Comments on: Rheumatoid Arthritis Treatment Debate

By: nina trejo

nina trejo — Tue, 07 Sep 2010 14:52:24 +0000

have you written about antibiotic treatment for ra?what are the timeframes and doses for minocycline?

By: Theresa

Theresa — Sun, 17 Jan 2010 04:03:30 +0000

Kelly,

I just wanted to take a moment to echo what many have all ready said. Thank you! Thank you for taking on this topic even if it was hard for you to voice. You did it with respect and tact! This is a subject so close to my heart because I deal with my own RA and also deal with the care of JRA for my daughter. For myself I dealt with YEARS of denial and did not care for myself. I still waiver at times and just plain out get tired of having to treat my RA however.. I have also paid for it. I am in my early 30′s and my hands look like I’m 90! I didn’t “feel” all that bad, but when I started feeling bad the progression was all ready much worse than had I made the choice to treat myself when I was diagnosed.

I feel like I could go on and on, but the biggest point I can make is what has all ready been said – TAKE the time to study all your options, the pro’s/con’s and talk to your doctor before going 100% on your own, the damage can be done without you knowing and there is some hard and real truth in the fact that your heart IS affected by your RA!

Thank you Kelly and all those who are brave enough to comment and be real here!

By: URandomnessK

URandomnessK — Sun, 17 Jan 2010 01:01:50 +0000

Inez, that makes more sense I agree, I rather not die from this disease, I rather die of natural causes decades and decades and decades from now. Maybe with the advances in treatment we will one day have that choice! That would be very exciting. Take care, stay well!!

By: Inez

Inez — Sat, 16 Jan 2010 18:54:10 +0000

No I don’t want to die, it would be good if we could have a choice of how we die not when we die

By: URandomnessK

URandomnessK — Sat, 16 Jan 2010 00:48:41 +0000

Inez, your comment is concerning to me could you clarify? Do you mean you rather die than deal with the disease? or you rather have a choice in general about death. Sorry, it is not always clear in online environments. Stay well.

By: Tina R

Tina R — Sat, 16 Jan 2010 00:04:21 +0000

Have lot’s of Dr’s. I did get a new one – an endocrinologist for the Addison’s, have an internest as my gp, a neuro, and my rheumatologist. I am going to UT Southwestern to get a second opinion in Feb. – to a rheumatologist. Thanks for all you do to keep us informed.

By: Mama

Mama — Fri, 15 Jan 2010 22:55:18 +0000

I’ve got an aunt who has pretty serious RA, so I have a fairly good understanding of how it can affect someone’s life. Thanks for having the courage to share your experience with us!

By: Inez

Inez — Fri, 15 Jan 2010 21:51:19 +0000

I would rather just die in my sleep, it would be good if we had a choice.

By: Shelly via facebook

Shelly via facebook — Fri, 15 Jan 2010 18:30:36 +0000

I suppose it depends on the individual and what works for them. I prefer to go as natural as possible right now. I watched my father suffer with COPD and the effects of prednisone alone were horrible. I would much rather die of heart disease than liver disease or shut down kidneys after your body bloats from all those drugs with the even worse side effects. There is something to be said for quality of life. My issues are not so bad that I cannot function, but I will not put even more poison into my body to cure a disease that would ultimately take longer to kill me than the meds would…. Sorry, that’s just the way I feel.

By: Sheila via facebook

Sheila via facebook — Fri, 15 Jan 2010 18:29:23 +0000

I agree completely with you as well Kelly. Keep up the good work that you do. You are very imformative. The work that you do to keep us all informed must take you hours. I find you are a very helpful person who goes out of the way to help others. People should always take medications as prescribed! If you want to add other herbs, check with your doctor to make sure they wont interact with the prescribed meds. I take Flaxseed oil and fish oil which also helps me.