Rheumatoid Arthritis Progression

The paradox of Rheumatoid Arthritis progression

Rheumatoid Arthritis Progression ToolThe term rheumatoid arthritis progression requires some explanation. Progress is the opposite of what we observe when rheumatoid disease evolves. It is the disease that progresses, not the patient. So the advancement of the disease actually leads to the worsening of the patient’s health.

The other obvious problem with the term rheumatoid arthritis progression is that it uses the popular but inaccurate phrase “rheumatoid arthritis.” This makes it sound like the disease is a type of arthritis, when arthritis is actually only one symptom of rheumatoid disease (RD).

What is Rheumatoid Arthritis progression?

Vocabulary aside, what is rheumatoid arthritis progression?

Rheumatoid arthritis progression describes ways that the disease develops and evolves in a particular person with rheumatoid disease (PRD). RD may progress gradually or suddenly in an individual PRD. Or it may do both things at different times in his or her life. Disease activity may be obvious or subtle. Disease progression includes both musculoskeletal related problems and other systemic disease involvement, such as cardiovascular, lung, eye, or skin issues stemming from the RD.

Searching for answers on Rheumatoid Arthritis progression

People who are new to RD or who care about a loved one with RD usually ask: What is going to happen next? How disabled could I be? How long does that take? What about remission?

I searched too. As I read books from the library and research articles online, I remember learning about common patterns in disease progression. But over the years, I’ve mostly learned from you – from actual people with rheumatoid disease (PRD).

And I have become confident that RD is a very diverse disease with many distinct patterns.

And, the progression of RD is not only different between PRD, it is also likely different in the same person over time.

My example of Rheumatoid Arthritis progression

Rheumatoid Arthritis Progression ToolThe example image on this page shows my own disease progression so far. For many years, I lived with a flaring disease pattern, being absolutely fine in between times. Although I was not diagnosed during that time, the symptoms were identical to those at diagnosis.

I was diagnosed after the disease spread to every joint over several months. After diagnosis, I have not experienced any flaring and remitting patterns, only constant disease activity, with changes in which joints are worse. However, the disease has very noticeably evolved over the past 11 years so I tried to include that.

All of my systemic disease issues have been addressed by non-rheumatologists, but I’ve only included those that are definitely RD related. Since I have not responded to treatments other than steroids, my graph does not show a sharp drop in disease activity that other graphs might show.

A Rheumatoid Arthritis progression tool for you

The image on this page is an example of a tool you can print to illustrate your own disease progression. You may freely print as many copies as you need. Click here to download the tool and read all of the instructions and helpful tips to use the tool.

HOW HAVE YOU EXPERIENCED RHEUMATOID ARTHRITIS PROGRESSION?

WAS IT DIFFERENT THAN YOU EXPECTED?

Click HERE for the free Rheumatoid Arthritis progression printable tool. Stay tuned for the next free tool.

Recommended reading

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also http://www.rawarrior.com/kelly-young-press/

6 thoughts on “Rheumatoid Arthritis Progression

  • November 22, 2016 at 4:24 pm
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    Dear Kelly:
    I heard about your blog on Ted Talks with E-patient Dave. I have one quick question for you. What is the nuclear bone scan website that converted your scan to inflammation markers?
    Thank you!
    Sam-Physical Therapist and Program Professor-PT Assistants

    Reply
  • November 22, 2016 at 9:19 pm
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    Interesting idea to do a lifetime chart. I might give it a run to see if it works out. I know the worst and I know now (better) so it is an interesting idea.

    Reply
  • February 17, 2017 at 12:19 pm
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    So glad you back with us.! I missed you and was concerned for you. Since turning 65 I had to quick taking Humira (which was an ok med for me) because they won’t pay for the patient to inject self. So now I need to do infusions. I have had 3 different ones and they all affected my liver counts. But now am on rituxin which is a 6 hour long infusion. YOu take it one day wait 2 weeks and do it again. I had my infusion in November. Doctors say 4 – 6 months until next infusion. I havent had to have it yet and am actually enjoying my days with a little spring in my step. Now sometimes I do too much and am tired the next day and hurt from pushing to hard. But I am not so tired each day that I force myself to go.
    So so far this is good. Just had shots in my bursae on each hip 2 weeks ago and they did help.
    I hope your shot at least lets you have some joy in your life.
    Warmly,
    Steph

    Reply
  • February 17, 2017 at 6:35 pm
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    I was diagnosed four years ago this January. All my joints are affected including my jaw and excepting my knees. I have a constant disease activity. My feet are the worst making it difficult to walk. My knuckles are a mess. I am on methotrexate injections, plaquenil, meloxicam, methylprednisolone. I am writing because I read your recent blog on injections. When my RDgets unbearable I use the Medrol dose pack.

    Reply
  • February 17, 2017 at 6:37 pm
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    I use the Medrol dose pack and I feel like a new person. Wish it would last. Thank you for your blog you are an inspiration to so many.

    Reply

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    Welcome to RA Warrior!

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    Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

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