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This awesome. I hope this will take hold in the US. I wonder when will it be enough for doctors to truly listen to us and to treat us aggressively as is needed. I will keep my eyes on this. Thanks Kelly
thanks Cammie. I passed on this post to the ACR on Twitter. I know they’ll see it. I hope there are people there who are willing to work with our new foundation. I think there are. Wouldn’t it create so much progress?
Dr. Akerkar’s opinions are refreshing and I hope that more doctor’s begin to develop this philosophy. In my battle with the disease, I have interacted with far too many rheumatologists who were simply going by the book. The fact that I was disabled or in pain seemed not nearly as relevant as how my symptoms fit with those that were expected.
Also refreshing is the idea that medical research should focus not simply on gaining knowledge but also on improving the lives of patients. While knowledge acquisition is certainly necessary to eventually improve the lives of patients, it should not be the ultimate goal in of itself.
Kelly,
I don’t know how I missed this posting in May, but today I clicked on the link, and it was such a welcome booster shot. You’re absolutely right that Dr. Akerkar and the steps taken by him and other colleagues to incorporate patient feedback with textbook guidelines, are what will produce better treatment options in the future for patients.
All of us need to validate your efforts to push this along….you are our RA and JRA advocate, and we need to support you in any way we can. Thanks for being our beacon, though!