Rheumatoid Arthritis and Basilar Invagination

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Nicole bradshaw post

The story of the courageous and cute Nicole Bradshaw

Imagine cold sharp screws digging into your skull while you are wide awake. No, it’s not an early Halloween movie. It’s Nicole Bradshaw’s autobiography.

This vibrant Australian young woman has lived with Rheumatoid Arthritis since childhood. She became accustomed to pain, surgeries, and medications. Her courageous spirit and sense of humor kept “it all under control, or so she thought.”

And then one day, as she puts it in her book, “her head fell off!”

She writes about herself: “Suddenly and when she least expected it (like you ever would), her head fell off. Just like that! Nicole had a basilar invagination… (this) occurs when the odontoid peg (that’s the little peg your head sits on) moves up through the base of your skull. Nicole’s did just that, and was touching her brain stem and spinal cord, causing her to lose strength in her legs and arms and feel indescribably weird.”

Nicole has written the story of her recovery from this episode and her life with the disabilities of Rheumatoid Arthritis. At this point, Nicole’s memoir is self-published online. She is hoping to attract enough attention to have her story published and “end up on Oprah,” she says.

I hope you will check out her website Has my halo slipped? You can read the first chapter of her book online for free. Perhaps you will want to mention her book venture on your blog or twitter. (Or you can post to FB or twitter with a button below this post.)

Basilar Invagination

In case you are curious, here are a couple of links that will help you learn more about this rare and serious complication of Rheumatoid Arthritis. Also, please read the comment about chiropractic manipulation and RA that I wrote in response to Viesta on a recent post. It is important to take precautions if you have Rheumatoid Arthritis in the cervical spine.

Wheeless Orthopaedics Textbook with x-ray images

Cedars-Sinai Medical Center

A doctor’s description of the condition and its treatment

Courageous warriors against Rheumatoid Arthritis

This is the first in a regular series of profiles in courage. RA Warrior will feature the heroic tales of real RA’ers who fight RA every day. This is what I asked Woman’s Day to do. But, you know what they say, if you want something done right, sometimes you gotta do it yourself.

Recommended reading:

Baloney About Rheumatoid Arthritis

Summer Read: American History story about character and disability

Rheumatoid Arthritis Can Leave You Stuck in Orbit

NOTE: Your comments are an important resource for future readers of this post in the months to come. Please find the comment link below each post.

Click here to read all the comments or add yours!

Kelly Young. All rights reserved.

This entry was posted on Thursday, September 10th, 2009 at 8:41 am and is filed under RA Education. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.

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