Posts Tagged ‘Invisible Illness’
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By the Way, I Have RA
I have written about the difficulty of disclosing about RA, especially at events like a Mayo Clinic Center Social Media conference. But we haven’t talked much about the other side: When we explain about RA, do people understand? Not so much. In a recent example, I went through three rounds of explanations about why I [...]
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Ten Funny Things I Tell Myself about Living with RA
Living with RA can make you feel like an alien since you’re the only one around you enduring what you do. Often, I talk to myself while trying to get through the day. I try to be encouraging, but sometimes I’m just silly. Uh oh. There’s something wrong with my knee. What in the world [...]
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Nuclear Bone Scans for Rheumatoid Arthritis or Scintigraphy
Bone scans for Rheumatoid Arthritis that “Lit up like a Christmas tree”! Several patients have told me stories of having a nuclear bone scan (scintigraphy) that made a difference in their diagnosis or treatment. We know how much a reliable imaging tool is needed measuring disease activity for either reason. I’ve read about different versions [...]
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Joint Pain Relief: Some Fun Tactics & Dates to Save
There are some special events you won’t want to miss coming up on the blog! Meanwhile, it has been a blockbuster week here and I hope you’ll look back and check out any posts you might have missed. Lots of info from the American College of Rheumatology (ACR) meeting and a couple of new video [...]
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RAWarrior News Flare: Invisible Illness Week & ACR 2010
“News flare” just always seems more appropriate than news flash. There’s some big news for the blog this week. News for the blog is news for all of us since the Rheumatoid Arthritis Warrior blog represents the viewpoint of the patient living with the invisible illness of RA and the similar autoimmune rheumatoid diseases. It’s [...]
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Yale Medical School Graduation Address: a Patient Centered Approach
Dr. Donald Berwick made a unique graduation address at Yale in May 2010. His own daughter was graduating. I wanted to comment on Dr Berwick’s speech and post it for you for a while, but every time I read it I cry. Advocating patient centered care: What does that mean? I don’t often write about [...]
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Response to a Blog Written by a Rheumatoid Arthritis Doctor
Please read the first part of this blog: Rheumatoid Arthritis Doctors. That post discusses a story written by a young doctor who describes part of his training. If you read that post and others on the site, you know this is not an attack on good Rheumatoid Arthritis doctors. Those are the ones, like Doctor [...]
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The Rheumatoid Arthritis Diagnosis Mystery
Mysterious flares For me, a Rheumatoid Arthritis diagnosis was a very long process. From the teen years on, sudden painful flares attacked my hands, feet, hips, and shoulders – only I had no idea they were called flares. The whole process seemed rather comical, like a scene from a Dick Van Dyke episode: healthy girl [...]
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