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Why doesn’t methotrexate cause hair loss on my legs instead of just my head?
Good one! 😀
Great questions. Why does my doctor tell me that combination treatment can lead to remission and I still can’t get my current med plan to work? And does remission with RA actually exist or is it just some ploy for us to pay for useless meds?
LILI!!!
Are you reading my mind?
Remission is tomorrow’s post!
great minds…
I love your blog it made me laugh out loud, so true and you put such a great spin on it good job, love it !
This is hilarious!!! I want to print this out and show my rheumatologist!!
Sometimes I think remission is all in your head!!
I found a link to your blog and have found the info you provide quite helpful. Pretty funny too.
MW, MA, Fred:
Thank you for laughing with me! That is one purpose of this blog… 😛
Very funny!! Off topic, but it reminds me of one I heard the other day, a variation on the philosophical question: “If a tree falls down in a forest and there’s no one around, does it make a noise?”
The variation I heard in an TEDTalk by Ken Robinson is: “If a man speaks his mind in a forest and no woman hears him, is he still wrong?”
I am not touching that one. We are so glad we have male RA’ers and docs in our group… 😎
I was also wondering whether since a tree falls in the forest and makes no noise; if I have pain and no one believes in it, does it really hurt? Not quite as funny though. Too close to home. :razzmad:
Kelly Young, thank you for starting my new year off the right way..I just found this website and I feel like I am home….To you and all the wonderful people here, Thank You for getting it..It has been a long time since someone has understood…I look forward to sharing and listening with all of you.
Welcome, Patti. It is great when you figure out you are not alone. I am often helped by what others write here too.
Ok im totaly angry now.. I take a bunch of meds my fav being the prednisone cause it does make you feel “happyier” and more speedy but the food cravings and the eating packing on 30 pounds in 3 months.. wtf is that about?? its kinda like speed why cant we lloose weight like the speed freeeks and feel good too?? not fair..
No, not fair. Nothing about RA is fair. True. :rain:
A few more…
* [This week] I had joint replacement on my 4 main knuckles in Nov. One joint is permanently crooked and sticks up. My question: Why does the jewelry think he needs to give me a lesson on physics and my Silver Ring Splint when all I wanted was it bent a hair so it would be more comfortable? He kept wadding up his paper to say, “when I push down here, it pops up here” like I was 4 years old. After 4 new fingers and months of therapy I think I know what my fingers/ring need, not him. (His attitude wasn’t necessary.) I said “That would be true for YOUR fingers. My fingers now have silicone. What you see is what it is. It’s not going to ‘get better’. I’m supposed to wear this the rest of my life. I just want it slightly more comfortable.” Grrr
* Why, when you have joints replaced, everyone thinks the pain is all gone now that the joints aren’t real? Uh, no. I have a DIFFERENT hand, but not a NEW hand. My fingers are nice and straight but they don’t bend much.
* Why does the Arthritis Magazine nearly always feature people who have “overcome” their arthritis and done physical things like marathons, instead of focusing on those who have adapted to their illness and still become successful with their brain?
* Why when you have a surgery do people say, “So this will be your last one now?” (Uh, no. . . I am trying to only ave 1-2 a year) RA doesn’t get better after 16 years. Now I just try to keep up with the damage (and my 7 year old son!)
* When trying to get pregnant while having RA, and off methotrexate, everyone assures you “it will happen” once you relax and go back on your meds– which is exactly what you DONT want?
* Why does the doctor insist on putting you on blood pressure meds, when it’s only high when you visit HER? (but not all of the other doctors…) Mine is high only when I visit her because I am actually SICK with a cold. And if you have a stripe of bruise around your arm by the time the doctor gets to the exam room, could the fact that the nurse nearly had you on the floor with pain from the cuff tightness have anything to do with your BP reading high?
* No, MRIs, etc. –anything with a tube you slide into– are NOT “no a big deal.” When your shoulders are permanently out of place and you’ve not been able to lay on your back in years without pillows all around you, and they tell you to lay on a 2×4 for 18 minutes and not MOVE, it’s pretty painful. Just did this again for a nuclear stress test and had a Charley horse in my shoulders quivering most the time. Not fun.
Thanks for letting me vent. Love your blog and humor!
Thanks for venting Lisa. It was good to hear your voice. :highfive:
I will comment on the MRI part. I had to really let go of my own anger before I could write my funny MRI post. They really don’t seem to have any idea what RA is and pull and shove and demand you get into position. I was in the tube for well over an hour then had to do so more if it a few months later. Every time, they seem so impatient when I say, “I’ll do whatever you want. I’m just slow.” Then, when I cannot get up quickly afterwards, they roll their eyes…
Lisa, educating the medical professionals is one of my goals. I’ve also had lab techs and nurses be very rough with me as you describe. I leave bruised like you. We need to educate. That cannot be done while the magazines do as you describe.
MRI’s used to be horrible for me until I met an MRI tech at Church! I am now treated with respect and gentleness,his wife would give it to him bad if not lol. He is also attempting to teach his fellow techs to be more careful with RAers and others with invisible diseases. He said that most techs are not knowledgeable unless we inform them right away about our pain. God Bless
Insensitivity is the watchword. So many people, friends, doctors, family members just don’t understand. It’s too bad that there wasn’t a “hollosuite” (Star Trek term) for those who really need to be exposed to what RA really feels like.
I think once a person could actually have a minute or two to “feel” what we all endure, then they would never doubt us again. That being said, however, i wouldn’t wish this kind of pain on my worst enemy much less any other person on the planet.
Sorry it’s been a while since I have posted, Kelly, but the last two weeks I spent trying to recover from a nasty bout of Bronchitis. Fortunately I have survived and am feeling very well and feisty.
Hi Michelle,
Glad you’re better. & Happy you feel fiesty. :soldier:
Oh, what a great analogy. I wish that thing were real. I saw ever Star Trek episode 5 times. I’m not cruel, but I could bring myself to expose most medical professionals to it for a few moments for the reasons you state, knowing it is reversible of course.
I just want to add a voice of hope in here… there is such a thing as remission. I was in it one time a long time ago. I don’t even remember when. It lasted a good while – maybe a year or so. I think it was in the late ’90s.(Does it count as remission if you’re still taking the meds?) Anywho – I’m working to get back to that happy place! Good luck to all of you!
Thanks & good luck to you, too. 🙂
Hahaha, this had me in stitches laughing! <3
Hysterically TRUE!!
Im so glad to come across this site, i was just told i have ra , and aam not one bit happy, my mom had it horrible for yrs. and my best friend, the pain is horrible, helps to talk to others who have it, right now i feel like the end of the wold is here, ill fight it all the way though!
Welcome Vicki. I’m sorry that RA brought you here, but you sound like a wonderful warrior.
NOw that is funny, thanks for the laugh
Hi I am trying to just take the Plaquinil and sulfer drug and hope to not have to take the M one. Still can’t do much art as on now but the pain has almost gone away!
Deb Wilden
Thanks for this blog and this particularly humorous page! I actually LOL’d! So many thoughts running through my head around now!
I do appreciate I’m so lucky compared to many people. .. my artificial MCP joints (“installed” in 2012!) are quite flexible and 95% pain free and my meds do have things largely under control (most of the time) but I have a couple of questions if anyone can answer please…
What is a “biologic” drug? I see this term on several posts but have never heard it used here in England. I take 22.5mg Methotrexate and 25mg folic acid each week, plus 400mg Plaquenil & 600mg etodolac daily. Are any of these ‘biologic’?
Really love your humour and kindness. Look forward to wading my way through so-far unread pages in due course!
Thanks.
Sally
No, those are DMARDs (disease modifying anti-rheumatic drugs). Biologics were created from living cells – not chemicals so that’s why they are a different class of drugs (in simplistic terms). There are several articles here on biologics – click where the arrow is on teh right of the page where it says “Tags – list of topics” http://www.rawarrior.com/tag/biologics-for-ra/