e-patient Archives | Rheumatoid Arthritis Warrior

Best RA Blog Birthday Gift

Best RA blog birthday gift Your contributions through comments, emails, and friendship have been the best gift to me! At the 10TH birthday of the RA Warrior blog and website, exciting things are happening. First, the Rheumatoid Patient Foundation (RPF) is offering you an opportunity to be heard and make a difference at the same time: RPF is...Continue reading      Make a Comment » Read more

10 Things I Wish I Knew 10 Years Ago About Rheumatoid Arthritis

Why wonder about 10 things I wish I knew 10 years ago? January was my rheumaversary. Yes that’s a new word. But it’s pretty clear what it means. Over the past few months I’ve been pondering what it means to live a decade with unrelenting rheumatoid disease. What does my future hold? There is so much...Continue reading      25 Comments » Read more

PCORI, Is It Worth It to Include Patients?

The patients who read this blog are like dear brothers and sisters to me. I’ve met many in person and it’s like a family reunion. The RAW website and blog obviously speak to others as well – lay and professional caregivers, rheumatology industry, and sometimes the larger patient engagement movement. We’re working hard for change...Continue reading      6 Comments » Read more

Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered discussions with...Continue reading      24 Comments » Read more

Do Patients Know Enough to Talk about Medical Topics?

The e-patient movement The movement for prepared, engaged patients and shared decision-making is international. It is recognized and supported by people in positions of power at many levels. Organizations, think tanks, and government agencies study the movement, often supporting it in an effort to advance care, reduce mortality, and lower costs. It is not patients versus...Continue reading      20 Comments » Read more
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