Email a copy of 'Rheumatoid Awareness Day Blog Carnival 2016' to a friend
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Hi Kelly – I so understand how difficult it would have been to read through all of our posts and to feel and recognize so much of the pain and the truth about those of us on similar journeys.
My own chronic illness is chronic fatigue and yet I can relate to so many of these RA/RD facts – from the invisibility, to the lack of treatment, to the lack of response to treatments that work so well for some including the things we can do on our own such as juicing and major (major!) dietary changes, to the irregularity of symptoms and how they are different for all of us and for me from one day to the next.
Thanks for all that you do. And thx for linking to my post, I feel really honored to participate in your education and awareness raising!
Hi Kelly,
Thanks for doing this. Our rheumatoid disease is so complex and affects each of us differently that I sometimes wonder why it is still considered one disease. Your summary of the blogs certainly makes the complexity of rheumatoid disease obvious.
My name is Sue. I relate to every post here. The worst is daily pain, mess that once worked stopped working leaving me on a redicul us high strength of pain medicine just to get out of bed to do something. I am embarrassed on these paid Ned’s and don’t want others to know. Reason maybe because I don’t have a friend or relative ( except 1) that understands why I can do much house cleaning, going places… Resulting in no help from those you thought were your friends. But I understand too, that they can’t see it, they don’t know how much pain I’m in! I’ve even lost friends and relatives. That adds depression to everything else! Doctors have seemed to have given up. I was a registered nurse and the doctor that over prescribed me prednisone causing me brittle bones with a bone density of -3.3 change his medical records!! So going to a new RA Physician asks for old records don’t get truth! Is there really any help? I believe not! Sorry this was not a positive post! Truthfully, the only times I can feel no pain, anxiety, depression and feel my best if if I smoke a few puffs of marijuana at night. Something I can’t afford! Living with a invisible disease has been the hardest thing in my life!
Dear Sue I just read your posting..I’m not sure how I found you on this site.(lol)
But I completely understand your thoughts and feelings. I feel so alone sometimes I get mad when I wake up, because im so
tired I can harly get out of bed. Not to mention the amount of pain. No one could understand unless they were in our shoes I dont know anyone else who has this, I was wondering if we could email each other for support. My email is 725zola@gmail.com if anyone from here wants to w rite me I would like that also. Sue if you write me please ID yourself so I would open your mail bye for now and GodBless. Jan S
Leah please allow me conversations with these women I need help.
Hi. I’m Pradyumna from India a developing country. I have fought a ridiculous war with pain and poverty since I made my debut on the earth. I had faced the unforgettable disease the Rheumatoid Arthritis when I was perhaps 3 years old. The disease diluted my childhood with acute joint pain. I get a neak name dukha( the sadest one). It pined my heart and sure it’d continue through out my life. It was aggravated from the toe to knee till I reached 18. yes i had bedridden for 10 months at the age of 10. Every year I had similar problems and I had unexpected tour to hospital. But the real challenge entered with all the fate when I was 18. Being a very optimistic guy, I have tried my best to make myself fit. I tried for Indian Naval service. Though I had cleared physical and written competition, could not succeed. I had an accident and both my wrists injured. I suppressed the fact before my family for few months. I went to orthopaedic doctors for that, but they started treatment for RA. But the Irony is they prescribed pain killers those used in cancer. When I came to know from a medical store, I had severe psychological disorder at my degree exam. And eventually the aggravation of disease increased to all small joints when I was preparing for a government job. At last crossing all the huddles I get a job with a new stage of disease frozen soldiers along with all previous symptoms I had. Now I am at the age of 33years old. But no better than an old man of nineties.
The abovementioned story is my real story. Yet I am happy with courage that If I get a good physician, I’d be fit and marry a beautiful lady. And have dance with her in all marriage parties of the juniors of my childhood friends.
I had developed severe knee pain and tenderness in knees at the age of 32. The specialist doctor told me after few tests that I had rheumatoid arthritis and that I would have to take medicines for life. I was in tears.
Thankfully my homeopathic family doctor told me I am perfectly fit and fine. We again did the tests and reports were normal.
She gave few homeopathic medicines for couple of weeks, few exercises, vitamin D shots and calcium for around three months and I ws back to normal. My findings are as under:
1 ) First step to any medical problem: TRUST AND POSITIVE THINKING. Keep saying to yourself you are perfectly fine and that you WILL RECOVER. and everything falls into place.
2) Believe in yourself more than any doctor who scares you. Believe that there is a solution for every problem.
3) Our body has its own natural healing techniques and sometimes we only complicate things by going for unnecessary tests and medicines.
4) Try a foot soak. It can work wonders! Soak your feet in warm water mixed with a cup of epsom salt. epsom salt has the ability to flush toxins.
5) Eat lot of calcium-richfood. Eggs, spinach, bananas, sesame seeds , drumsticks, etc.
6) Go out in the morning sun and take a nice sun bath for minimum twenty minutes daily. This is especially for housewives who generally miss the morning sun..That ensures proper Vitamin D levels..
7) Last but not the least PRAY AND STAY HAPPY. Illnesses are caused only by wrong thinking and vitamin deficiencies . Take care of both these aspects and you shall be fit and fine. Nothing is better than your own inner calming spiritual talks. Try yoga or meditation for that purpose or a daily ten minutes positive affirmation prayer. This is applicable to any disease in the world.
All the best and God bless!