the rash, the fever, etc. It is your gut that is the problem. Some say virus, some say yeast, etc. but balance the gut system and you will stop the body from attacking itself. Journal after journal are publishing what has been known to some of us for a long time. This cured my Bechets Syndrome (aka. every other autoimmune diagnosis given to me). The gut, our stomach and intestines are a factory. The factory needs supplies and help. Probiotics and yogurt all the time without excuses will delay if not eliminate a huge amount of most peoples problems. Throw in joint health supplements Health food store and reputable probiotics with good fresh yogurt. Time and this regime has cured me. Mine started with the same diagnosis as everyone else, the rash, the fever, etc. It is your gut that is the problem. Some say virus, some say yeast, etc. but balance the gut system and you will stop the body from attacking itself.

]]> By: Fred http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-215969 Fred Thu, 17 May 2012 16:23:02 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-215969 Kelly, Journal after journal are publishing what has been known to some of us for a long time. This cured my Bechets Syndrome (aka. every other autoimmune diagnosis given to me). The gut, our stomach and intestines are a factory. The factory needs supplies and help. Probiotics and yogurt all the time without excuses will delay if not eliminate a huge amount of most peoples problems. Throw in joint health supplements Health food store and reputable probiotics with good fresh yogurt. Time and this regime has cured me. Mine started with the same diagnosis as everyone else, the rash, the fever, etc. It is your gut that is the problem. Some say virus, some say yeast, etc. but balance the gut system and you will stop the body from attacking itself. Kelly,
Journal after journal are publishing what has been known to some of us for a long time. This cured my Bechets Syndrome (aka. every other autoimmune diagnosis given to me). The gut, our stomach and intestines are a factory. The factory needs supplies and help. Probiotics and yogurt all the time without excuses will delay if not eliminate a huge amount of most peoples problems. Throw in joint health supplements Health food store and reputable probiotics with good fresh yogurt. Time and this regime has cured me. Mine started with the same diagnosis as everyone else, the rash, the fever, etc. It is your gut that is the problem. Some say virus, some say yeast, etc. but balance the gut system and you will stop the body from attacking itself.

]]> By: Kelly Young http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-15740 Kelly Young Tue, 25 May 2010 23:46:31 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-15740 KP: I did not think it was unwarranted - sometime the wait is months long. I always recommend calling around to see whether one has a wait/cancellation list. I have heard that parvo can elevate your Rf, but I don't know whether anything can elevate the CCP antibodies besides real RA. They are supposed to be very specific to RA. There is no guarantee, but CCP is a strong indication. It is possible that the parvo antibodies are there from a previous bout with it? Did anyone in your family have parvo? Maybe you had a mild case & did not realize it? KP: I did not think it was unwarranted – sometime the wait is months long. I always recommend calling around to see whether one has a wait/cancellation list. I have heard that parvo can elevate your Rf, but I don’t know whether anything can elevate the CCP antibodies besides real RA. They are supposed to be very specific to RA. There is no guarantee, but CCP is a strong indication. It is possible that the parvo antibodies are there from a previous bout with it? Did anyone in your family have parvo? Maybe you had a mild case & did not realize it?

]]> By: KP http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-15730 KP Tue, 25 May 2010 22:56:16 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-15730 Thanks for replying! I do have a copy of the report in front of me...not sure what to make of it though!! Parvovirus IgG - 6.5 (High) Parvovirus IgG - 0 CCP - 70 (High) RA Latex Turbid - 28.2(High) CRP - 1.6(Normal) Sed Rate - 1.6(Normal) ANA negative I know the comment about getting an appointment with RD's was unwarranted...so apologies for that. I am just too overwhelmed with this thing right now Thanks for replying!
I do have a copy of the report in front of me…not sure what to make of it though!!
Parvovirus IgG – 6.5 (High)
Parvovirus IgG – 0
CCP – 70 (High)
RA Latex Turbid – 28.2(High)
CRP – 1.6(Normal)
Sed Rate – 1.6(Normal)
ANA negative

I know the comment about getting an appointment with RD’s was unwarranted…so apologies for that.
I am just too overwhelmed with this thing right now

]]> By: Kelly Young http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-15721 Kelly Young Tue, 25 May 2010 21:39:33 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-15721 oh yeah, it's hard to get an appt because we don't have enough rheum docs. They are not paid as much as other specialists from what I hear. Plus it's a hard job. oh yeah, it’s hard to get an appt because we don’t have enough rheum docs. They are not paid as much as other specialists from what I hear. Plus it’s a hard job.

]]> By: Kelly Young http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-15720 Kelly Young Tue, 25 May 2010 21:38:19 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-15720 Hi KP, No, usually, it turns out to be one or the other - not 2 at the same time. Parvo is usually over in a couple of weeks or less. How long have you had symptoms? Did you have the Rf - Rheumatoid factor tested? Or the ant-CCP? Can you get a copy of your labs so you can look at them? If it's a new onset of RA, then it should be treated ASAP in order to try to get a remission. Sooner the better. Did you read the blogs about RA -tests? (Have a look in the Tagslist Dropdown at the top of this page. Then click on the tests link to see more articles.) I'd like to hear how it goes. Good luck & I hope it goes away!!! Hi KP,
No, usually, it turns out to be one or the other – not 2 at the same time. Parvo is usually over in a couple of weeks or less. How long have you had symptoms?
Did you have the Rf – Rheumatoid factor tested? Or the ant-CCP? Can you get a copy of your labs so you can look at them?
If it’s a new onset of RA, then it should be treated ASAP in order to try to get a remission. Sooner the better. Did you read the blogs about RA -tests? (Have a look in the Tagslist Dropdown at the top of this page. Then click on the tests link to see more articles.) I’d like to hear how it goes. Good luck & I hope it goes away!!!

]]> By: KP http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-15713 KP Tue, 25 May 2010 21:00:08 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-15713 Hi Kelly - I have been reading your blog for a while now, but posting for the first time. I just got my bloodwork back. The parvovirus levels seem high, the nurse said the doc thinks I have a new onset of RA. Do you know of cases where both parvo and RA are present at the same time? This is like a double blw for me...very scared, nervous..dont know what to do. I dont see my RD until june 10th...why is it so hard to get an appt with docs here in the US? Hi Kelly – I have been reading your blog for a while now, but posting for the first time. I just got my bloodwork back. The parvovirus levels seem high, the nurse said the doc thinks I have a new onset of RA. Do you know of cases where both parvo and RA are present at the same time? This is like a double blw for me…very scared, nervous..dont know what to do. I dont see my RD until june 10th…why is it so hard to get an appt with docs here in the US?

]]> By: Kelly Young http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-12592 Kelly Young Sat, 01 May 2010 03:46:13 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-12592 Al, I hope you find answers. That does sound confusing. Hopefully, a good rheumatology specialist can help sort it out. Sometimes, a second or third opinion is needed. Good luck to you. Al, I hope you find answers. That does sound confusing. Hopefully, a good rheumatology specialist can help sort it out. Sometimes, a second or third opinion is needed. Good luck to you.

]]> By: Al http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-12452 Al Fri, 30 Apr 2010 01:49:59 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-12452 Hello, I am posting because I'm trying to find answers for myself and I can relate to this all. I am a 26 year old adult female who had a test positive for Parvovirus B19 last May. I seem to have contracted it on the big Island of Hawaii where I was a volunteer with the National Park System. I had to end my term with the parks because I became ill there. I began to bruise easily on my skin and muscles and then got hiccups, had visual changes - floaters, static, and bright sparks, intense fatigue, swollen saliva glands and lymph nodes. Then the most apparent symptom, random myoclonic jerks and muscle fasciculations, (About 20 a min to start, now a year later, its more like 5 a day on a good day) started at which point I had to leave to go back to mainland America. After this, other symptoms emerged, a dry persistent cough, very dry eyes, folliculitis on the skin on my arms, upper torso, and neck which actually may be small vasculitis, low B12 level, a lymph node behind my ear that has been swollen for about 10 months, random pain in arms/hands/legs/abdomen, red/itchy palms, bad acne, muscle vibrations, waking up with numbness or tingling in the hands/arms, poor digestion, the diagnosis of an egg allergy and a few other allergies, dizziness, uncomfortable feelings in my chest and more. I have done everything I can to try to find someone who can tell me what is wrong with me or if there is any cure for me. Or at least a prognosis so I can get an idea of what my life is going to end up being like. My symptoms have generally become less severe since my illness began, but it's been a year since I got sick and I'm still not healthy enough to live a normal live, hold a job, etc. I have seen many family doctors, specialists, and I have even spent a week at the Mayo Clinic. Everyone I have seen has told me it was either stress or some unknown virus (I guess because they thought Parvo could not possibly give me the symptoms I had). My life is in ruins compared to how it used be, I am constantly putting up with random symptoms and I never know how I'm going to be from one day to the next. I recently found out that adult Parvovirus could present differently in adults than in children and not many doctors seem to be aware of it. I also found out that it could trigger an autoimmune disease. For the longest time I had no idea what was wrong with me and all the doctors discounted Parvovirus for many months even thought is was the first and only thing I tested positive for right after coming home, but now I have a hunch that it may all go back to Parvo. I am trying to find a specialist in this as no one has been able to help me and I really need help. The anxiety I am feeling over not being able to get any help and wondering if my body is deteriorating as I deal with this illness is so much to put up with. If you have any information, please email me back and let me know. Thank you. Hello,

I am posting because I’m trying to find answers for myself and I can relate to this all.

I am a 26 year old adult female who had a test positive for Parvovirus B19 last May. I seem to have contracted it on the big Island of Hawaii where I was a volunteer with the National Park System. I had to end my term with the parks because I became ill there. I began to bruise easily on my skin and muscles and then got hiccups, had visual changes – floaters, static, and bright sparks, intense fatigue, swollen saliva glands and lymph nodes. Then the most apparent symptom, random myoclonic jerks and muscle fasciculations, (About 20 a min to start, now a year later, its more like 5 a day on a good day) started at which point I had to leave to go back to mainland America.

After this, other symptoms emerged, a dry persistent cough, very dry eyes, folliculitis on the skin on my arms, upper torso, and neck which actually may be small vasculitis, low B12 level, a lymph node behind my ear that has been swollen for about 10 months, random pain in arms/hands/legs/abdomen, red/itchy palms, bad acne, muscle vibrations, waking up with numbness or tingling in the hands/arms, poor digestion, the diagnosis of an egg allergy and a few other allergies, dizziness, uncomfortable feelings in my chest and more.

I have done everything I can to try to find someone who can tell me what is wrong with me or if there is any cure for me. Or at least a prognosis so I can get an idea of what my life is going to end up being like. My symptoms have generally become less severe since my illness began, but it’s been a year since I got sick and I’m still not healthy enough to live a normal live, hold a job, etc. I have seen many family doctors, specialists, and I have even spent a week at the Mayo Clinic. Everyone I have seen has told me it was either stress or some unknown virus (I guess because they thought Parvo could not possibly give me the symptoms I had). My life is in ruins compared to how it used be, I am constantly putting up with random symptoms and I never know how I’m going to be from one day to the next.

I recently found out that adult Parvovirus could present differently in adults than in children and not many doctors seem to be aware of it. I also found out that it could trigger an autoimmune disease. For the longest time I had no idea what was wrong with me and all the doctors discounted Parvovirus for many months even thought is was the first and only thing I tested positive for right after coming home, but now I have a hunch that it may all go back to Parvo.

I am trying to find a specialist in this as no one has been able to help me and I really need help. The anxiety I am feeling over not being able to get any help and wondering if my body is deteriorating as I deal with this illness is so much to put up with. If you have any information, please email me back and let me know. Thank you.

]]> By: Alice http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis/comment-page-1/?show=comments-11138 Alice Mon, 19 Apr 2010 01:48:06 +0000 http://rawarrior.com/parvovirus-b19-and-rheumatoid-arthritis-who-is-the-real-fraud/#comment-11138 This is very interesting considering I had a rash that covered my body and my joints were achy I ran low fever lasted about a week. I just thought I had the flu and the rash was from a diff. detergent or body soap or such. I never went to the doctor for this. Two months later I went to the docter b/c my joints were still swollen and VERY painful had fatigue something fierce. The doc at the clinic was about 100 yrs. old, wearing a very bad rug :rotfl: , and said right away that I probably have OA so he did blood tests. When I went back the next week for results another doc said I have RA and OA and set me an appointment with rheumy. I never have mentioned the rash to any doc. Do you think I should? Could it be important enough to know about? ?:-) This is very interesting considering I had a rash that covered my body and my joints were achy I ran low fever lasted about a week. I just thought I had the flu and the rash was from a diff. detergent or body soap or such. I never went to the doctor for this. Two months later I went to the docter b/c my joints were still swollen and VERY painful had fatigue something fierce. The doc at the clinic was about 100 yrs. old, wearing a very bad rug :rotfl: , and said right away that I probably have OA so he did blood tests. When I went back the next week for results another doc said I have RA and OA and set me an appointment with rheumy. I never have mentioned the rash to any doc. Do you think I should? Could it be important enough to know about? ?:-)

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