Posts Tagged ‘Invisible Illness’

  • 5 Reasons Disease Awareness Matters

    Discussion of the value of disease awareness especially with so-called invisible illnesses. List of ways that disease awareness

  • An Unremarkable Reality: Scans Don’t Lie – or Do They?

    Show me your erosions or else Some of you may remember last year when we met Dr. Shrug who gave my foot an ultimatum: Show me a bone erosion, or no more DMARDs. We only ever saw the doc once (more than enough). It was Dr. Tylenol’s partner, who they scheduled us with since Dr. […]

  • Rheumatoid Awareness: Judgmental Eye Rolls Versus Help & Compassion

    Treated like you’re fine when you’re not A comment this week by Lisa sums up one of the most important reasons we need awareness for Rheumatoid Disease, and one of the hardest to explain to others. “RD awareness would mean that I wouldn’t be treated like I am fine when I am not. It would […]

  • Vicks Vaporub Cure for a Disease That’s In Your Head Anyway

    I got something free with my Chinese food the other night when I went to pick up my egg rolls: advice. It was the end of a long, hard, day. I’d pushed myself hard to be moving at all with harsh stiffness and sharp pain in over a dozen joints. We’d been out that day […]

  • Could Divorce Be One More Pain from Rheumatoid Disease?

    I’ve received several emails and messages from people living with Rheumatoid Disease (PRD) who have been divorced by a spouse, sometimes in part due to ways Rheumatoid Arthritis / Disease affects them. It’s sad to hear from a woman who can’t figure out how she’ll provide for her kids, or a mother whose kids were […]

  • What a Wonderful World, and Nobody Knows the Trouble I’ve Seen

    Do these two song titles seem to conflict? The former was one of the first songs I ever put (and kept) on my phone. The latter I learned in second grade because my teacher thought every American must know Spirituals. (Hear Louis Armstrong sing below, and Nobody Knows the Trouble I’ve Seen on YouTube.) Guys, cover […]

  • 10 Misconceptions About Chronic Disease Many People Believe

    You can’t understand illness by just looking at a person Very soon after being diagnosed with RA, I learned that most people have beliefs about chronic illness that are hard to overcome. When one neighbor, friend, and family member after another dismissed me, I did the same thing most people with Rheumatoid Disease (PRD) do: […]

  • Invisible Illness and the Public: She Hit Me with Her Cane

    Tomorrow I’m traveling to San Diego for the ACR annual meeting. I’ll be taking a proverbial chill pill (and some real meds) and hoping all goes smoothly. For weeks we’ve done all we can to be ready! This story occurred a couple of months ago… Did anyone ever give you a dirty look for using […]

  • If the Gloves Come Off, We Might See the Irony of Rheumatoid Disease

    What if the gloves never come off and no one ever knows. Then you end up with a serious disease that everyone thinks is no big deal; it’s just arthritis. But who wants to take them off? I sure don’t. Professional patient days Today was one of those professional patient days – when you have […]

  • Rheumatoid Disease Plays by Prison Rules

    Note: Please check your email box for my monthly newsletter that went out Thursday. If you aren’t signed up, you can get one by clicking here. It’s not the same as subscribing to these daily posts, which you can do by clicking here. This is really hard for me to explain. I’ve quit doing many […]

  • Invisible Illness Awareness Video

    Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much to provide support to people with “invisible illnesses” like Rheumatoid disease. I don’t know if she coined that term, but she certainly popularized […]

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