Information & encouragement to fight RA
I read so much RA info that all mentions…
Short term, Long term, High dose, Low dose.
“They” never say or follow those terms with what each is considered to be. I think these are important and should be included ea time. So our warrior…
Can you influence such a chang in info? Thank You
This just seen on Lucianne.com
which is a credible web site.
I am new to this board. Does anyone have info re this?
Thank You for the helpful breakdown in pdf. I would like to post or share just one maybe on FB if you can make that an option? The most important point I believe in is… I try hard to explain that I have RA! Not rheumatoid arthritis. RA is sooo much more and it is diminished by the word arthiritis. I am tired of ppl saying excersize helps when a block walk puts me in bed for a week. I went thru yrs of being called a drug seeker. People saying everyone hurts when you reach a certain age so I accepted it as normal. I did not complain and when I did people did not understand. They cannot see that super active person they have always know me to be as anything else. Don’t know how I will feel day to day makes me undependable. Labels on and on. On the outside I am cheerful, smile etc lest I be considered negative.
On the inside I feel like a bitter old woman. Way beyond my yrs. Thank You for allowing me to vent. God knows husband is tired of hearing it and no one else wants to.
I think the name should be changed to RAD.
FYI – Found out friday Oct 7, 2013 Medicare basic plan b is no longer covering orencia infusion because it is available by injection. my rheumy told me she had been notified by medicare on this. medicare could not confirm or deny and referred me back to my provider to figure it out. it will definately not be covered in the new year.
I have just recently found your website and all I can say is WOW! Thank you so much for all you do. I don’t get alot of time for researching my own disease Feltys syndrome (I’m also 24/7 caregiver to my mom who has Alzheimers Disease) and have recently started my own blog about living with both, so I get how much time you have spent here. It is an amazing site and one I will be using regularly. Great job and thanks again for all your hard work. If I quote you I will definitely spell your name right and I’ve already posted a link. Kuudos!
Has anyone else got NODULES ? Yes Rheumatoid Nodules
I have on elbows and one on under forearm.
I have a 6″ tumour on lower back L4-L5.
Today I saw ortho surgeon who wants to cut it out. He thinks yes it could be a rheumatoid nodule, particularly as I sit all day in my wheelchair as I cannot walk.
Google search says try steroid injection/s first. Often Methotrexate can cause or make worse, Rheumatoid Nodules.
Surgery for me especially a 6″cut up my back/spine is dangerous for infections and healing.
Anyone else ?
I want to thank you for developing your site Kelly. I am new to the worl of RD and this site has been one of the most comprehensive sites I have come across. I am an egg head so when I was diagnosed in July 2015 my search began. I learned what all the tests were, what they meant, all current studies on autoimmunity and inflammatory conditions. All excellent information, however, your site adds the human elimant. What it is like from a patients perspective. Thank you for your dedication. I would like to add that one of the challenges I have not been able to address is counselling.
I am a triple A personality type. I have been working as a Financial Planner for 20 yrs and own a retail pet supply store. So twelve to fourteen hours days were the norm. In seven weeks, I have completely changed my diet, put my business up for sale, sold my book of business (with the option to work when I can). The most painful change was giving up my Pomeranian. I could not pick him up or do his grooming etc…With all that has happened in the last few weeks it has been the most difficult adjustment for me.
I am the doer in my life. I have three adult children and a husband trained to do nothing..I desperately need to talk to someone who knows about rheumatoid disease. Do you have any recommendations?
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