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hi kelly,
i believe and agree with you that quality sleep is needed for us RAers. sleep heals… 😀
God bless always…
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Sometimes I wonder if you aren’t tapping into my brain. Last night, I was hurting so bad, I couldn’t find the right position, every little movement to adjust was like pulling teeth, and all I could wish for was the “luxury” of being able to take a Tylenol PM or, if I had one, a tramadol to help ease the pain and give me the extra help to sleep. (I respond all too well to the PM and Tramadol, so I’d be a zombie today if I took it after 8PM.)
I am going to have to hit a mattress store this weekend with the hubby to find a good mattress, because our is REALLY old.
I think a lot of problems could be helped if we could get a good quality of sleep. Rest is essential for so much. The natural state for our eyelids is closed and the natural state for our mouths is open. Not to mention all the rest of the stress we put our bodies thru, if we don’t have a dibilitating disease. Sleep is the only time we can give our bodies/muscles a break.
Thanks for this article, and for reading my mind *giggles*.
Thanks for the smiles, Katie. 😀 There are some suggestions & links about mattresses on the tackling sleep problems post. They might help.
I know that sleep is important but I feel that all I do is sleep. I am 34 and work a full-time job. When i get off work, I go home and nap for an hour or so and then get up for a bit and go back to bed. On the weekends I have to take a 3-4 hour nap. I am blessed that my fiance is understanding but no matter what I say to myself about how it is important to sleep, deep down I feel lazy.
Agree 100%. At my worst RA pain levels I could not get any sleep. It became a vicious cycle as the days went by and the lack of sleep made my pain worse. My rheumatologist gave me medication to help sleep and the pain decreased – not disappeared – but improved.
In my early RA days I struggled to find a new mattress. It took me a month , 4 mattress and many pillow tops to finally find the right one. Lack of sleep was making my RA worse.
Good topic. Sleeping in a mattress with coils really, really caused my hips a lot of pain. We now have a Sleep Number bed and it is so much better. I’ve never been someone who cold take naps (prior to RA). Some days the fatigue is so bad that I have no choice. Some days I can’t get any good sleep at all, not even with a good mattress. My belief is that I should try and get more rest – my mother who had RA for many years would always at least rest on the bed for an hour or two even if she couldn’t sleep. I think I should do that too, but that makes me feel guilty of being lazy, even though I know better.
I agree that coils and RA do NOT mix! Try not to be so hard on yourself if you have to rest – we all fight that guilt. But it’s like a phantom – we aren’t at fault.
Hello,
I’ve been a lurker for a while but thought I’d introduce myself. I am a 48 year old woman and I was offically diagnosed with RA last fall. I’ve had symptoms for at least a couple years, though. I have a knowledeable, kind, RA doctor and I am on MTX, Plaquinil, Folic Acid and have my second Humira injection on Friday. I really struggle with fatigue. In addition to the RA, I also have Hashimoto’s disease and Restless Legs Syndrome and take medication for both. I grind my teeth at nigh and so I have to wear a night guard. Lately I find myself awake in the middle of the night and unable to get back to sleep. Thankfully, it’s not my legs wiggling that keeps me awake. I think it’s a combo of worry over this disease, muscle tension and of course, the aches in my joints. I have an active lifestyle – married with two middle school aged kids, my own business, and two horses that I train and compete with in the sport of dressage. There are so many days that I get up just wanting to go back to bed. I think the fatigue is just the worst thing about this disease, and it really is debilitating. Thanks for reading ~ Tami
I have to agree about the coils, we have these and I’d not linked those before reading this but I had been finding it increasingly hard to sleep well, waking several times at night and not being able to get comfy to read (something I do almost every night in bed). We recently bought a memory foam topper and memory foam pillows and oh boy they really do help. Last night I slept 9.5 hours,I felt awful when I went to bed, only briefly waking when hubby got up for work. I’m so glad we bought them. I don’t normally sleep that long as usually I go to bed just after 10 & read anywhere till 1 or so. I like to read until I can’t keep my eyes open and that way I think less about the pain when I lie down. I’m up around 7, 7-30 to ensure my youngest is up for school. I think sleep is very important for us. I’m not a daytime napper though, although when the fatigue really hits hard it has been known, I hate it though!
I have to say, lack of sleep affects my RA/psoriasis more than RA/psoriasis affects my sleep. Though I suppose it’s just a viscous cycle… good post, Kelly.
I think of my RA and restful sleep as a cycle….The worse my RA symptoms, the more difficult it is to have a good night’s sleep, but the poorer my quality of sleep, the worse my RA symptoms. Luckily I have a great psychiatrist who recognized this from the very beginning of my RA diagnosis. I respond very well to a psychiatric medication, Seroquel, which also helps depression. At least for me, the dose can be adjusted as needed for sleep. Sometimes when I get so tired, sore and achy beyond belief, sleep (with the aid of Seroquel and an NSAID or light pain reliever) is the best medicine. There is no comparison to my symptoms pre- a good night’s sleep, and post…Thankfully my psychiatrist recognizes this, as my Rheum as never mentioned it.
At the time I found out I had RA I really had very few symptoms, if any. The family doctor had ordered the test because I had knee problems and he wanted to rule out Ra as a cause. That was in October and I had my first appointment with the Rheum doc in Dec. Subsequently started on methotrexate 6 tabs a week. I definitely had joint pain and fatigue after that!!! I thought it was a coincidence. Never heard of that side effect till today. Currently am not on Metho anymore and have just mild joint pain and fatigue. Taking another DMARD and weaning off prednisone and feeling pretty good. Think the whole time I was on Metho I didn’t feel well, about a year, and then ended up in the hospital with a lung infection for four days. Went off the metho, and stopped Simponi, and was ok for a couple of months, but then had a pretty good flare. Back on the metho, only four tabs this time, and prenisone. Felt really bad for days each time, so asked the Dr for a different medication and am doing fine. Thank God!!!
I have a warm water bed.
It does help.
But know matter what you do,when the pain starts you are not going to sleep
I have suffered with RA for years. I have been going to a pain doctor for a long time but he recently referred me to a rheumatologist. I had been on Norco, Celebrex, and Flexeril, but I was still in significant pain. The rheumatologist put me on methotrexate, 4 pills a week for 2 weeks and then 5 pills a week, as well as folic acid. The nausea was overwhelming but even more disconcerting, I was not able to sleep more than 2 hours a night no matter what. Also, my joint pain and ability to ambulate even short distances was 3 times more painful than it had been. Though I have mentioned to my pain doctor, rheumatologist, and PCP my inability to get more than 2 hours of sleep a night, they all have had no solutions and will absolutely not give me anything to help me sleep. I have resorted to OTC medications, which do not help at all, and I have been told to take nothing for pain, besides the Norco, except Tylenol, which does not help me. I am 67 and I am still working full-time and need to work at least 3 more years but the outlook is dismal when I look ahead. My rheumatologist told me that sleep was vital to my alleviation of symptoms, but still offers no help in that regard.
I had sleep depravation years before true consistent RA pain showed up.(since I was in my early 30’s) So I do not agree mY sleep issue are based in pain. I am in total agreement that my quality of sleep factors into my level of pain. Since I went thru menopause at 46 (I completed it in 3 month) I have not slept more than a few hours at any one time. Medications to relax me either don’t work or give me hideous side effects. I wish there were doctors that took more than one factor onto consideration. They ask about sleep but then really never address it again. They do act like it is only a result of the pain and they seem to not see it as a causation of the body breaking down and increased pain. I feel I will never heal from anything I have a horrible time getting over a common cold or sinus infection because I simply cannot and don’t sleep