Archive for the ‘Special Occasion’ Category

  • Rheumatoid Awareness Day 2016

    Rheumatoid Awareness Day is February 2. Rheumatoid Awareness Day 2016 is the 4th year observed for Rheumatoid Disease / Rheumatoid Arthritis patients.

  • After Fear and Failure, Freedom

    Comparison of fear to talk about rheumatoid disease and other fears. Inspirational quotes from JK Rowling about freedom after fear and failure.

  • BRIEF UPDATE WITH REQUEST FOR HELP

    In some ways RA Warrior (RAW) and the #rheum community that grew from it have been like family to me and to one another. Many lasting and close friendships have developed as we’ve shared information, understanding, laughter, tears, and hope. It has been sad for me to miss all of you, as I’ve been away […]

  • HAPPY RHEUMATOID AWARENESS DAY 2014

    Rheumatoid Awareness Day (RAD) was yesterday February 2, but since the day fell on Sunday this year, the events continue this week. Today at 11 a.m. EST, I’ll co-host a Twitter chat in honor of Rheumatoid Awareness Day with EveryDay Health. Click here to read more or see how to participate. The hashtag is #HealthTalk. […]

  • 3 Rules of Fair Play for People Living with Rheumatoid Disease

    Rheumatoid Awareness Day is only ONE day away. Join us this morning February 1 at 10 a.m. ET for a special Twitter #rheum chat. RPF is inviting clinicians, patients, and caregivers to Tweet at least once to help spread awareness. Join in by just adding “#rheum” to a Tweet – or click here to read […]

  • What Would Rheumatoid Awareness Mean to You?

    What difference do you think it would make if it Rheumatoid Disease were recognized for what it is by everyone – the general public, media and marketers, pharmaceutical companies, U.S. National Institutes of Health, the Centers for Disease Control and Prevention, the American College of Rheumatology, all healthcare professionals, your neighbors and your family…?   […]

  • Together, We’re Neither Alone Nor Powerless

    Friendship is born at that moment when one person says to another: “What? You too? I thought I was the only one.” ~CS Lewis    Most of the time, it seems we’re pretty powerless to change things. As long as we’re alone, it might stay that way. But when we find others like us, the […]

  • We Must Celebrate! Your Voice Was Heard, Despite My Limitations

    Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear […]

  • Sleepless in San Diego

    Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session […]

  • Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

    It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered […]

  • Steps Toward Understanding Rheumatoid Disease

    2 Big Announcements Last month in What is Rheumatoid Arthritis (RA) / Rheumatoid Disease (RD)?, we asked what this disease IS, with 10 things it doesn’t make sense if doctors don’t know. When we truly know what RD is, we can diagnosis it early, treat it successfully, and cure it! We’re taking steps to support that […]

  • Happy Birthday RAW! The Day I Could No Longer Stay Silent

    This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day. Today begins year five of RAW Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a […]

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