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Wow! This is a very encouraging read, Kelly. She’s an example we, RAer’s, can follow.
Thanks for this and may God bless you always!
Thank you for sharing the story of Ruz. It’s uplifting!
Thanks so much for this information on a great actress. It does give me hope and as always you and the other warriors do too. I am sitting here right now with quite a bit pain in my hands and shoulders and yet I know I am not in as bad of a shape as others (nor myself a year ago for that matter.) Just living with it while I live my life.
Thank you for your research kelly. I have spent many years in and around the music business. My father was a jazz drummer. I watched his fingers mangle slowly and his joy fade due to what I now know as RA. My vocal chords are affected by RA. Rosalind was a class act and like kathleen turner proved that RA can’t break the spirit without God’s active force.
I’ve always admired her, in fact I had a cat named Roz! and the other Lucy. Strange it was when I discovered they BOTH lived with RA.
Thanks again for another great post.
Auntie Mame has always been my favorite movie. I wanted to grow up and BE just like Auntie Mame the character. I never knew that Rosalind Russell had RA. Now I just wish I had her determination and outlook. No matter how much information I have, this disease just seems to confound and confuse me. It’s not even predictable from one day to the next, even with the wonder drugs we have today. My heart goes out to those that have had to endure from the past, and my hope goes out to those of the future.
Candles for Camp
Candles for Camp
I will be selling candles and accessories for the 2011 season of “Camp JRA”.Camp JRA (Juveniles Reaching Achievement) is a special place where children with arthritis and other rheumatic diseases can have fun, learn about their disease, and form social bonds with others who share their challenges. Camp JRA is a six-day residential camping experience for children ages 8 to 18. Campers participate in a variety of activities designed to provide opportunities for personal growth, improved self-reliance, independent functioning, and development of leadership skills.
Please join me in supporting The Arthritis Foundations, Candles for Camp JRA by calling me @ 570-903-7319 or going to the link and typing in Arthritis Foundation at check out. They even have a hand-poured candle especially made in honor of the Arthritis Foundation. This is my brother Jon-Jon Johnson’s Camp JRA project this year. He is 17 and suffers from Juvenile Rheumatoid Arthritis. Thank You Very Much
Sincerely,
Jessamyn Reinhard
Order from anywhere in the world at:
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Thank you Kelly for buoying us all up with this great tribute to a RA Warrior we can all admire! I have never seen Auntie Mame; it’s on my to-do list now.
What does her arthritis center at UCSF offer?
http://www.rosalindrussellcenter.ucsf.edu/index.html
Thanks. That link is in the post. Did it not work? I’ll go check it.
Thanks Kelly for the link. Great info.! Interesting article on the left column about Gender Differences. It quotes, “The investigators also found that women who are afflicted with severe RA are more likely than other female patients to come from families in which males also have been affected by the disease.”
RA has been in my family for at least the last four generations, including me, and including my Great Uncle. All from the same family line. This is interesting information about the role of genetics and RA, in particular, Severe RA.
I couldn’t fit any more in the post – it’s longer than I usually post already – but they do a lot of research apparently. It seems like a good place to explore. That one you found is fascinating. I absolutely believe that genetics will be a key to figuring out how to stop RA.
Thanks for telling us about Rosalind, but I don’t consider her a hero. I consider you to be one, for spreading awareness of the real RA and not making it a lie.
Sorry she is gone, she was a real warrior. Great post, Kelly!
This site helps my wife Jan more than anything else she does. Education is key to getting a grip on RA. This site educates RA patients!! Thanks!
It just so happens that Dr. Ephraim Engleman who was Rosalind Russell’s Rheumatologist is celebrating his 100th birthday. You can see a story about him on the CBS affiliate in San Francisco (http://bit.ly/eTkIVg).
He was the founding Director of the Rosalind Russell Medical Research Center for Arthritis at UCSF in 1979. According to the CBS story, “The Center was established by the U.S. Congress in posthumous recognition of the actress who suffered from the condition and who became America’s foremost spokesperson for arthritis.”
Dr. Engleman was also integral in the establishment of the National Institute of Arthritis Musculoskeletal and Skin Diseases (NIAMS), which is one of the main institutes at NIH that funds arthritis research.
In 2009, Dr. Englman established the Engleman Endowment to fund the ACR Research and Education Foundation Resident Research Preceptorship, which invites the best and brightest in Internal Medicine to consider a career in rheumatology – http://bit.ly/dRSP6B
Wonderful information to add. Thanks, Steven.
I don’t know whether to cry, smile, or be proud of “Roz”. Certainly she should be recognized by all of us as a great humanitarian. However, sometimes I think we all of us do a disservice by hiding our pain behind our smiles. I do it myself…often. I’ve come to the realization that most people think R.A. is a little arthritis and they have it “too”! I am not sure that I’ve told more than one person about my disease and gotten a response that held any empathy. (including my own daughter who said, well your not going to die are you)? Once I told a fellow teacher…she said, “I am so sorry my mom has it. She suffers so terribly”. That’s it, everyone else looks at me with this, oh that’s um a shame! We need commercials that don’t portray these miserable drugs like a miracle. Lets all get together and dance in a meadow together right? :-0″
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It occurs to me that show business relys on it’s people being young and pretty and active. If there is any thought someone might have a chronic disease, then that person probably won’t be considered, much less hired, for a part in a picture or legitimate theater. I wonder if that is the reason Roz Russell, Kathleen Turner, James Coburn and some others don’t tell about their RA until their joints, especially their hands, are so gnarled they can’t be hidden? They need to work, so they hide their disability. On a smaller scale, how many of us hide our illnesses from people in order to get or keep employment? It happens to us, too – just on a different level.
I’m blessed to work from home, so I don’t have to really worry about it much – just have to juggle things so that I will have work done by deadline no matter how badly I’m affected.
Some of us are old enough to remember Spencer Tracy in his old age having a role in “Guess Who’s Coming to Dinner.” He couldn’t get that part unless he did it without insurance because he was very ill at the time (and died very soon after the film was finished). When the film wrapped, he grabbed the director by the shoulders and shouted that he had done it. Remember, even a small delay for health reasons can lead to huge delays because of the tight filming schedule of most pictures.
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amazing woman. i understand her need to keep things private. On another note, I thing another famous lady suffered also, Lucille Ball