Comprehensive RA Care Archives | Page 2 of 5 | Rheumatoid Arthritis Warrior

Happy Birthday RAW! The Day I Could No Longer Stay Silent

This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day. Today begins year five of RAW Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a few months....Continue reading      35 Comments » Read more

Where the Rubber Meets the Road or What If Only the Cancer in Dave’s Kidneys Was Treated?

Measuring disease activity: where rubber meets the road Recently a rheumatologist friend told me of needing to prove ACR20 (a measure of 20 percent improvement) in order for a patient to continue receiving a biologic treatment. I don’t know whether it was private or government insurance, but something bothered me about it. Of course, 20 percent improvement...Continue reading      21 Comments » Read more

Why Rheumatoid Disease Patients Still Fall through the Cracks

“Well, at least it’s nothing serious.” How many rheumatoid patients have heard that, some even from doctors? Last week, after Danita’s story, I wanted to share with you this letter to the editor of Musculoskeletal Network, but health issues and life and a board meeting delayed me. The letter below is my response to the Musculoskeletal...Continue reading      69 Comments » Read more

The 10 Fundamentals of Care for Rheumatoid Patients

Click here to download the printable PDF version of this important statement. What would appropriate rheumatological care for RA patients look like? The ACR tells us that the majority of Rheumatoid patients do not receive treatment that follows their recommendations. What are some specific requirements for good rheumatology care for RA patients? “Although the outcome of RA...Continue reading      17 Comments » Read more

Beginning Our 4th Year! 5 Stunning Things I Learned & My Forecast for the Future

Three years ago today, I typed my first blog post in my back yard on a whim. My daughter had started to blog – what’s to worry about – just do it! Before that, I’d been working on ideas for months. I did have a goal: to build a website where RA patients could find...Continue reading      44 Comments » Read more

Significant Numbers of RA Patients Don’t Receive Recommended Care

Understanding the reality of the disease is only half the battle We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, it...Continue reading      24 Comments » Read more
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