Archive for the ‘Special Occasion’ Category

  • Rheumatoid Awareness Day 2016

    Rheumatoid Awareness Day is February 2. Rheumatoid Awareness Day 2016 is the 4th year observed for Rheumatoid Disease / Rheumatoid Arthritis patients.

  • HAPPY RHEUMATOID AWARENESS DAY 2014

    Rheumatoid Awareness Day (RAD) was yesterday February 2, but since the day fell on Sunday this year, the events continue this week. Today at 11 a.m. EST, I’ll co-host a Twitter chat in honor of Rheumatoid Awareness Day with EveryDay Health. Click here to read more or see how to participate. The hashtag is #HealthTalk. […]

  • We Must Celebrate! Your Voice Was Heard, Despite My Limitations

    Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear […]

  • Sleepless in San Diego

    Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session […]

  • Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

    It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered […]

  • Happy Birthday RAW! The Day I Could No Longer Stay Silent

    This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day. Today begins year five of RAW Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a […]

  • An Event Especially for Gathering Encouragement

    You’re not alone If I’ve said it once, I’ve said it a thousand times, “You’re not alone” with this disease. So many of us share experiences. And yet, we hear frequently about the loneliness that Rheumatoid disease creates. Community is a tremendous remedy and it’s what brings many warriors here time after time. Hearing “you’re […]

  • Thoughts about Schedules & How Evil Tongs & Barstools Are

    Sometimes there’s a weird reason it seems impossible to write – I have too much to write about and I don’t know where to start. There are lists of topics I want to write about and dozens of articles begun that I haven’t finished. Today I want to write about how evil tongs and barstools […]

  • The Best Rheumatoid Arthritis News Story I’ve Ever Seen

    Click now to hear the news story as it aired February 4, 2013 on KPCC, the local NPR affiliate in South Central Los Angeles. Honest rheumatoid arthritis news story on NPR station Jose Martinez KPCC interview Jose Martinez, writer for OnCentral: Reporting on health and quality of life in South LA, first contacted me a […]

  • Seeing Light and Shadows in Groundhog Day and RA

    TODAY, February 2nd,is the first Rheumatoid Awareness Day. Read more below about how you can be involved. Amateur actress shares Groundhog Day’s special place in her heart My sweet friend Steph, one of the bright treasures that I have gained from living with this disease, sent me a story in an email yesterday. I’ll hope you’ll […]

  • This is our 10K

    Have you read the posts on the Facebook event for Rheumatoid Awareness Day February 2nd? The stories, like thousands of comments on this site, describe the range of experiences and emotions people face with this disease. I’ve said your comments are like another whole blog– and that’s true. Together, we tell the full story of […]

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