Professional Rheumatoid Arthritis Patient: RA Warrior on the Road
A Window into the Life of a Professional Patient
Tuesday morning I watched my clock tick up to the alarm time of 6 a.m. I hated to get out of bed early. It is my comfortable place. In years past, I eagerly shot up at that hour regularly to garden. But no longer.
These days, I don’t want to move because I will find out where it hurts. So I try to absorb the fluffiness of the feathers into myself. I want to save up the comfort and take it with me.
Tuesday, I dragged myself to the kitchen sink to wash my hair. It takes about an hour for me to wash and blow-dry, so I only do it 2 – 3 times per month. But I feel like a princess. Compared to when I remember I doing it every 6 months!
I was out the door at 7:39. Victory – only 5 minutes behind!
Uh-oh. Big problem. I forgot breakfast. No food, no Advil. I forgot my banana. My daughter brought me a Pop-Tart, just in case. Sometimes, it’s like she’s the mom. Too much sugar I tell her; only if I get desperate.
I have my first appointment of the day at 8 a.m. The physical therapist and I discuss a variety of topics and I try to tell her about my new blog. She’s trying to understand what Rheumatoid Arthritis is. I appreciate her effort.
My second appointment has been moved up to 9:45. So, I do the math and figure out there is time for a quick BOGO egg biscuit at McDonald’s. I force myself to eat it so that I can finally take my Advil and vitamins. (It’s just too hot and tasty, you know?)
We shoot down I-95. I’m early to the endocrinologist: just the usual, in and out. Weight, vitals, and meds list. Pulse high from coffee. She laughs about it.
No mention of RA. Is the nurse even curious why I can’t walk right? Weird. I know it’s all in my chart.
The next appointment is at 10:50: the good internist. Once again: weight, vitals, and meds list. Pulse much lower already. We laugh about the coffee again. New blood orders.
There are still errands to run and chores at home, but a load is lifted. I feel free as a bird. I won’t have another day like this one for at least a couple of weeks.
- Professional Rheumatoid Arthritis Patient, part 2: Fired!
- The Life of a Professional Patient, Blog #3
- Rheumatoid Arthritis and Basilar Invagination
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