e-patient Archives | Page 3 of 6 | Rheumatoid Arthritis Warrior

The Powerful Health Care Role No One Really Wants: Being a Patient

June 30, 2012May 14, 2018 Kelly O'Neill 17 Comments e-patient, Patient advocacy, Rheumatoid Arthritis awareness

The valuable knowledge of patients with diseases like RA Today, Katie Beth and I flew home from San Francisco where I spoke three times this week: There was a presentation about the value of patient input with chronic conditions like rheumatoid disease, a panel discussion about e-patients and e-docs at Digital Pharma West, and an informal address...Continue reading 17 Comments » Read more

Mondini Syndrome Is Just Deafness Like RA Is Just Arthritis. Not.

May 31, 2012May 14, 2018 Kelly O'Neill 21 Comments e-patient, Living with chronic illness like RA, Parenting with RA

I was home for 3 hours today in between doctor appointments for my Tiger and I spent that time reading up on his diagnoses. As I drove him to 3 doctors in 2 days, thoughts swirled around and I decided to share some of it with you. This is not about RA, but there are...Continue reading 21 Comments » Read more

Kelly Young Wins WebMD Health Hero Award

November 13, 2011April 20, 2019 Kelly O'Neill 49 Comments e-patient, Patient advocacy, Rheum Disease in the Media, Rheumatoid Patient Foundation

WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health Hero honorees...Continue reading 49 Comments » Read more

The Path of Mercy in Medicine: A Tale of Two Doctors

September 28, 2011May 15, 2018 Kelly O'Neill 12 Comments e-patient, Patient advocacy, Talking to doctors

Physicians enjoy a unique position in our society with unique opportunities to make a difference in others’ lives. With that powerful role, they can choose between a path of mercy and a path of nonchalance. They can be a tool in the hands of God or they can just be a tool. There was the woman...Continue reading 12 Comments » Read more

Without e-Patient Input, an ER Experience Can Be Empty

May 28, 2011May 15, 2018 Kelly O'Neill 52 Comments e-patient, Living with chronic illness like RA, Rheumatoid arthritis pain

Things that patients know about their health and the wealth of information they find online make input from patients valuable and meaningful. These patients are called e-patients. An e-patient acronym: Expand Participation by Allowing The Input of Evidence Not in Textbooks Hopefully, you didn’t miss the exciting news for rheumatology e-patients acknowledging that by “pooling our knowledge and...Continue reading 52 Comments » Read more